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  • 1.
    Eklund, Anna Josse
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Jossebo, Marie
    Karlskoga lasarett, Örebro läns landsting.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences. Karlskoga Hospital, Sweden.
    Wilde-Larsson, Bodil
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences. Norway.
    Petzäll, Kerstin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences. Norway.
    Swedish nurses’ perceptions of influencers on patient advocacy – a phenomenographic study2014In: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 21, no 6, p. 673-683Article in journal (Refereed)
    Abstract [en]

    Background: A limited number of studies have shown that patient advocacy can be influenced by both facilitators and barriers which can encourage and discourage nurses to act as patient advocates. Objective: This study’s aim was to describe Swedish nurses’ perceptions of influencers on patient advocacy.

    Research design and context: Interviews with 18 registered nurses from different Swedish clinical contexts were analysed using the phenomenographic method.

    Ethical considerations: Ethical revisions were made in accordance with national legislation and guidelines by committees for research ethics at Karlstad University. Findings: Three levels of hierarchically related influencers on patient advocacy were found in the descriptive categories. The fundamental influencer, the nurse’s character traits, was described in the perceptions that advocacy is influenced by nurse’s having a moral compass, having control over the care situation, being protective and feeling secure as a nurse. The second most vital influencer, the nurse’s bond with the patient, was expressed in the perceptions of knowing the patient and feeling empathy for the patient. The third level of influencers, the organisational conditions, was described in the perceptions that the organisational structures and organisational culture influence patient advocacy.

    Discussion: The results correspond with findings from earlier research but add an understanding that influencers on patient advocacy exist at three hierarchically related levels. Conclusion: The nurse’s character traits are the fundamental influencer to patient advocacy, but in order to be comfortable and secure when advocating for patients, nurses also need to be familiar with both the patient and the situation. A supposition could be that all influencers interact, which needs to be further addressed in future studies.

  • 2.
    Eklund, Anna Josse
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Petzäll, Kerstin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Räty, Lena
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Wilde-Larsson, Bodil
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Sjuksköterskans advokatskap för patienter inom kommunal vård2011Conference paper (Other (popular science, discussion, etc.))
  • 3.
    Eklund, Anna Josse
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Petzäll, Kerstin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Swedish registered nurses attitudes towards patient advocacy and individual influencing factors2011Conference paper (Refereed)
    Abstract [en]

    INTRODUCTIONPatient advocacy can be considered as a vital part of the registered nurses (RNs) profession. The RN advocates for the patients when she/he speaks or acts on behalf of the patients, support and protects the patients when they themselves cannot. According to Bu and Jezewski´s1 theory (2007) patient advocacy consists of three core attributes; safeguarding the patients autonomy, acting on behalf of patients and championing social justice in provision of health care. Factors on an individual and an organisational level can influence patient advocacy. Individual factors described in the literature are the RNs nursing competence, educational level and her/ his personality.AIMSThe aims of the study was to describe registered nurses (RNs) attitudes toward patient advocacy and to explore individual factors influencing attitudes toward patient advocacy in the context of community care of older patients.METHODSThe cross sectional study was carried out in 16 communities in a region of Sweden, between March and September in 2009. Mailed questionnaires were used to collect data and a total of 226 RNs participated in the study (rr=52 %). Besides demographics, the questionnaire consisted of the instruments the APAS2 (to measure RNs attitudes towards patient advocacy), the AssCe3 (to measure the RNs self assessed nursing competence) and the SIMP4 (to measure personality traits). Descriptive statistics and multiple regression analysis were used to analyze data.RESULTSThe RNs showed positive attitudes towards patient advocacy. Nursing competence proved to be an influencing factor to attitudes towards patient in the regression model. The model explained 18.4 % of the variance in attitudes toward patient advocacy.CONCLUSIONThe results from this study can contribute to the available knowledge about patient advocacy since new insights about influencing factors have been added. The vital results from this study are that RNs in a community context showed a positive attitude towards patient advocacy and that attitudes towards patient advocacy were influenced by the RNs nursing competence but not by their nursing experience, educational level or personality traits. The results can contribute to the knowledge about patient advocacy but further research regarding patient advocacy and influencing factors is needed.REFERENCES1. Bu X. & Jezewski MA. Developing a mid-range theory of patient advocacy through concept analysis. J Adv Nur 2007; 57(1): 101-110.2. Bu X. & Wu Y.B. Development and Psychometric Evaluation of the Instrument: Attitude Toward Patient Advocacy. Res Nurs Health 2008; 31(1): 63- 75.3. Löfmark A. & Thorell-Ekstrand I. An assessment form for clinical nursing education: a Delphi study. J Adv Nurs 2004; 48(3): 291-298.4. Woods S.A. & Hampson S.E. Measuring the Big Five with Single Items using a Bipolar Response Scale. Eur J Pers. 2005; 19: 373-390.

  • 4.
    Eklund, Anna Josse
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Petzäll, Kerstin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Wilde-Larsson, Bodil
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Cross-cultural validation and psychometric testing of the Swedish version of the microsocial section of the Attitudes toward Patient Advocacy Scale2012In: The International Journal of Person Centered Medicine, ISSN 2043-7730, E-ISSN 2043-7749, Vol. 2, no 3, p. 473-481Article in journal (Refereed)
    Abstract [en]

    Rationale, aims and objectives: Patient advocacy can be defined as a process for maintaining and monitoring patients’ rights, values and best interests. To measure attitudes toward patient advocacy, Bu and Wu (2008) developed the Attitudes toward Patient Advocacy Scale (APAS), which required further testing and refining in different contexts. This two-phased study aimed to: (1) translate and cross-culturally validate the APAS section for microsocial patient advocacy (AMIA) in accordance with the Swedish context and (2) test the instrument’s psychometric properties in the community care of older patients.

    Methods and results: The first phase consisted of back-translation and cultural validation of the APAS-AMIA in accordance with the Swedish context and resulted in a 39-item Swedish version of the APAS-AMIA. In the second phase, data were collected using the 39-item APAS-AMIA in 2009 from a sample of 230 registered nurses and nurse managers covering 16 communities. Subsequently, psychometric testing was conducted with exploratory factor analysis and reliability analysis in a final sample of 201 RNs. The exploratory factor analysis revealed a 4-factor structure, explaining 52.1% of the total scale variance in a 33-item instrument called the APAS-AMIA/SE. The Cronbach’s alpha for the APAS-AMIA/SE was 0.92 and varied between 0.82 and 0.88 for the factors.

    Conclusion: When the APAS-AMIA/SE semantic and conceptual equivalence to the APAS-AMIA, its distinct factor structure, internal consistency values and theoretical attachment are all added together, the conclusion is that the APAS-AMIA/SE is an acceptably reliable and valid instrument.

  • 5.
    Eklund, Anna Josse
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Petzäll, Kerstin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Wilde-Larsson, Bodil
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Swedish registered nurses’ and nurse managers’ attitudes towards patient advocacy in community care of older patients2013In: Journal of Nursing Management, ISSN 0966-0429, E-ISSN 1365-2834, Vol. 21, no 5, p. 753-761Article in journal (Refereed)
    Abstract [en]

    Aim To describe and compare registered nurses’ (RNs) and nurse managers’ (NMs) attitudes towards patient advocacy in the community care of older patients.

    Background RNs may act as patients’ advocates in the care of older patients. NMs should support patient advocacy in order to make the best care available to patients.

    Method A modified Attitudes towards Patient Advocacy Scale was used to collect data from 207 RNs and 23 NMs in the Swedish community care of older patients. The response rate was 52%. Descriptive and inferential statistics were used.

    Results Both RNs and NMs showed positive attitudes towards patient advocacy. They were more positive towards patient advocacy for patients unable to help themselves than for competent patients.

    Conclusions This study showed that RNs and NMs did not differ in their attitudes towards patient advocacy. This result is consistent with the idea of giving the neediest and vulnerable patients greater care.

    Implications for Nursing Management It is important for NMs to clarify their own and RNs attitudes towards patient advocacy as disparities may affect cooperation between the groups. Any effects on cooperation may, by extension, affect the quality of care.

  • 6.
    Eklund, Anna Josse
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Wilde-Larsson, Bodil
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences. Norway.
    Petzäll, Kerstin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences. Norway.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences. City Council Värmland.
    Individual and organisational factors influencing registered nurses' attitudes towards patient advocacy in Swedish community health care of elders2014In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 28, no 3, p. 486-495Article in journal (Refereed)
    Abstract [en]

    Aim: The aim of this study was to describe and explore individual and organisational factors potentially influencing registered nurses' (RNs) attitudes towards patient advocacy. Methods and Sample: In a quantitative cross-sectional study, data were collected from 226 RNs in community health care of elders. A questionnaire was used to measure a number of factors including attitudes towards patient advocacy, nursing competence, personality traits, individual preferences regarding the quality of health care and working climate. A multiple regression analysis was performed. Results: The results showed that individual factors of nursing competence and individual preferences of the quality of health care, as well as organisational factors of the working climate, explained 26.2% of the variance in the RNs' attitudes towards patient advocacy. Conclusions: Although the mentioned individual factors may be intertwined, the conclusion is that both individual and organisational factors influenced RNs' attitudes towards patient advocacy. The results do not verify that nursing experience, workplace experience, educational level or personality traits influence the RNs' attitudes towards patient advocacy. The proportion of explained variance indicates that additional factors also influence attitudes towards patient advocacy, and more research is needed to shed further light on these factors.

  • 7.
    Grunewald, Charlotta
    et al.
    Karolinska Institutet.
    Håkansson, Stellan
    Umeå universitets sjukhus.
    Höglund, Ulf
    Uppsala universitet.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Wiklund, Ingela
    Karolinska Institutet.
    Svensk förlossningsvård säkras i ett rikstäckande projekt2012In: Läkartidningen, ISSN 0023-7205, E-ISSN 1652-7518, Vol. 109, no 19, p. 956-959Article in journal (Refereed)
  • 8.
    Hildingsson, Ingegerd
    et al.
    Mittuniversitetet.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    What Is, Could Indeed Be Better: Swedish Womens Perceptions of Early Postnatal Care2011In: Midwifery, ISSN 0266-6138, E-ISSN 1532-3099, Vol. 27, no 5, p. 737-744Article in journal (Refereed)
    Abstract [en]

    Background: Studies have shown that women are more likely to be satisfied with intrapartum rather than postpartum care. The structure and organization of care seems to be a barrier to good quality of postpartum treatment.Objective: The aim of this study was to explore the perceived reality and the subjective importance of early postnatal care and to study womens satisfaction with different models of early postnatal care and the factors that are most strongly associated with being very satisfied with the postnatal care received.Method: A regional survey was conducted with 1240 women recruited in mid-pregnancy and followed up two months after childbirth.Results: A statistically significant difference existed between the subjective importance (SI) and the perceived reality (PR) for all studied variables, with a greater SI than PR for all statements. The length of postnatal stay and the content of care were related to satisfaction, while the model of postnatal care was not. The most important variables for being very satisfied with postnatal care were that the baby got the best possible check-ups and medical care, and that the woman received sufficient support from staff.Conclusion: Further studies are needed to assess the best model of postnatal care that gives the best opportunities to provide satisfactory care for women and their families.

  • 9.
    Holter, Herborg
    et al.
    Fertilitetscentrum, Sahlgrenska.
    Gejervall, Ann-Louise
    Fertilitetscentrum, Sahlgrenska.
    Borg, Kia
    Fertilitetscentrum, Sahlgrenska.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Wikland, Matts
    Fertilitetscentrum, Sahlgrenska.
    Wilde-Larsson, Bodil
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Bergh, Christina
    Fertilitetscentrum, Sahlgrenska.
    In vitro fertilization health care professionals generally underestimate patients’ satisfaction with quality of care2017In: Acta Obstetricia et Gynecologica Scandinavica, ISSN 0001-6349, E-ISSN 1600-0412, Vol. 96, no 3, p. 302-312Article in journal (Refereed)
    Abstract [en]

    INTRODUCTION: Previous studies have mainly compared professionals' and patient's ratings of the importance of different care aspects, finding poor agreement between the groups concerning patient-centered quality of care. There is still little known about the professionals' knowledge of how patients' experience the quality of care they receive during in vitro fertilization (IVF) treatments. The aim of this study was to investigate how IVF health care professionals estimate patients' experience of patient-centered quality of care and if certain factors influenced the IVF professionals' perceptions and IVF patients' experience of quality of care.MATERIAL AND METHODS: All 16 IVF public and private clinics in Sweden participated in this cross sectional study. A total of 268 IVF health care professionals and 3298 patients (women and men) undergoing IVF treatment between January and May 2015 participated by answering the validated questionnaire "Quality from the patient's perspective of in vitro fertilization treatment" (QPP-IVF).RESULTS: Healthcare professionals significantly underestimated patients' satisfaction with the patient-centered quality of care they received in all aspects measured. Both patients and professionals rated the most deficient factors to be 'responsibility/continuity', 'participation' and 'availability'. Healthcare professionals and patients belonging to private clinics evaluated patient-centered care as significantly better than professionals and patients at public clinics in almost all aspects measured.CONCLUSION: The results of this study will increase the professionals understanding of the patients' experiences during IVF treatment and provide additional knowledge when identifying areas to prioritize in order to improve quality of care.

  • 10.
    Holter, Herborg
    et al.
    Clin Sci Sahlgrenska Acad, Obstet & Gynaecol, Gothenburg, Sweden..
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Gejervall, A. L.
    Clin Sci Sahlgrenska Acad, Obstet & Gynaecol, Gothenburg, Sweden..
    Wikland, M.
    Clin Sci Sahlgrenska Acad, Obstet & Gynaecol, Gothenburg, Sweden..
    Wilde-Larsson, Bodil
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Bergh, C.
    Clin Sci Sahlgrenska Acad, Obstet & Gynaecol, Gothenburg, Sweden..
    Quality of care in an IVF programme: differences and similarities between genders2014In: Human Reproduction, ISSN 0268-1161, E-ISSN 1460-2350, Vol. 29, p. 81-81Article in journal (Refereed)
  • 11.
    Holter, Herborg
    et al.
    Sahlgrenska Akademin, Göteborgs universitet.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Gejervall, Ann-Louise
    Sahlgrenska academy Gothenburg University.
    Wikland, Matts
    Fertil Ctr Scandinavia.
    Wilde-Larsson, Bodil
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Bergh, Christina
    Sahlgrenska Akademin. Göteborgs universitet.
    Patient-centred quality of care in an IVF programme evaluted by men and women2014In: Human Reproduction, ISSN 0268-1161, E-ISSN 1460-2350, Vol. 29, no 12, p. 2695-2703Article in journal (Refereed)
  • 12.
    Holter, Herborg
    et al.
    Sahlgrenska University hospital, Göteborg.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Gejervall, Ann-Louise
    Department of Obstetrics and Gynecology, Institute of Clinical Sciences, Sahlgrenska Academy.
    Wikland, Matts
    Fertility Centre Scandinavia, Gothenburg , Sweden.
    Wilde-Larsson, Bodil
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Bergh, Christina
    Sahlgrenska University hospital, Göteborg.
    Quality of care in an IVF programme from a Patient's Perspective: Development of a validated instrument2014In: Human Reproduction, ISSN 0268-1161, E-ISSN 1460-2350, Vol. 29, no 3, p. 534-547Article in journal (Refereed)
  • 13.
    Kvist, Linda
    et al.
    Lunds universitet.
    Damiati, Nadja
    Lunds universitet.
    Rosenqvist, Johanna
    Lunds universitet.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Measuring the quality of documented care given by Swedish midwives during birth2011In: Midwifery, ISSN 0266-6138, E-ISSN 1532-3099, Midwifery, ISSN 1532-3099, Vol. 27, no 6, p. e188-e194Article in journal (Refereed)
    Abstract [en]

    Objective: The aims of the study were to measure the extent documented Swedish midwifery care for low risk labour and birth followed WHO's recommendations for care in normal birth and to compare midwifery care given to women whos labours were classified as low and high risk.Study design: A retrospective examination of midwifery and medical records, 144 from women with low risk births and 54 from women with high risk births, for aspects of pregnancy, labour and birth using a validated instrument based on WHOs recommendations.Setting: Southern Sweden.Outcome measurements: Care given in accordance with WHOs four categories of practiceand changes in risk group during the birth process.Findings: Care interventions not recommended by WHO, such as routine establishment of anintravenous route, routine amniotomy during the first stage, continuous electronic fetalmonitoring and pharmacological methods of pain relief were widespread in the records.Documented care differed little between the labours of women at low risk and high risk. The midwives at the unit under study did not routinely carry out risk assessment.Key conclusions and implications for practice: The mode of care was one of readiness formedical intervention. The act of carrying out risk assessments at the time of the womansadmission may affect awareness of the level of care offered to birthing women and thus helpto reduce the number and variety of practices not recommended by WHO.Keywords: birth process, high risk birth, instrument low risk birth, midwifery care, WHO

  • 14.
    Olsson, Cecilia
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Athlin, Elsy
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Larsson, Maria
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Sexuality is not a priority when disease and treatment side effects are severe: conceptions of patients with malignant blood diseases2013In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 22, p. 3503-3512Article in journal (Refereed)
    Abstract [en]

    AIMS AND OBJECTIVES:

    To describe how patients with malignant blood diseases conceive the influence of chemo- or chemoimmunotherapy on sexuality, and their need of support related to this issue.

    BACKGROUND:

    Sexuality is often negatively affected in cancer patients with sex-specific diagnoses. For patients with malignant blood diseases, the research is limited with regard to the effect on sexuality. Knowledge about their need for support related to sexuality is also needed as nurses are found to often avoid this area of their responsibility.

  • 15.
    Olsson, Cecilia
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Larsson, Maria
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Affected sexuality, body image and health related quality of life in patients treated for hematologic malignancies - a one year follow-up2015In: European Journal of Cancer, ISSN 0959-8049, E-ISSN 1879-0852, Vol. 51, p. S252-Article in journal (Refereed)
    Abstract [en]

    Background: Longitudinal studies examining sexuality, body image and health-related quality of life (HRQoL) in middle-aged and elderly patients treated with chemotherapy or chemoimmunotherapy for hematologic malignancies are lacking. The aim of this study was to describe and explore changes in sexuality, body image and HRQoL in patients treated

    for hematologic malignancies, from baseline until twelve months after treatment.

    Material and Methods: Patients above 45 years treated for Diffuse large B-cell Lymphoma (DLBCL), Chronic Lymphocytic Leukemia (CLL) or Acute Myeloid Leukemia (AML). Data were collected at baseline (n = 32), one (n = 25), six (n = 20) and 12 months (n = 19) after treatment by means of three instruments: The Sexual Adjustment Questionnaire (SAQ), The

    Body Image Scale (BIS) and The European Organization for Research and Treatment of Cancer Quality of Life questionnaires (EORTC QLQ-C30, version 3). Descriptive- and non-parametric statistics were used.

    Results: One month after treatment scores were lowered regarding sexual interest (P = 0.005), sexual function (P = 0.031), sexual satisfaction (P = 0.016, P = 0.004) and sexual relationship. After six months the patient reported scores had returned almost entirely to baseline scores, except for sexual relationship. At 12 months, sexual relationship was still negatively affected. Body image was reported to be affected in a low extent during

    the study period. After six and 12 months, body image was reported to not be affected at all by 50% and 53%, respectively. However, women reported body-image to be more affected than men at one (P = 0.01) and 12 months (p = 0.021). Regarding HRQoL, patients reported gradually statistically significant improved scores during the study period.

    Conclusion: In this study, sexuality, body image and HRQoL became negatively affected in patients with hematologic malignancies 45 years and older during treatment. Improvements were gradually seen after treatment, but the scores regarding sexual relationship were still affected after one year. Although sexual interest was reported to be low this finding highlights the need of support to these patients regarding sexuality during follow-up care. Furthermore, body image was more affected in women than in men indicating that interventions should be adjusted for sex. This was a small study and future studies with larger sample are needed.

  • 16.
    Olsson, Cecilia
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Larsson, Maria
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Affected Sexuality, Body Image and Health Related Quality of Life in Patients Treated for Hematologic Malignancies: A Longitudinal StudyManuscript (preprint) (Other academic)
    Abstract [en]

    Background:  Longitudinal studies exploring sexuality, body image and health-related quality of life (HRQoL) are lacking in older patients treated with chemo- or chemoimmunotherapy for hematologic malignancies.

    Objective: The aim was to describe and explore changes in sexuality, body image and HRQoL in patients treated for hematologic malignancies, from baseline until six months after treatment.

    Methods: Twenty patients above 45 years treated for DLBCL, CLL or AML participated. Data were collected at baseline, one- and six months after treatment by means of three instruments: SAQ-S, BIS and EORTC QLQ-C30.

  • 17.
    Olsson, Cecilia
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Larsson, Maria
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Affected sexuality in patients treated for malignant blood diseases: during and after treatment.2013In: Complex interventions research in Nursing: patient involvement and use of Mixed methods / [ed] Richards, David, 2013Conference paper (Other academic)
  • 18.
    Olsson, Cecilia
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Larsson, Maria
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Changes in Sexuality, Body Image and Health Related Quality of Life in Patients Treated for Hematologic Malignancies: A Longitudinal Study2016In: Sexuality and disability, ISSN 0146-1044, E-ISSN 1573-6717, Vol. 34, no 4, p. 367-388Article in journal (Refereed)
    Abstract [en]

    Longitudinal studies exploring sexuality, body image and health-related quality of life (HRQoL) are lacking in patients treated with chemo- or chemoimmuno-therapy for hematologic malignancies. The aim was to describe and explore changes in sexuality, body image and HRQoL in patients treated for hematologic malignancies, from baseline until 6 months after treatment. Twenty patients above 45 years (median age 62) treated for DLBCL, CLL or AML participated. Data were collected at baseline, 1- and 6-months after treatment by means of three instruments: SAQ-S, BIS and EORTC QLQ-C30. The results showed that patients' sexuality was negatively affected 1 month after treatment, but after 6 months the patient reported scores had returned almost entirely to baseline scores. Body image was slight negatively affected after 1 month and after 6 months, 50 % reported that body image was not affected at all. Regarding HRQoL, patients reported gradually improved scores during the study period. Regression analysis showed that changes in sexuality and body image seemed to influence changes in HRQoL. This study has shown changes in sexuality, body image and HRQoL over time in patients above age 45 treated for hematologic malignancies. One month after treatment all three areas becomes negatively affected, and thereafter the patients' scores recovered to a great extent regarding these issues within 6 months. Sexuality and body image seem to be important aspects of HRQoL for these patients and need to be integrated in the cancer rehabilitation during and after treatment.

  • 19.
    Olsson, Cecilia
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Larsson, Maria
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
    Patients Treated for Hematologic Malignancies: Affected Sexuality and Health Related Quality of Life2015In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 38, no 2, p. 99-110Article in journal (Refereed)
    Abstract [en]

    Background: Sexuality in relation to Health- Related Quality of Life (HRQoL) is mostly studied with younger patients as participants who have undergone bone marrow transplantation and concerns fertility and/or sexual function. However, patients with hematologic malignancies such as DLBCL, CLL or AML most often are above their fifties and are treated with chemo- or chemoimmunotherapy.

    Objective: The aim was to examine how sexuality and HRQoL was affected in patients with hematologic malignancies, at baseline compared to one month after chemo- or chemoimmunotherapy.

    Methods:  Data were collected twice with a longitudinal design, using The Sexual Adjustment Questionnaire - S and EORTC QLQ C30.

    Results:  Thirty-two patients responded. The importance of sexuality, sexual desire and sexual ability decreased one month after treatment and distressing symptoms such as feelings of tiredness occurred more frequently, compared to baseline. At the same time improvement in Global health status/QoL as well as affected functions in HRQoL was reported.

    Conclusion:

    The findings are of significance for nurses in cancer care as it highlights that sexuality and HRQoL needs to be considered also in older patients with hematologic malignancies when fertility issues are of less importance. 

    Implication for practice:

    In order to meet these patients’ needs regarding sexuality and HRQoL the care must provide greater consistency and continuity. One way is to organize the care in a patient-centered way where patients continuously meet a nurse guided by the idea of holistic individual nursing care throughout the care trajectory.

  • 20.
    Olsson, Cecilia
    et al.
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Bjuresäter, Kaisa
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Larsson, Maria
    Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).
    Påverkad sexualitet, kroppsuppfattning och hälsorelaterad livskvalitet hos patienter behandlade för maligna blodsjukdomar: en longitudinell studie2015In: Multiprofessionellt samarbete för en jämlik vård, 2015Conference paper (Refereed)
    Abstract [sv]

    Bakgrund

    Longitudinella studier som undersöker sexualitet, kroppsuppfattning och hälsorelaterad livskvalitet saknas för medelålders och äldre patienter som behandlats med kemoterapi eller kemoimmunoterapi för maligna blodsjukdomar.

    Syfte

    Syftet var att beskriva och undersöka förändringar i sexualitet, kroppsuppfattning och hälsorelaterad livskvalitet hos patienter behandlade för maligna blodsjukdomar, från baseline till sex månader efter behandlingen.

    Metod

    Tjugo patienter 45 år och äldre som behandlats för DLBCL, KLL eller AML deltog. Data samlades in vid baseline, en - och sex månader efter behandling med hjälp av tre instrument; SAQ-S, BIS och EORTC QLQ-C30. Deskriptiv- och icke-parametrisk statistik.

    Resultat

    En månad efter behandlingen var patienternas sexualitet påverkad avseende intresse (P=.005), funktion (P=.031), tillfredsställese (P=.016, P=.004) och relation. Samtidigt rapporterade patienterna förbättrad hälsorelaterade livskvalitet jämfört med baseline och att kroppsuppfattningen var påverkad i liten grad. Efter sex månader rapporterade patienterna förbättringar inom samtliga områden, med undantag för sexuell relation. Kroppsuppfattning var i liten grad påverkad efter en månad och efter sex månader rapporterade 50 % av patienterna att kroppsuppfattning inte alls var påverkad. Beträffande HRQoL, rapporterade patienterna successivt förbättrade värden under studieperioden (statistiskt signifikant).

    Slutsats och implikation för omvårdnad

    Patienter 45 år och äldre som behandlats för maligna blodsjukdomar rapporterade problem avseende sexualitet, kroppsuppfattning och hälsorelaterad livskvalitet under och efter behandling, med rapporterade förbättringar inom samtliga områden sex månader efter behandling. Eftersom intresse för sexualitet visade sig vara lågt för flertalet av patienterna bör stödet anpassas individuellt till patients behov. Patientcentrerad vård föreslås där patienterna kontinuerligt träffar en sjuksköterska som ger holistisk omvårdnad.

  • 21.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Barnmorskor i skuggan av Skugge2004In: Jordemodern, nr 10Article in journal (Other (popular science, discussion, etc.))
  • 22.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Barnmorskors dokumenterade vård före och efter ett kvalitetsutvecklingsprogram i relation till WHO:s rekommendationer2006Conference paper (Other (popular science, discussion, etc.))
  • 23.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Barnmorskors vård vid normal förlossning2006Conference paper (Other (popular science, discussion, etc.))
  • 24.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Dokumenterad vård i relation till WHO:s rekommendationer för vård vid normal förlossning2003Conference paper (Other (popular science, discussion, etc.))
  • 25.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Dokumenterad vård och kvinnors uppfattning av vård2006In: Jordemodern, nr 10Article in journal (Other (popular science, discussion, etc.))
  • 26.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Evidensbaserad vård vid normal förlossning2004Conference paper (Other (popular science, discussion, etc.))
  • 27.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Forum Värmland 20082008Conference paper (Other (popular science, discussion, etc.))
  • 28.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Födandet/BB: Moderator2008Other (Other (popular science, discussion, etc.))
  • 29.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Födelseomsorg ved en födeavdelning i Sverige sett i sammenheng med WHO´s anbefalningar, et program for å endre praksis og kvinners opplevelse av omsorgen: Tromsö, Norge2008Conference paper (Other (popular science, discussion, etc.))
  • 30.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Förlossning i teori o praktik2007Conference paper (Other (popular science, discussion, etc.))
  • 31.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Förlossning i teori och praktik: Väster Norrlands barnmorskeförening2008Conference paper (Other (popular science, discussion, etc.))
  • 32.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Förlossningsvård i Kambodja i relation till Bologna Score: En tvärsnittstudie2011Conference paper (Other (popular science, discussion, etc.))
  • 33.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Global hälsa: Är WHO:s rekommendationer möjliga att använda för svenska förhållanden?2007Conference paper (Other (popular science, discussion, etc.))
  • 34.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Implementering av evidensbaserad vård vid förlossning2006Conference paper (Other (popular science, discussion, etc.))
  • 35.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Inget är omöjligt2004In: Jordemodern, 7-8Article in journal (Other (popular science, discussion, etc.))
  • 36.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Midwives guarding the future: Vård vid förlossning i relation till WHO:s rekommendationer2007Conference paper (Other (popular science, discussion, etc.))
    Abstract [en]

    Enligt Världshälsoorganisationen (WHO) är barnmorskan den mest lämpade personen att bistå kvinnan och hennes medföljare vid förlossningen. Barnmorskors ansvarsområde är den normala förlossningen samt medverkan vid de övriga undersökningar, behandlingar och förlossningar som förekommer inom obstetrisk och gynekologisk vård. Enligt internationella barnmorskeförbundet skall barnmorskor främja den normala förlossningen. En expertgrupp inom WHO har granskat tillgängliga forskningsresultat angående de rutiner som finns vid normal förlossning och formulerat rekommendationer i fyra olika kategorier: (A) Praxis som har visat sig bra och bör uppmuntras, (B) Praxis som är klart skadlig eller ineffektiv och som bör tas bort, (C) Praxis för vilken det saknas evidens för klara rekommendationer och som därför bör användas med försiktighet till dess ytterligare forskning föreligger, och (D) Praxis som ofta används felaktigt. Målet med förlossningsvården är en frisk mor och ett friskt barn samt en för kvinnan positiv upplevelse av förlossningen. Dessa mål skall eftersträvas med minsta möjliga ingrepp i förlossningens förlopp men med bibehållen säkerhet för mor och barn. Dessa mål överensstämmer väl med WHO:s rekommendationer och den modell som benämns förlossningen som en livshändelse i kontrast till en medicinsk händelse.

    I de industrialiserade länderna sker merparten av förlossningar på sjukhus, där barnmorskor i samarbete med läkare handlägger såväl lågrisk- som högriskförlossningar. Att merparten av förlossningarna sker på sjukhus gör det lätt att hantera alla graviditeter och förlossningar med samma åtgärder som komplicerade graviditeter och förlossningar kräver. Åtgärderna kan innebära att föräldrarnas behov och önskemål får stå tillbaka för tekniken. Nyttan av dessa åtgärder vid förväntad normal förlossning har ifrågasatts. Det kan vara en nackdel att hantera en normal fysiologisk process som en risk eller sjukdom som skall behandlas och att vården kanske gör mer skada än nytta. Åtgärder som utförs i onödan innebär också att vården inte är kostnadseffektiv. Andra studier visar att det finns kvinnor som ifrågasätter mängden av åtgärder på sjukhusen och därför vill föda hemma eller önskar ABC-vård.

    Det övergripande syftet med de studier som kommer att presenteras var att, utifrån ett instrument utvecklat från WHO:s rekommendationer avseende vård vid normal förlossning, kartlägga barnmorskors dokumenterade förlossningsvård före och efter ett kvalitetsutvecklingsprogram samt belysa kvinnors uppfattningar av förlossningsvård. Förlossningsjournaler granskades vid såväl föremätning (n= 212) som eftermätning (n=240). Kvinnors (n=138) uppfattningar insamlades med en enkät.

    Resultatet av föremätningen visar att WHO:s rekommendationer bara delvis följdes. Vården skilde sig i liten utsträckning för kvinnor med låg- respektive högrisk. Förbättringsområden identifierades och ett kvalitetsutvecklingsprogram genomfördes under en tvåårsperiod. Eftermätningen visar att vården förändrades i riktning mot WHO:s rekommendationer, särskilt för de områden där riktlinjer utvecklats samt för kvinnor i lågriskgruppen. Inga statistiskt signifikanta skillnader noterades beträffande antalet spontana förlossningar, antalet mödrar och barn som var lågrisk efter förlossningen, antalet aktiva förlossningar över 12 timmar och antalet förlossningar med utdrivningsskede över 1 timma. Enkätstudien till kvinnorna visar att de i stor utsträckning erhöll vård enligt den praxis som är bra och bör uppmuntras. Kvinnorna uppfattade att den vård som barnmorskorna utförde var av stor betydelse oavsett kategori (A-D). Resultaten visar på betydelsen att barnmorskor tar ansvar för att ge evidensbaserad vård.

    Instrumentet med utgångspunkt från WHO:s rekommendationer kan användas vid kartläggning av förlossningsvård. Barnmorskor bör göra en riskbedömning vid kvinnans ankomst till förlossningen och planera vården tillsammans med kvinnan och anhöriga utifrån denna. Barnmorskors dokumentation behöver förändras för att såväl omfatta medicinsk-tekniska som mellanmänskliga aspekter. Kvinnors tillit till förlossningsvården visar på vikten av att barnmorskor erhåller kontinuerlig fortbildning i evidensbaserad vård avseende normal förlossning. Evidensbaserade nationella riktlinjer för vård vid förlossning behöver utvecklas.

  • 37.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Presentation av instrumentutveckling samt preliminära resultat av granskning av 325 förlossningsjournaler2004Conference paper (Other (popular science, discussion, etc.))
  • 38.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Vet vi om vi utför en evidensbaserad vård? - Om vikten av att utvärdera: Hur får vi en mer sammanhållen vård och blir bättre på att bemöte kvinnans behov? Stockholm 6-7 maj 20032003Conference paper (Other (popular science, discussion, etc.))
  • 39.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Vill vi? Kan vi? Törs vi? Implementering av evidensbaserad vård vid förlossning2004Conference paper (Other (popular science, discussion, etc.))
  • 40.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Vård vid förlossning2007Conference paper (Other (popular science, discussion, etc.))
  • 41.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Vård vid förlossning i relation till WHO:s rekommendationer2006Conference paper (Other (popular science, discussion, etc.))
  • 42.
    Sandin-Bojö, Ann-Kristin
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Where is the fire?2009In: Birth Stories from  the soul: Tales from women, families and childbirth professionals / [ed] Denis Walsh & Sheena Byrom, London, United Kingdom: Quay Books Division , 2009Chapter in book (Other (popular science, discussion, etc.))
  • 43.
    Sandin-Bojö, Ann-Kristin
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Axelsson, O.
    Hall-Lord, ML
    Wilde Larsson, B.
    Barnmorskans ansvarsområde den normala förlossningen- myt eller realitet2004Other (Other (popular science, discussion, etc.))
  • 44.
    Sandin-Bojö, Ann-Kristin
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Axelsson, O.
    Hall-Lord, ML.
    Wilde Larsson, B.
    Normal birth the midwives´area of expertis2004Conference paper (Refereed)
  • 45.
    Sandin-Bojö, Ann-Kristin
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Axelsson, O.
    Hall-Lord, ML.
    Wilde Larsson, B.
    Vård vid förlossning i relation till WHO:s rekommendationer - före och efter intervention2005Conference paper (Refereed)
  • 46.
    Sandin-Bojö, Ann-Kristin
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Axelsson, O.
    Udén, G.
    Hall-Lord, Marie-Louise
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Wilde-Larsson, Bodil
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Midwifery care in a conventional setting- before and after intervention2005Conference paper (Refereed)
  • 47.
    Sandin-Bojö, Ann-Kristin
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Bygdeman, M
    Crang-Svalenius, E
    Rutinmässig ultraljudsundersökning: Rapport 1391998Book (Refereed)
  • 48.
    Sandin-Bojö, Ann-Kristin
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Eråker, B
    Bologna Score: Ett sätt att arbeta med kvalitetsindikatorer2010In: Jordemodern, ISSN 0021-7468, Vol. 123, no 5, p. 26-28Article in journal (Other (popular science, discussion, etc.))
  • 49.
    Sandin-Bojö, Ann-Kristin
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Hall-Lord, Marie-Louise
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Axelsson, O.
    Udèn, G
    Wilde-Larsson, Bodil
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Development of an instrument taht measure quality of midwifery care based on the World Health Organisations Classification of Care in Normal Birth: A Delhpi study2004In: Journal of Clinical Nursing, 13: 75-83Article in journal (Refereed)
  • 50.
    Sandin-Bojö, Ann-Kristin
    et al.
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Hall-Lord, Marie-Louise
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Axelsson, O.
    Udén, G.
    Wilde-Larsson, Bodil
    Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
    Development of an instrument in relation to WHO:s recommendations for care in normal birth2002Conference paper (Refereed)
12 1 - 50 of 76
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