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  • 1.
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Home enteral tube feeding  - from patients’, relatives’ and nurses’ perspectives2010Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    Changes in the health-care system during the past decades have led to an increased transfer of health care to the home environment which also concerns patients treated with home enteral tube feeding (HETF). Research is scarce about how HETF care is functioning. Therefore, the overall aim with this thesis was to describe and explore HETF care and treatment from patients', relatives' and nurses' perspectives. Three qualitative and one quantitative study were used. The findings showed that the HETF treatment and care had a great impact on daily life for both patients and their relatives and implied many practical, emotional and social problems in their daily life, which they strived to manage. Side effects were common and the patients' reported low HRQL and general health. The amount and quality of received guidance and support from the health care, not least before discharge, turned out to have impact on the patients' and the relatives' daily life and how they could manage their situation. Lack of guidance and support meant insecurity, worries and distress. Cooperation in the care trajectory was found to be decisive for how well the care was running. Nurses' knowledge about tube feeding and discharge planning procedures, their commitment to the patients' care, as well as clarity regarding responsibility of HETF care were factors of crucial importance on how the cooperation worked, and the quality of the HETF care. This thesis shows the need of improvements regarding the care of HETF patients and their relatives. 

  • 2.
    Bjuresäter, Kaisa
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Athlin, E
    Cooperation in the care for patients with home enteral tube fedingthroughout the care trajectory: from nurses' perspectives2005Conference paper (Refereed)
  • 3.
    Bjuresäter, Kaisa
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Fritzson, IM
    Athlin, E
    Samarbetet i vårdkedjan angående patienter med behov av enteral nutrition i hemmet2005Conference paper (Refereed)
  • 4.
    Bjuresäter, Kaisa
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Larsson, M
    A supportive nursing care clinic - The effect on eating problems, weight loss and quality of life for patients with head and neck cancer2009Conference paper (Refereed)
  • 5.
    Bjuresäter, Kaisa
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Larsson, M
    Athlin, E
    Nordström, G
    Feeding Methods, Side-Effects and Health-Related Quality of Life2008Conference paper (Refereed)
  • 6.
    Bjuresäter, Kaisa
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Larsson, Maria
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Athlin, Elsy
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Patients’ experiences of home enteral tube feeding (HETF): a qualitative study2015In: Journal of research in nursing, ISSN 1744-9871, Vol. 20, no 7, p. 552-565Article in journal (Refereed)
  • 7.
    Bjuresäter, Kaisa
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Larsson, Maria
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Athlin, Elsy
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Patients’ perspectives of treatment with Home Enteral Tube Feeding (HETF)2011In: Clinical Nutrition Supplements, 2011Conference paper (Refereed)
  • 8.
    Bjuresäter, Kaisa
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Larsson, Maria
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Athlin, Elsy
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Struggling in an inescapable life situation: being a close relative of a person dependent on home enteral tube feeding2012In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 21, no 7-8, p. 1051-1059Article in journal (Refereed)
    Abstract [en]

    Aim. To explore what it means to be a close relative of a person dependent on home enteral tube feeding (HETF) and how they can manage this situation. Background. Previous studies have shown that the situation of close relatives in home care in general can be burdensome and difficult. Research is scarce about experiences of close relatives when patients are treated with HETF. Design. A qualitative design was used, in accordance with grounded theory ( GT). Methods. Twelve close relatives were interviewed twice, using open- ended questions. Five were relatives of patients supported by home care services or advanced home care teams. Using the GT method, sampling, data collection and data analysis were carried out simultaneously. Results. One core category, ` Struggling in an inescapable life situation' and eight categories were found. The situation led to involuntary changes in the lives of the close relatives, something they could do little about. Their lives had become completely upturned and restricted by the HETF. Togetherness and pleasure was lost and they felt lonely. The relatives faced a new role of being informal caregivers and they had to adjust their daily life accordingly. They felt forced to take on a heavy responsibility for which they lacked support. The close relatives struggled to manage and to make the best of their new situation. Conclusions. This study highlighted the demands and vulnerability which is embedded in the role of being a close relative of a patient with HETF. It also pointed out their need for comprehensive support from the health care system.

  • 9.
    Bjuresäter, Kaisa
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Larsson, Maria
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Athlin, Elsy
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Nordström, Gun
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Patients Living with Home Enteral Tube Feeding: Side effects, health-related quality of life and nutritional care2014In: Clinical Nursing Studies, ISSN 2324-7940, Vol. 2, no 3, p. 64-75Article in journal (Refereed)
    Abstract [en]

    The aim of the study was to examine patients’ perceptions of side effects, health-related quality of life (HRQL), generalhealth, and nutritional care among patients receiving home enteral tube feeding (HETF) at two occasions after dischargefrom hospital. Three questionnaires, one study-specific, the Short Form 12 (SF-12) and the Health Index (HI), were sent topatients with HETF (n=62) twice, two weeks after discharge from hospital and two months later. Forty patients respondedtwo weeks after discharge and out of these 29 patients also responded after two months. Data were collected in centralSweden from March 2006 to January 2010. Side effects were common at both points of data collection (70% of thepatients after two weeks and 72% after two month). Patients using bolus feeding reported significantly fewer side effectsthan patients using intermittent feeding. HRQL and HI scores for the total group were low at both points of data collection.The bolus feeding group reported significantly higher physical HRQL and emotional HI than the intermittent feedinggroup did. Most patients were satisfied with the information and support they received from the health care team. Thisstudy has revealed that patients treated with HETF experienced side effects limiting their daily life to a great extent.Differences in HRQL related to feeding methods were found. Individualized support and regular controls are needed inorder to meet patient needs. Bolus feeding may be a suitable feeding method to improve well-being.

  • 10.
    Bjuresäter, Kaisa
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Larsson, Maria
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Nordström, Gun
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Athlin, Elsy
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Cooperation in the care for patients with home enteral tube feeding throughout the care trajectory: from nurses' perspectives2008In: Journal of Clinical Nursing (2008) 17, 3021-3029Article in journal (Refereed)
  • 11.
    Bjuresäter, Kaisa
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Larsson, Maria
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Nordström, Gun
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Athlin, Elsy
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Cooperation in the care for patients with home enteral tube feeding throughout the care trajectory: nurses' perspectives2008In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 17, no 22, p. 3021-3029Article in journal (Refereed)
  • 12.
    Bjuresäter, Kaisa
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Persenius, Mona
    Karlstad University, Faculty of Social and Life Sciences.
    Omvårdnad i samband med nutrition2012In: Omvårdnad vid kirurgiska sjukdomar / [ed] Lillemor Lindvall, Lund, 2012, p. 251-262Chapter in book (Other (popular science, discussion, etc.))
  • 13.
    Larsson, Maria
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Bjuresater, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    A Supportive Nursing Care Clinic for Patients With Head and Neck Cancer: Effects on Nutritional Status and Health Related Quality of Life2011In: European Journal of Cancer, ISSN 0959-8049, E-ISSN 1879-0852, Vol. 47, p. S325-S326Article in journal (Other academic)
  • 14.
    Larsson, Maria
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing. Univ Karlstad, Dept Nursing, Karlstad, Sweden..
    Bjuresater, Kaisa
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing. Univ Karlstad, Dept Nursing, Karlstad, Sweden..
    A Supportive Nursing Care Clinic for Patients With Head and Neck Cancer: Effects on Nutritional Status, Nutritional Treatment and Admissions to Hospital2011In: European Journal of Cancer, ISSN 0959-8049, E-ISSN 1879-0852, Vol. 47, p. S298-S298Article in journal (Other academic)
  • 15.
    Larsson, Maria
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    A supportive nursing care clinic: Effects  on nutritional status and health related quality of life for patients with head and neck cancer2010In: Clinical Nutrition Supplements: Abstracts of the 32nd ESPEN Congress, Elsevier, 2010Conference paper (Refereed)
  • 16.
    Larsson, Maria
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    A supportive nursing care clinic for patients with head and neck cancer: effects on nutritional status, nutritional treatment and admissions to hospital2011In: The 2011 Eoropean Multidisciplinary Cancer Congress, 2011Conference paper (Refereed)
  • 17.
    Larsson, Maria
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    A supportive nursing care clinic for patients with head and neck cancer: effects on nutritional status, nutritional treatment and admissions to hospital2011In: Clinical Nutrition Supplements, Elsevier, 2011Conference paper (Refereed)
  • 18.
    Larsson, Maria
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    A supportive nursing care clinic: the effect on eating problems, weight loss and quality of life for patients with head and neck cancer2011Conference paper (Refereed)
  • 19.
    Larsson, Maria
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    A supportive nursing care clinic: the effect on eating problems, weight loss, and quality of life for patients with head and neck cancer2009Conference paper (Refereed)
  • 20.
    Larsson, Maria
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Blomberg, Karin
    Örebro universitet.
    Wilde-Larsson, Bodil
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Langius-Eklöf, Ann
    Karolinska institutet.
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Betydelsen av en sjuksköterskemottagning under rehabilitering efter cancer i huvud- och halsområdet: patienters perspektiv2015Conference paper (Refereed)
  • 21.
    Larsson, Maria
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Hwa Lee, Siew
    Faculty of Health and Social Care, Robert Gordon University.
    Wilde-Larsson, Bodil
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Olsson, Cecilia
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Hov, Reidun
    Hedmark University College, Institute of Nursing, Department of Public Health, Elverum, Norway.
    Grov, Ellen Karine
    Institute of Nursing and Health Promotion, Faculty of Health, Oslo, Norway.
    Kennedy, Catriona
    Faculty of Health and Social Care, Robert Gordon University.
    Family carers’ preferences for support when caring for a family member at the end of life at home: Protocol for an integrative literature review2016In: Prospero, ISSN 1358-6785, article id CRD42016037839Article, review/survey (Refereed)
  • 22.
    Larsson, Maria
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Olsson, Cecilia
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Kaisa, Bjuresäter
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Sexual problems in patients with head and neck cancer- an area in need of further attention.2011In: European Journal of Cancer, ISSN 0959-8049, E-ISSN 1879-0852Article in journal (Refereed)
    Abstract [en]

    Background: Studies show that the incidence of sexual dysfunction ranges between 40% and 100% in patients where the tumor and treatment have a direct impact on sexuality. Head and neck cancer is a physically and emotionally devastating disease. Unlike other forms of cancer the disease and side-effects of treatment cannot be hidden as tumors of the head and neck affect the most visible area of the body. Treatment include surgery, radiotherapy and chemotherapy often in combination leading to severe side-effects such as facial disfigurement, pain in the mouth and throat, thick and ropy saliva and taste changes leading to malnutrition and loss of energy and strength.  In addition, fatigue, social isolation and low self esteem – factors that are known to influence sexuality – are common and apparently, patients with head and neck cancer are at high risk to develop sexual problems. However, little is known regarding sexual problems and sexual adjustments among this group of patients under treatment as well as during the rehabilitation period. Therefore this study was conducted with the objective to examine occurrence of sexual problems during and after the medical treatment.

    Materials and method: In this descriptive study 40 consecutive patients treated with surgery and radiotherapy for head and neck cancer participated. Data were collected each week during radiotherapy and six and twelve months after completed radiotherapy using EORTC QLQ-30 and EORTC H&N35, for health-related quality of life. The questionnaires include specific questions regarding sexual functioning and sexual desire. Descriptive and non-parametric statistics were used.

    Results: Sexual problems were common and were reported to occur quite a lot or a lot by 60% after completed radiotherapy, 30% after six months, and by 32 % after one year. Data analysis is ongoing and further results will be presented at the conference.

    Conclusions: Sexual problems are common in patients with head and neck cancer and this issue needs to be further studied

  • 23.
    Olsson, Cecilia
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Larsson, Maria
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Affected sexuality, body image and health related quality of life in patients treated for hematologic malignancies - a one year follow-up2015In: European Journal of Cancer, ISSN 0959-8049, E-ISSN 1879-0852, Vol. 51, p. S252-Article in journal (Refereed)
    Abstract [en]

    Background: Longitudinal studies examining sexuality, body image and health-related quality of life (HRQoL) in middle-aged and elderly patients treated with chemotherapy or chemoimmunotherapy for hematologic malignancies are lacking. The aim of this study was to describe and explore changes in sexuality, body image and HRQoL in patients treated

    for hematologic malignancies, from baseline until twelve months after treatment.

    Material and Methods: Patients above 45 years treated for Diffuse large B-cell Lymphoma (DLBCL), Chronic Lymphocytic Leukemia (CLL) or Acute Myeloid Leukemia (AML). Data were collected at baseline (n = 32), one (n = 25), six (n = 20) and 12 months (n = 19) after treatment by means of three instruments: The Sexual Adjustment Questionnaire (SAQ), The

    Body Image Scale (BIS) and The European Organization for Research and Treatment of Cancer Quality of Life questionnaires (EORTC QLQ-C30, version 3). Descriptive- and non-parametric statistics were used.

    Results: One month after treatment scores were lowered regarding sexual interest (P = 0.005), sexual function (P = 0.031), sexual satisfaction (P = 0.016, P = 0.004) and sexual relationship. After six months the patient reported scores had returned almost entirely to baseline scores, except for sexual relationship. At 12 months, sexual relationship was still negatively affected. Body image was reported to be affected in a low extent during

    the study period. After six and 12 months, body image was reported to not be affected at all by 50% and 53%, respectively. However, women reported body-image to be more affected than men at one (P = 0.01) and 12 months (p = 0.021). Regarding HRQoL, patients reported gradually statistically significant improved scores during the study period.

    Conclusion: In this study, sexuality, body image and HRQoL became negatively affected in patients with hematologic malignancies 45 years and older during treatment. Improvements were gradually seen after treatment, but the scores regarding sexual relationship were still affected after one year. Although sexual interest was reported to be low this finding highlights the need of support to these patients regarding sexuality during follow-up care. Furthermore, body image was more affected in women than in men indicating that interventions should be adjusted for sex. This was a small study and future studies with larger sample are needed.

  • 24.
    Olsson, Cecilia
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Larsson, Maria
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Affected Sexuality, Body Image and Health Related Quality of Life in Patients Treated for Hematologic Malignancies: A Longitudinal StudyManuscript (preprint) (Other academic)
    Abstract [en]

    Background:  Longitudinal studies exploring sexuality, body image and health-related quality of life (HRQoL) are lacking in older patients treated with chemo- or chemoimmunotherapy for hematologic malignancies.

    Objective: The aim was to describe and explore changes in sexuality, body image and HRQoL in patients treated for hematologic malignancies, from baseline until six months after treatment.

    Methods: Twenty patients above 45 years treated for DLBCL, CLL or AML participated. Data were collected at baseline, one- and six months after treatment by means of three instruments: SAQ-S, BIS and EORTC QLQ-C30.

  • 25.
    Olsson, Cecilia
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Larsson, Maria
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Affected sexuality in patients treated for malignant blood diseases: during and after treatment.2013In: Complex interventions research in Nursing: patient involvement and use of Mixed methods / [ed] Richards, David, 2013Conference paper (Other academic)
  • 26.
    Olsson, Cecilia
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Larsson, Maria
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Changes in Sexuality, Body Image and Health Related Quality of Life in Patients Treated for Hematologic Malignancies: A Longitudinal Study2016In: Sexuality and disability, ISSN 0146-1044, E-ISSN 1573-6717, Vol. 34, no 4, p. 367-388Article in journal (Refereed)
    Abstract [en]

    Longitudinal studies exploring sexuality, body image and health-related quality of life (HRQoL) are lacking in patients treated with chemo- or chemoimmuno-therapy for hematologic malignancies. The aim was to describe and explore changes in sexuality, body image and HRQoL in patients treated for hematologic malignancies, from baseline until 6 months after treatment. Twenty patients above 45 years (median age 62) treated for DLBCL, CLL or AML participated. Data were collected at baseline, 1- and 6-months after treatment by means of three instruments: SAQ-S, BIS and EORTC QLQ-C30. The results showed that patients' sexuality was negatively affected 1 month after treatment, but after 6 months the patient reported scores had returned almost entirely to baseline scores. Body image was slight negatively affected after 1 month and after 6 months, 50 % reported that body image was not affected at all. Regarding HRQoL, patients reported gradually improved scores during the study period. Regression analysis showed that changes in sexuality and body image seemed to influence changes in HRQoL. This study has shown changes in sexuality, body image and HRQoL over time in patients above age 45 treated for hematologic malignancies. One month after treatment all three areas becomes negatively affected, and thereafter the patients' scores recovered to a great extent regarding these issues within 6 months. Sexuality and body image seem to be important aspects of HRQoL for these patients and need to be integrated in the cancer rehabilitation during and after treatment.

  • 27.
    Olsson, Cecilia
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Larsson, Maria
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Patients Treated for Hematologic Malignancies: Affected Sexuality and Health Related Quality of Life2015In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 38, no 2, p. 99-110Article in journal (Refereed)
    Abstract [en]

    Background: Sexuality in relation to Health- Related Quality of Life (HRQoL) is mostly studied with younger patients as participants who have undergone bone marrow transplantation and concerns fertility and/or sexual function. However, patients with hematologic malignancies such as DLBCL, CLL or AML most often are above their fifties and are treated with chemo- or chemoimmunotherapy.

    Objective: The aim was to examine how sexuality and HRQoL was affected in patients with hematologic malignancies, at baseline compared to one month after chemo- or chemoimmunotherapy.

    Methods:  Data were collected twice with a longitudinal design, using The Sexual Adjustment Questionnaire - S and EORTC QLQ C30.

    Results:  Thirty-two patients responded. The importance of sexuality, sexual desire and sexual ability decreased one month after treatment and distressing symptoms such as feelings of tiredness occurred more frequently, compared to baseline. At the same time improvement in Global health status/QoL as well as affected functions in HRQoL was reported.

    Conclusion:

    The findings are of significance for nurses in cancer care as it highlights that sexuality and HRQoL needs to be considered also in older patients with hematologic malignancies when fertility issues are of less importance. 

    Implication for practice:

    In order to meet these patients’ needs regarding sexuality and HRQoL the care must provide greater consistency and continuity. One way is to organize the care in a patient-centered way where patients continuously meet a nurse guided by the idea of holistic individual nursing care throughout the care trajectory.

  • 28.
    Olsson, Cecilia
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Larsson, Maria
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Påverkad sexualitet, kroppsuppfattning och hälsorelaterad livskvalitet hos patienter behandlade för maligna blodsjukdomar: en longitudinell studie2015In: Multiprofessionellt samarbete för en jämlik vård, 2015Conference paper (Refereed)
    Abstract [sv]

    Bakgrund

    Longitudinella studier som undersöker sexualitet, kroppsuppfattning och hälsorelaterad livskvalitet saknas för medelålders och äldre patienter som behandlats med kemoterapi eller kemoimmunoterapi för maligna blodsjukdomar.

    Syfte

    Syftet var att beskriva och undersöka förändringar i sexualitet, kroppsuppfattning och hälsorelaterad livskvalitet hos patienter behandlade för maligna blodsjukdomar, från baseline till sex månader efter behandlingen.

    Metod

    Tjugo patienter 45 år och äldre som behandlats för DLBCL, KLL eller AML deltog. Data samlades in vid baseline, en - och sex månader efter behandling med hjälp av tre instrument; SAQ-S, BIS och EORTC QLQ-C30. Deskriptiv- och icke-parametrisk statistik.

    Resultat

    En månad efter behandlingen var patienternas sexualitet påverkad avseende intresse (P=.005), funktion (P=.031), tillfredsställese (P=.016, P=.004) och relation. Samtidigt rapporterade patienterna förbättrad hälsorelaterade livskvalitet jämfört med baseline och att kroppsuppfattningen var påverkad i liten grad. Efter sex månader rapporterade patienterna förbättringar inom samtliga områden, med undantag för sexuell relation. Kroppsuppfattning var i liten grad påverkad efter en månad och efter sex månader rapporterade 50 % av patienterna att kroppsuppfattning inte alls var påverkad. Beträffande HRQoL, rapporterade patienterna successivt förbättrade värden under studieperioden (statistiskt signifikant).

    Slutsats och implikation för omvårdnad

    Patienter 45 år och äldre som behandlats för maligna blodsjukdomar rapporterade problem avseende sexualitet, kroppsuppfattning och hälsorelaterad livskvalitet under och efter behandling, med rapporterade förbättringar inom samtliga områden sex månader efter behandling. Eftersom intresse för sexualitet visade sig vara lågt för flertalet av patienterna bör stödet anpassas individuellt till patients behov. Patientcentrerad vård föreslås där patienterna kontinuerligt träffar en sjuksköterska som ger holistisk omvårdnad.

  • 29.
    Persenius, Mona
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Nutrition2016In: Omvårdnad & medicin / [ed] Ekwall, Anna, Jansson Anna M, Lund: Studentlitteratur AB, 2016, p. 115-123Chapter in book (Other (popular science, discussion, etc.))
  • 30.
    Persenius Wentzel, Mona
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Nutrition2016In: Omvårdnad och kirurgi / [ed] Kumlien Christine, Rystedt Jenny, Lund: Studentlitteratur AB, 2016, p. 123-131Chapter in book (Other (popular science, discussion, etc.))
1 - 30 of 30
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