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Out of sight, out of mind: Inclusion of employees with invisible disabilities
Karlstad University, Faculty of Arts and Social Sciences (starting 2013), Karlstad Business School (from 2013).ORCID iD: 0009-0005-3092-9683
2025 (English)Licentiate thesis, comprehensive summary (Other academic)
Abstract [en]

The phrase “Out of sight, out mind” highlights organisational unawareness of the challenges faced by employees with invisible disabilities, who often choose not to disclose their condition and instead rely on individual coping mechanisms. Practices that often are unknown to coworkers, managers and human resource officers. 

This licentiate thesis explores the complexity of inclusion, stigma and disclosure, focusing on the factors that facilitate and hinder the inclusion of employees with invisible disabilities when working from home. It explores perspectives from employees, managers and human resource officers in the Swedish public sector. The study provides empirical findings based on multiple qualitative methods to explore the challenges and enablers of inclusion efforts, particularly in the post Covid context. 

The results are presented in two scientific research papers, highlighting the impact of stigma and negative assumptions about disabilities, the importance of disability awareness and creating an inclusive and open work culture throughout the organisation. Additionally, the findings show that ideal worker norms affect women with invisible disabilities in overcompensating and coping on an individual level, rather than asking for support from the organisation. This study contributes to the understanding of complexities of inclusion and disclosure, and how organisations can create a more inclusive and supportive work environment for employees with invisible disabilities. 

Abstract [en]

The aim of this thesis is to deepen the understanding of challenges and opportunities for the inclusion of employees with invisible disabilities when working from home, drawing insights from employees, managers and human resource officers. 

The study provides empirical findings from the Swedish public sector, employing multiple qualitative methods to explore the challenges and opportunities of inclusion efforts, particularly in the new ways of working. These methods include a critical case study with photo-elicitation interviews, semi-structured interviews, a diary and a document analysis (paper I). The second paper comprises semi-structured interviews with human resource officers. 

The findings from the two research papers highlight the impact of stigma and negative assumptions about disabilities, the importance of disability awareness and creating an inclusive and permissive work culture throughout the organisation. When managers and human resource officers are unaware of ongoing challenges, employees who need support and accommodation do not receive them. Additionally, the findings reveal that ideal worker norms compel women with invisible disabilities to overcompensate and cope individually rather than seek organisational support. Therefore, ableism and gendered norms need to be addressed and questioned on an organisational level to make inclusive efforts. 

When working from home, employees can manage their well-being, work productively without sensory disruptions and easier live up to ideal worker norms. Further, when working from home, emotional labour is less pronounced for employees with invisible disabilities compared to when they are in an office environment. Finally, the sense of inclusion in this study is closely tied to productivity, influenced by New Public Management principles. Employees reported that they are judged based on their output, and when delivering productivity, they feel valued and included. 

This study contributes to the understanding of complexities of inclusion and disclosure from an individual and organisational level and offers insights into creating a more inclusive and supportive work environment for employees with invisible disabilities.

Place, publisher, year, edition, pages
Karlstad: Karlstads universitet, 2025. , p. 29
Series
Karlstad University Studies, ISSN 1403-8099 ; 2025:28
Keywords [en]
Ideal worker norms, Inclusion, Invisible disabilities, Organisation, Working from home
National Category
Work Sciences
Research subject
Working Life Science
Identifiers
URN: urn:nbn:se:kau:diva-105524DOI: 10.59217/jaev5920ISBN: 978-91-7867-594-4 (print)ISBN: 978-91-7867-595-1 (electronic)OAI: oai:DiVA.org:kau-105524DiVA, id: diva2:1973670
Presentation
2025-08-21, 11D 257, Karlstads universitet, Karlstad, 10:00 (Swedish)
Opponent
Supervisors
Projects
Det nya normala
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2021–01886Available from: 2025-07-31 Created: 2025-06-19 Last updated: 2026-05-04Bibliographically approved
List of papers
1. Living up to the ideal worker norm: a critical case study about women with invisible disabilities working from home
Open this publication in new window or tab >>Living up to the ideal worker norm: a critical case study about women with invisible disabilities working from home
2025 (English)In: Equality, Diversity and Inclusion, ISSN 2040-7149, E-ISSN 2040-7157, Vol. 44, no 9, p. 144-158Article in journal (Refereed) Published
Abstract [en]

PurposeThe study aims to critically explore, from an organisational perspective, the intersections between where work takes place, invisible disabilities, gender and the prevailing norms around work within a public organisation.Design/methodology/approachTen participants between 34 and 60 years old, including employees with disabilities, managers with and without disabilities and human resource (HR) officers, shared their experiences of working from home in Sweden. The study used semi-structured interviews, photo-elicitation interviews, a written diary and policy analysis. A thematic analysis was performed.FindingsThe study shows that working from home was perceived as an important workplace accommodation and an individual strategy about conforming to the norm and living up to the concept of the ideal worker. The organisation did not actively work on disability-related issues. There was also a lack of competence and structure.Practical implicationsIt is important to challenge the ideal worker norm and create organisational competence about the intersection of gender, disability and workplace location to create a sense of inclusion among employees.Originality/valueThe study highlights the complexity faced by women employees with invisible disabilities when deciding where to perform work (home or co-located office) and explores HR officers' and managers' experiences regarding working with the inclusion of employees with invisible disabilities.

Place, publisher, year, edition, pages
Emerald Group Publishing Limited, 2025
Keywords
Gender, Ideal worker norms, Inclusion, Invisible disabilities, Organisation, Working from home
National Category
Work Sciences Social Work
Research subject
Working Life Science
Identifiers
urn:nbn:se:kau:diva-104594 (URN)10.1108/EDI-10-2024-0499 (DOI)001478083100001 ()2-s2.0-105004284393 (Scopus ID)
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2021-01886
Available from: 2025-06-02 Created: 2025-06-02 Last updated: 2026-02-12Bibliographically approved
2. [Manuscript] Disability management - HR´s work with inclusion and addressing stigma
Open this publication in new window or tab >>[Manuscript] Disability management - HR´s work with inclusion and addressing stigma
(English)Manuscript (preprint) (Other academic)
National Category
Social Work
Research subject
Working Life Science
Identifiers
urn:nbn:se:kau:diva-105595 (URN)
Available from: 2025-06-23 Created: 2025-06-23 Last updated: 2026-02-12Bibliographically approved

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