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  • 1.
    Charalambous, Andreas
    et al.
    University of Technology, Cyprus and DOCENT & Department of Nursing Studies, University of Turku, Finland.
    Wells, Mary
    Imperial College Healthcare NHS Trust, London, UK.
    Campbell, Pauline
    Nursing, Midwifery and Allied Health Professions Research Unit (NMAHP RU), Glasgow Caledonian University, UK.
    Torrens, Claire
    Nursing, Midwifery and Allied Health Professions Research Unit (NMAHP RU), Glasgow Caledonian University, UK.
    Östlund, Ulrika
    Uppsala University/Region Gävleborg, Centre for Research & Development, Sweden.
    Oldenmenger, Wendy
    Department of Medical Oncology, Erasmus MC Cancer Institute, Rotterdam, The Netherlands.
    Patiraki, Elisabeth
    Nursing Faculty, School of Health Sciences, National and Kapodistrian University of Athens, Greece.
    Sharp, Lena
    Regional Cancer Centre, Stockholm-Gotland, Stockholm, Sweden & Karolinska Institute, Department of Learning Informatics, Management and Ethics, Stockholm, Sweden.
    Nohavova, Iveta
    Institute of Hygiene and Epidemiology, First Faculty of Medicine, Charles University in Prague, Prague, Czech Republic.
    Domenech-Climent, Nuria
    Alicante University, Spain.
    Eicher, Manuela
    Institute for Higher Education and Research in Healthcare and Nurse Research Consultant Department of Oncology, Lausanne University Hospital and University of Lausanne, Switzerland.
    Farrell, Carole
    Division of Nursing, Midwifery & Social Work, School of Health Sciences, Faculty of Biology, Medicine and Health, The University of Manchester, UK.
    Larsson, Maria
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Olsson, Cecilia
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Simpson, Mhairi
    NHS Lanarkshire, Scotland, UK.
    Wiseman, Theresa
    Clinical Chair of Applied Health in Cancer Care, Strategic Lead for Health Service Research, The Royal Marsden, NHS Foundation Trust, University of Southampton, UK.
    Kelly, Daniel
    Royal College of Nursing Chair of Nursing Research, Cardiff University, Wales, UK.
    A scoping review of trials of interventions led or delivered by cancer nurses2018Ingår i: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 86, s. 36-43Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    BACKGROUND: Advances in research and technology coupled with an increased cancer incidence and prevalence have resulted in significant expansion of cancer nurse role, in order to meet the growing demands and expectations of people affected by cancer (PABC). Cancer nurses are also tasked with delivering an increasing number of complex interventions as a result of ongoing clinical trials in cancer research. However much of this innovation is undocumented, and we have little insight about the nature of novel interventions currently being designed or delivered by cancer nurses.

    OBJECTIVES: To identify and synthesise the available evidence from clinical trials on interventions delivered or facilitated by cancer nurses.

    DATA SOURCES AND REVIEW METHODS: A systematic review of randomised controlled trials (RCT), quasi-RCTs and controlled before and after studies (CBA) of cancer nursing interventions aimed at improving the experience and outcomes of PABC. Ten electronic databases (CENTRAL, MEDLINE, AMED, CINAHL, EMBASE, Epistemonikos, CDSR, DARE, HTA, WHO ICTRP) were searched between 01 January 2000 and 31 May 2016. No language restrictions were applied. Bibliographies of selected studies and relevant Cochrane reviews were also hand-searched. Interventions delivered by cancer nurses were classified according to the OMAHA System. Heat maps were used to highlight the volume of evidence available for different cancer groups, intervention types and stage of cancer care continuum.

    RESULTS: The search identified 22,450 records; we screened 16,169 abstracts and considered 925 full papers, of which 214 studies (247,550 participants) were included in the evidence synthesis. The majority of studies were conducted in Europe (n = 79) and USA (n = 74). Interventions were delivered across the cancer continuum from prevention and risk reduction to survivorship, with the majority of interventions delivered during the treatment phase (n = 137). Most studies (131/214) had a teaching, guidance or counselling component. Cancer nurse interventions were targeted at primarily breast, prostate or multiple cancers. No studies were conducted in brain, sarcoma or other rare cancer types. The majority of the studies (n = 153) were nurse-led and delivered by specialist cancer nurses (n = 74) or advanced cancer nurses (n = 29), although the quality of reporting was poor.

    CONCLUSIONS: To the best of our knowledge, this is the first review to synthesise evidence from intervention studies across the entire cancer spectrum. As such, this work provides new insights into the nature of the contribution that cancer nurses have made to evidence-based innovations, as well as highlighting areas in which cancer nursing trials can be developed in the future.

  • 2.
    Henoch, I.
    et al.
    Sahlgrenska Akademien, Göteborgs universitet.
    Olsson, Cecilia
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Larsson, Maria
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Ahlberg, K.
    Sahlgrenska Akademien, Göteborgs universitet.
    Symptom dimensions as outcomes in interventions for patients with cancer: A systematic review2018Ingår i: Oncology Nursing Forum, ISSN 0190-535X, E-ISSN 1538-0688, Vol. 45, nr 2, s. 237-249Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    PROBLEM IDENTIFICATION: Symptom experience in patients with cancer consists of several dimensions, often measured descriptively within various populations but seldom used as intervention outcomes. This review aims at describing symptom dimensions as outcomes of interventions designed to alleviate symptoms in patients with cancer and to describe these interventions' effects on at least two symptom dimensions. LITERATURE SEARCH: The PRISMA statement for reporting systematic reviews was used. Searches were undertaken in various indexing sites. DATA EVALUATION: Extracted data included design, participants, intervention and control group treatment, targeted symptom dimension, and summary of results. SYNTHESIS: 2,041 articles were identified and 15 were included. The symptom dimensions were intensity, distress, prevalence, frequency, consequences, and quality. Eleven interventions had significant effect on symptom dimensions, mostly on intensity and distress. IMPLICATIONS FOR PRACTICE: Oncology nurses need clinical skills to be able to understand patients' experiences through their narratives. Various interventions are targeted at symptoms, and these need to be implemented to provide evidence-based symptom management.

  • 3.
    Kling, Elisabeth
    et al.
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Larsson, Maria
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Grundel, Karina
    Arvika kommun.
    Olsson, Cecilia
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Säker och bättre vård vid livets slut: Erfarenheter av Liverpool Care Pathway i Arvika kommun2016Konferensbidrag (Refereegranskat)
    Abstract [sv]

    Säker och bättre vård vid livets slut – Erfarenheter av Liverpool Care Pathway i Arvika kommun

    Bakgrund: Liverpool Care Pathway (LCP) är en standardvårdplan som syftar till att säkerställa en god vård vid livets slutskede oavsett vårdform. Genom bedömning av centrala behov och symtom, tydliga mål, samt utvärdering av given vård innebär LCP en struktur för att kvalitetssäkra vården. I en strävan efter en god vård i livets slut för alla har användningen av LCP blivit alltmer utbredd, men trots detta är den utvärderad i begränsad omfattning. Mot denna bakgrund, samt att LCP under de senaste åren ifrågasatts är det angeläget att studera effekter av LCP på kvaliteten av vården i livets slutskede.

     

    Syfte: var att undersöka hur sjuksköterskor och omvårdnadspersonal i kommunal vård uppfattade att vården i livets slutskede påverkades efter införandet av LCP, samt vilken betydelse de anser att LCP fått för vården i livets slutskede.

     

    Metod: Deskriptiv tvärsnittsstudie med kvantitativ ansats. Data samlades in mellan januari och juni 2014 med en studiespecifik enkät (50 frågor) med utgångspunkt i LCP. Tjugotvå sjuksköterskor och 120 omvårdnadspersonal (svarsfrekvens 63 %) verksamma på en korttidsavdelning, fem särskilda boende och inom fyra hemtjänstgrupper deltog. Icke parametrisk statistik användes för att testa skillnader inom- och mellan grupper.

     

    Resultat: Både sjuksköterskor och omvårdnadspersonal ansåg att implementering av LCP inneburit att vårdens kvalitet i livet slut förbättrats. Omvårdnadspersonalen uppfattade att införandet av LCP innebar att patienterna erhöll bästa möjliga omvårdnad och medicinska vård i högre grad än sjuksköterskorna (p=.011). Att arbeta enligt LCP när patienten var döende innebar en vård som uppfattades både säker och av hög kvalitet av båda personalkategorierna. Vidare uppfattades LCP underlätta bedömning av patienternas symtom och behov, samt underlätta kommunikation och överföring av information mellan olika personalkategorier.

     

    Slutsats: Att vårda patienter i livets slut i kommunal vård innebär en stor utmaning för både omvårdnadspersonal och sjuksköterskor. Genom att strukturera och systematisera vården vid livets slut med LCP säkerställs bedömning av patienters symtom och behov, bemötande av patienter och närstående samt kommunikation inom teamet. Parametrar som är betydelsefulla för en säker och god vård.

  • 4.
    Larsson, Maria
    et al.
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Hwa Lee, Siew
    Faculty of Health and Social Care, Robert Gordon University.
    Wilde-Larsson, Bodil
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Olsson, Cecilia
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Bjuresäter, Kaisa
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Hov, Reidun
    Hedmark University College, Institute of Nursing, Department of Public Health, Elverum, Norway.
    Grov, Ellen Karine
    Institute of Nursing and Health Promotion, Faculty of Health, Oslo, Norway.
    Kennedy, Catriona
    Faculty of Health and Social Care, Robert Gordon University.
    Family carers’ preferences for support when caring for a family member at the end of life at home: An integrative literature review2018Ingår i: Journal of Pain and Symptom Management, ISSN 0885-3924, E-ISSN 1873-6513, Vol. 56, nr 6, s. e59-, artikel-id CRD42016037839Artikel i tidskrift (Refereegranskat)
    Ladda ner fulltext (pdf)
    fulltext
  • 5.
    Larsson, Maria
    et al.
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Olsson, Cecilia
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Kaisa, Bjuresäter
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Sexual problems in patients with head and neck cancer- an area in need of further attention.2011Ingår i: European Journal of Cancer, ISSN 0959-8049, E-ISSN 1879-0852Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: Studies show that the incidence of sexual dysfunction ranges between 40% and 100% in patients where the tumor and treatment have a direct impact on sexuality. Head and neck cancer is a physically and emotionally devastating disease. Unlike other forms of cancer the disease and side-effects of treatment cannot be hidden as tumors of the head and neck affect the most visible area of the body. Treatment include surgery, radiotherapy and chemotherapy often in combination leading to severe side-effects such as facial disfigurement, pain in the mouth and throat, thick and ropy saliva and taste changes leading to malnutrition and loss of energy and strength.  In addition, fatigue, social isolation and low self esteem – factors that are known to influence sexuality – are common and apparently, patients with head and neck cancer are at high risk to develop sexual problems. However, little is known regarding sexual problems and sexual adjustments among this group of patients under treatment as well as during the rehabilitation period. Therefore this study was conducted with the objective to examine occurrence of sexual problems during and after the medical treatment.

    Materials and method: In this descriptive study 40 consecutive patients treated with surgery and radiotherapy for head and neck cancer participated. Data were collected each week during radiotherapy and six and twelve months after completed radiotherapy using EORTC QLQ-30 and EORTC H&N35, for health-related quality of life. The questionnaires include specific questions regarding sexual functioning and sexual desire. Descriptive and non-parametric statistics were used.

    Results: Sexual problems were common and were reported to occur quite a lot or a lot by 60% after completed radiotherapy, 30% after six months, and by 32 % after one year. Data analysis is ongoing and further results will be presented at the conference.

    Conclusions: Sexual problems are common in patients with head and neck cancer and this issue needs to be further studied

  • 6.
    Olsson, Cecilia
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Cancer patients sexuality during and after treatment: cancer nurses responsibility2015Ingår i: Quality of life - rehabilitation. FSK Landskonference 2015, 24–25 juni, Bella Center, Copenhagen, Denmark., 2015Konferensbidrag (Övrigt vetenskapligt)
  • 7.
    Olsson, Cecilia
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Mer intressant forskning från ECCO i Stockholm2011Övrigt (Övrig (populärvetenskap, debatt, mm))
    Abstract [sv]

    Populärvetenskap rapportering från ECCO The 2011 European Multidisiplinary Cancer Congress i Stockholm, 23-27 sept. Som TEVA stipendiat rapporterade jag i tidningen Cancervården nr 6, 2011 från två forskningsprojekt, dels angående genombrottssmärta hos cancerpatienter samt kvinnors behov av kunskap gällande sexualitet och relation när de har gynekologisk cancer.

  • 8.
    Olsson, Cecilia
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Om du bjuder in-kanske jag samtalar med dig: sjuksköterskors samtal med cancerpatienter om sexualitet2009Konferensbidrag (Övrigt vetenskapligt)
  • 9.
    Olsson, Cecilia
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Påverkan på sexualiteten hos patienter med maligna blodsjukdomar2012Konferensbidrag (Övrig (populärvetenskap, debatt, mm))
    Abstract [sv]

    Lägesbeskrivning av mitt avhandlingsarbete för kliniskt verksamma sjuksköterskor och läkare, samt ansvariga forskare för  kliniska studier i Uppsala-Örebroregionen.  Resultat studie I samt beskrivning av studie II och III, med några preliminära resutat.

  • 10.
    Olsson, Cecilia
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper.
    Sexuality in patients treated for hematologic malignancies - Problems and need for support from patients’ and nurses’ perspectives2014Doktorsavhandling, sammanläggning (Övrigt vetenskapligt)
    Abstract [en]

    Aim: The overall aim of this thesis was to describe and explore how sexuality, body image and HRQoL were affected in patients treated for hematologic malignancies, and their need for support. A further aim was to describe nurses’ conceptions of dialogues about sexuality.

    Methods: Ten nurses in cancer care (I) and twelve patients were interviewed (II). Data were analysed according to phenomenography (I-II). Data were also collected from patients (≥45 years) included consecutively: at baseline (n=32), one month (n=25; III-IV) and six months (n=20; IV) after treatment. Three instruments were used: SAQ-S, BIS and EORTC QLQ-C30. The data were analysed statistically.

    Main findings: The nurses (I) conceived that they should talk about sexuality with cancer patients, but usually did not due to their own attitudes, lack of knowledge about sexuality, communication skills and environmental conditions. The patients (II) experienced negative effects on sexual function and sexual relationship due to affected strength and sexual desire. The patients’ sexuality, body image and HRQoL were affected during (II-III) and one month after treatment (III-IV). Patients recovered with regard to these issues within six months, except for sexual relationship (IV). However, when the disease and side effects were experienced as severe, thoughts about and interest in sexuality were overshadowed, and the need or wish for support related to this issue was low (II). Sexuality and body image seemed to influence changes in HRQoL (IV).

    Conclusion: Patients above the age of 45 treated for hematologic malignancies with chemoimmunotherapy experienced problems related to sexuality, body image and HRQoL. However, as sexuality was found to be of low priority due to concerns for life when the disease and side effects were severe, support must be timely and individualized. Patient-centered care, with patients continuously meeting a nurse guided by the idea of holistic individual nursing care throughout the care trajectory, is suggested.

    Ladda ner fulltext (pdf)
    fulltext
  • 11.
    Olsson, Cecilia
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Sjuksköterskors samtal om sexualitet2010Övrigt (Övrig (populärvetenskap, debatt, mm))
  • 12.
    Olsson, Cecilia
    et al.
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Athlin, Elsy
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Sandin-Bojö, Ann-Kristin
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Larsson, Maria
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Sexuality is not a priority when disease and treatment side effects are severe: conceptions of patients with malignant blood diseases2013Ingår i: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 22, s. 3503-3512Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    AIMS AND OBJECTIVES:

    To describe how patients with malignant blood diseases conceive the influence of chemo- or chemoimmunotherapy on sexuality, and their need of support related to this issue.

    BACKGROUND:

    Sexuality is often negatively affected in cancer patients with sex-specific diagnoses. For patients with malignant blood diseases, the research is limited with regard to the effect on sexuality. Knowledge about their need for support related to sexuality is also needed as nurses are found to often avoid this area of their responsibility.

    Ladda ner fulltext (pdf)
    fulltext
  • 13.
    Olsson, Cecilia
    et al.
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Berglund, Anna-Lena
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Larsson, Maria
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Athlin, Elsy
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Nurses perceptions of talking about sexuality with cancer patients2009Konferensbidrag (Refereegranskat)
  • 14.
    Olsson, Cecilia
    et al.
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Berglund, Anna-Lena
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper.
    Larsson, Maria
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Athlin, Elsy
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Patient's sexuality: A neglected area of cancer nursing?2012Ingår i: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 16, nr 4, s. 426-431Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    PurposeThe purpose of this study was to describe nurses' conceptions of dialogues about sexuality with cancer patients.

    MethodsThe study was carried out using phenomenographic method. Ten nurses from different care contexts where nurses meet cancer patients in various phases of trajectory of care were interviewed.

    ResultsThe analysis revealed one main category 'We should talk about sexuality – but we usually don't' and three descriptive categories consisting of nurses' qualitatively different conceptions of talks about sexuality: (1) nurses' attitudes, knowledge and skills are impacting, (2) patients' sexual problems are the basis for dialogues and (3) the ward environment is impacting. The main category was hierarchically ranged and could be further understood by the descriptive categories.

    ConclusionThe study showed that cancer patients' need of talks about and support regarding sexuality were conceived as being low during the whole trajectory of care. Despite this the nurses conceived that they should talk about sexuality with the patients, but due to own attitudes, knowledge and skills, as well as conditions in the ward environment they usually did not. Further studies are needed to clarify how cancer patients especially with non-sex specific diagnosis describe their sexual problems and needs of support in regard to sexuality. About what, when, how and by whom, cancer patients and their partners want information and supportive care related to sexuality need to be clarified.

  • 15.
    Olsson, Cecilia
    et al.
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Björk, M.
    Jönköping university.
    Ringnér, A.
    Umeå universitet.
    The Pediatric Inventory for Parents: Swedish Translation and Psychometric Testing2018Ingår i: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 42, s. E97-E102Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    The Pediatric Inventory for Parents (PIP) measures parental stress related to caring for a child with an illness. However, no Swedish translation is available. Purpose: This study reports a Swedish translation of the PIP and psychometric properties of the instrument. Design and Methods: This is a descriptive/methodological paper. The PIP was translated and culturally adapted to Swedish, and comprehensibility was tested. Data were collected twice from 48 parents of children with different illnesses, and initial psychometric properties of the instrument were examined. The IES-R (Impact of Event Scale-Revised) was used for concurrent validity. Results: The Swedish version of the PIP demonstrated good correlations with the IES-R, and temporal changes were similar. Endorsement frequencies and test-retest were also satisfactory. When comparing groups of parents, the parents of children with cancer were statistically significantly more distressed, both on total score and for emotional distress and role function. Discriminative validity was demonstrated by comparing parents of children with cancer with parents of children with other diseases. Conclusions: The Swedish version of the PIP seems to be a valid and reliable instrument. However, as we used relatively small sample, for the future, we suggest further testing with larger samples. Practice Implications: Clinicians and researchers seeking to measure parental distress in chronic illness could use the Swedish version of the PIP. 

  • 16.
    Olsson, Cecilia
    et al.
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Larsson, Maria
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Berglund, Anna-Lena
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Nurses perceptions of talking about sexuality with cancer patients2008Konferensbidrag (Övrigt vetenskapligt)
  • 17.
    Olsson, Cecilia
    et al.
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Larsson, Maria
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Berglund, Anna-Lena
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Nurses perceptions of talking about sexuality with cancer patients (POSTER)2008Konferensbidrag (Refereegranskat)
    Abstract [en]

    Sexuality is a part of every human beings identity and it has a varying meaning for the individual person. The ability to love and feel loved is an important part of good health. People suffering from cancer often experience sexual problems due to several reasons.

    The purpose of this study was to describe nurses’ perception of talking to cancer patients about sexuality and their experiences of what sexuality means for cancer patients.

    A qualitative method with a phenomenographic approach was used. Ten nurses from different clinics, who met patients in various places during the trajectory of care were interviewed.

    The nurses’ perceptions are captured in two main categories and six descriptive categories. The first of the two main categories Obstacles and possibilities for the conversation describe the necessary conditions for the dialog together with three descriptive categories: Nurse’s professionalism and individual maturity, Interaction and relationship between the nurse and the patient, and The meaning of the surrounding structure. The second of the two main categories was The cancer patients’ need for support and information. It describes the nurses’ perceptions of how the patients’ need for support and information about sexuality varies during the trajectory of care. Descriptive categories to this main category were: The situation of life, The position in the trajectory of care and its meaning, and Consequences of the illness and its treatment.

    Conclusions: Alteration in cancer patients sexuality is a recognised problem related to the disease and its treatment. Sexuality is also a neglected aspect of cancer care. This study highlights that nurses have varied perceptions of talking about sexuality with cancer patients. Therefore knowledge in this area and competence are needed. 

  • 18.
    Olsson, Cecilia
    et al.
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Larsson, Maria
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Kling, Elisabeth
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Grundel, Karina
    Municipal Health and Medical Care, Arvika.
    Impact of the Liverpool Care Pathway on quality end of life care inresidential care homes and home care – nurses’ perceptions2019Ingår i: Nursing Open, E-ISSN 2054-1058, s. 1-11Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Aim was to describe how Registered Nurses (RNs) and assistant nurses (ANs) working in residential care homes and home care perceived quality end‐of‐life care after implementation of the Liverpool Care Pathway (LCP) in terms of subjective importance of care aspects and actual care given.

    Descriptive cross‐sectional.MethodsRegistered Nurses (N = 22; 100% response rate) and ANs (N = 120; 59% response rate) working in a Swedish municipality. Data collection with a study‐specific questionnaire (50 items) about perceived reality (PR) and subjective importance (SI). Non‐parametric statistics.

    Results:Implementation of the LCP ensured systematic assessment and alleviation of patients' symptoms and needs. The ANs, more than the RNs, perceived that the patients received the best possible nursing and medical care (p = .01). Both groups considered that communication with patients and families as well as the information exchange between the team members was facilitated. Areas for improvement were identified about psychological and existential support and patients and families' participation in care.

  • 19.
    Olsson, Cecilia
    et al.
    Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
    Ringner, Anders
    Umea Univ, Dept Nursing, SE-90187 Umea, Sweden..
    Borglin, Gunilla
    Blekinge Inst Technol, Dept Hlth Sci, SE-37971 Karlskrona, Sweden.;Malmo Univ, Fac Hlth & Soc, SE-20506 Malmo, Sweden..
    Including systematic reviews in PhD programmes and candidatures in nursing Hobson's choice'?2014Ingår i: Nurse Education in Practice, ISSN 1471-5953, E-ISSN 1873-5223, Vol. 14, nr 2, s. 102-105Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Nowadays, gathering and synthesising evidence, i.e. conducting systematic reviews, is considered an important part of any health service research endeavour. Reviewing the literature, however suggest that it is not yet common that PhD students/doctoral candidates publish systematic reviews or even include a high quality review of the literature as a part of their PhD programme or candidature. Implying that systematic reviewing skills might not be acquired by going through an education on a postgraduate level. Additionally, scholars debating systematic reviews 'to be or not to be' as a part of research training seem to be sparse, especially within the field of nursing. In this issue for debate, we would like to propose that the absence of systematic reviews' in this context might severely hamper the 'up and coming' researchers as well as the research conducted. We envisage that this lack can have a negative impact on international nursing practice, and therefore propose that systematic reviews should be considered, whenever appropriate, as a mandatory part of any PhD programme or candidature. We believe that abilities in systematic reviewing will be a sought after research skills in the near future. Including systematic reviews would promote i) refined, well-grounded adequate research questions, ii) PhDs with broad and elevated methodological skills, iii) an increased level of evidence based nursing praxis. However, to make this a reality, supervisors, PhD students, and candidates would need to understand the value of this kind of research activity. Finally, lobbying University faculty boards and grant providers that are not inclined to view literature reviews as 'proper' research or as an important part of health service research, needs to be put on the agenda. (C) 2014 Elsevier Ltd. All rights reserved.

  • 20.
    Olsson, Cecilia
    et al.
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Sandin-Bojö, Ann-Kristin
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Bjuresäter, Kaisa
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Larsson, Maria
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Affected sexuality, body image and health related quality of life in patients treated for hematologic malignancies - a one year follow-up2015Ingår i: European Journal of Cancer, ISSN 0959-8049, E-ISSN 1879-0852, Vol. 51, s. S252-Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: Longitudinal studies examining sexuality, body image and health-related quality of life (HRQoL) in middle-aged and elderly patients treated with chemotherapy or chemoimmunotherapy for hematologic malignancies are lacking. The aim of this study was to describe and explore changes in sexuality, body image and HRQoL in patients treated

    for hematologic malignancies, from baseline until twelve months after treatment.

    Material and Methods: Patients above 45 years treated for Diffuse large B-cell Lymphoma (DLBCL), Chronic Lymphocytic Leukemia (CLL) or Acute Myeloid Leukemia (AML). Data were collected at baseline (n = 32), one (n = 25), six (n = 20) and 12 months (n = 19) after treatment by means of three instruments: The Sexual Adjustment Questionnaire (SAQ), The

    Body Image Scale (BIS) and The European Organization for Research and Treatment of Cancer Quality of Life questionnaires (EORTC QLQ-C30, version 3). Descriptive- and non-parametric statistics were used.

    Results: One month after treatment scores were lowered regarding sexual interest (P = 0.005), sexual function (P = 0.031), sexual satisfaction (P = 0.016, P = 0.004) and sexual relationship. After six months the patient reported scores had returned almost entirely to baseline scores, except for sexual relationship. At 12 months, sexual relationship was still negatively affected. Body image was reported to be affected in a low extent during

    the study period. After six and 12 months, body image was reported to not be affected at all by 50% and 53%, respectively. However, women reported body-image to be more affected than men at one (P = 0.01) and 12 months (p = 0.021). Regarding HRQoL, patients reported gradually statistically significant improved scores during the study period.

    Conclusion: In this study, sexuality, body image and HRQoL became negatively affected in patients with hematologic malignancies 45 years and older during treatment. Improvements were gradually seen after treatment, but the scores regarding sexual relationship were still affected after one year. Although sexual interest was reported to be low this finding highlights the need of support to these patients regarding sexuality during follow-up care. Furthermore, body image was more affected in women than in men indicating that interventions should be adjusted for sex. This was a small study and future studies with larger sample are needed.

  • 21.
    Olsson, Cecilia
    et al.
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper.
    Sandin-Bojö, Ann-Kristin
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper.
    Bjuresäter, Kaisa
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper.
    Larsson, Maria
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper.
    Affected Sexuality, Body Image and Health Related Quality of Life in Patients Treated for Hematologic Malignancies: A Longitudinal StudyManuskript (preprint) (Övrigt vetenskapligt)
    Abstract [en]

    Background:  Longitudinal studies exploring sexuality, body image and health-related quality of life (HRQoL) are lacking in older patients treated with chemo- or chemoimmunotherapy for hematologic malignancies.

    Objective: The aim was to describe and explore changes in sexuality, body image and HRQoL in patients treated for hematologic malignancies, from baseline until six months after treatment.

    Methods: Twenty patients above 45 years treated for DLBCL, CLL or AML participated. Data were collected at baseline, one- and six months after treatment by means of three instruments: SAQ-S, BIS and EORTC QLQ-C30.

  • 22.
    Olsson, Cecilia
    et al.
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Sandin-Bojö, Ann-Kristin
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Bjuresäter, Kaisa
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Larsson, Maria
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Affected sexuality in patients treated for malignant blood diseases: during and after treatment.2013Ingår i: Complex interventions research in Nursing: patient involvement and use of Mixed methods / [ed] Richards, David, 2013Konferensbidrag (Övrigt vetenskapligt)
  • 23.
    Olsson, Cecilia
    et al.
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Sandin-Bojö, Ann-Kristin
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Bjuresäter, Kaisa
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Larsson, Maria
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Changes in Sexuality, Body Image and Health Related Quality of Life in Patients Treated for Hematologic Malignancies: A Longitudinal Study2016Ingår i: Sexuality and disability, ISSN 0146-1044, E-ISSN 1573-6717, Vol. 34, nr 4, s. 367-388Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Longitudinal studies exploring sexuality, body image and health-related quality of life (HRQoL) are lacking in patients treated with chemo- or chemoimmuno-therapy for hematologic malignancies. The aim was to describe and explore changes in sexuality, body image and HRQoL in patients treated for hematologic malignancies, from baseline until 6 months after treatment. Twenty patients above 45 years (median age 62) treated for DLBCL, CLL or AML participated. Data were collected at baseline, 1- and 6-months after treatment by means of three instruments: SAQ-S, BIS and EORTC QLQ-C30. The results showed that patients' sexuality was negatively affected 1 month after treatment, but after 6 months the patient reported scores had returned almost entirely to baseline scores. Body image was slight negatively affected after 1 month and after 6 months, 50 % reported that body image was not affected at all. Regarding HRQoL, patients reported gradually improved scores during the study period. Regression analysis showed that changes in sexuality and body image seemed to influence changes in HRQoL. This study has shown changes in sexuality, body image and HRQoL over time in patients above age 45 treated for hematologic malignancies. One month after treatment all three areas becomes negatively affected, and thereafter the patients' scores recovered to a great extent regarding these issues within 6 months. Sexuality and body image seem to be important aspects of HRQoL for these patients and need to be integrated in the cancer rehabilitation during and after treatment.

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  • 24.
    Olsson, Cecilia
    et al.
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper.
    Sandin-Bojö, Ann-Kristin
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper.
    Bjuresäter, Kaisa
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper.
    Larsson, Maria
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper.
    Patients Treated for Hematologic Malignancies: Affected Sexuality and Health Related Quality of Life2015Ingår i: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 38, nr 2, s. 99-110Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: Sexuality in relation to Health- Related Quality of Life (HRQoL) is mostly studied with younger patients as participants who have undergone bone marrow transplantation and concerns fertility and/or sexual function. However, patients with hematologic malignancies such as DLBCL, CLL or AML most often are above their fifties and are treated with chemo- or chemoimmunotherapy.

    Objective: The aim was to examine how sexuality and HRQoL was affected in patients with hematologic malignancies, at baseline compared to one month after chemo- or chemoimmunotherapy.

    Methods:  Data were collected twice with a longitudinal design, using The Sexual Adjustment Questionnaire - S and EORTC QLQ C30.

    Results:  Thirty-two patients responded. The importance of sexuality, sexual desire and sexual ability decreased one month after treatment and distressing symptoms such as feelings of tiredness occurred more frequently, compared to baseline. At the same time improvement in Global health status/QoL as well as affected functions in HRQoL was reported.

    Conclusion:

    The findings are of significance for nurses in cancer care as it highlights that sexuality and HRQoL needs to be considered also in older patients with hematologic malignancies when fertility issues are of less importance. 

    Implication for practice:

    In order to meet these patients’ needs regarding sexuality and HRQoL the care must provide greater consistency and continuity. One way is to organize the care in a patient-centered way where patients continuously meet a nurse guided by the idea of holistic individual nursing care throughout the care trajectory.

  • 25.
    Olsson, Cecilia
    et al.
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Sandin-Bojö, Ann-Kristin
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Bjuresäter, Kaisa
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Larsson, Maria
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
    Påverkad sexualitet, kroppsuppfattning och hälsorelaterad livskvalitet hos patienter behandlade för maligna blodsjukdomar: en longitudinell studie2015Ingår i: Multiprofessionellt samarbete för en jämlik vård, 2015Konferensbidrag (Refereegranskat)
    Abstract [sv]

    Bakgrund

    Longitudinella studier som undersöker sexualitet, kroppsuppfattning och hälsorelaterad livskvalitet saknas för medelålders och äldre patienter som behandlats med kemoterapi eller kemoimmunoterapi för maligna blodsjukdomar.

    Syfte

    Syftet var att beskriva och undersöka förändringar i sexualitet, kroppsuppfattning och hälsorelaterad livskvalitet hos patienter behandlade för maligna blodsjukdomar, från baseline till sex månader efter behandlingen.

    Metod

    Tjugo patienter 45 år och äldre som behandlats för DLBCL, KLL eller AML deltog. Data samlades in vid baseline, en - och sex månader efter behandling med hjälp av tre instrument; SAQ-S, BIS och EORTC QLQ-C30. Deskriptiv- och icke-parametrisk statistik.

    Resultat

    En månad efter behandlingen var patienternas sexualitet påverkad avseende intresse (P=.005), funktion (P=.031), tillfredsställese (P=.016, P=.004) och relation. Samtidigt rapporterade patienterna förbättrad hälsorelaterade livskvalitet jämfört med baseline och att kroppsuppfattningen var påverkad i liten grad. Efter sex månader rapporterade patienterna förbättringar inom samtliga områden, med undantag för sexuell relation. Kroppsuppfattning var i liten grad påverkad efter en månad och efter sex månader rapporterade 50 % av patienterna att kroppsuppfattning inte alls var påverkad. Beträffande HRQoL, rapporterade patienterna successivt förbättrade värden under studieperioden (statistiskt signifikant).

    Slutsats och implikation för omvårdnad

    Patienter 45 år och äldre som behandlats för maligna blodsjukdomar rapporterade problem avseende sexualitet, kroppsuppfattning och hälsorelaterad livskvalitet under och efter behandling, med rapporterade förbättringar inom samtliga områden sex månader efter behandling. Eftersom intresse för sexualitet visade sig vara lågt för flertalet av patienterna bör stödet anpassas individuellt till patients behov. Patientcentrerad vård föreslås där patienterna kontinuerligt träffar en sjuksköterska som ger holistisk omvårdnad.

  • 26.
    Ringnér, Anders
    et al.
    Umeå University, Umeå University Hospital.
    Björk, M.c d
    Jönköping University, University of Skövde.
    Olsson, Cecilia
    Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper.
    Graneheim, Ulla Hällgren
    Umeå University, University West.
    Person-centred information to parents in paediatric oncology (the PIFBO study): A study protocol of an ongoing RCT2015Ingår i: BMC Nursing, ISSN 1472-6955, E-ISSN 1472-6955, Vol. 14, nr 69, s. 1-6Artikel i tidskrift (Refereegranskat)
    Abstract [en]

    Background: Parents of children with cancer experience a demanding situation and often suffer from psychological problems such as stress. Trying to coping with the complex body of information about their child’s disease is one factor that contributes to this stress. The aim of this study is to evaluate an intervention for person-centred information to parents of children with cancer that consists of four sessions with children’s nurses trained in the intervention method. Methods/Design: This is a multi-centre RCT with two parallel arms and a 1:1 allocation ratio. The primary outcome is illness-related parental stress. Secondary outcomes are post-traumatic stress symptoms, anxiety, depression, satisfaction with information, expected and received knowledge, and experiences with health care providers. A process evaluation is performed to describe experiences and contextual factors. Data are collected using web questionnaires or paper forms according to the parents’ preference, audio recording of the intervention sessions, and qualitative interviews with parents and the intervention nurses. Discussion: Few studies have evaluated information interventions for parents of children with cancer using large multi-centre RCTs. This intervention is designed to be performed by regular staff children’s nurses, which will facilitate implementation if the intervention proves to be effective. Trial registration: Clinical trials NCT02332226(December 11, 2014).

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