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Burden, Health and Sense of Coherenceamong Relatives of Depressed Inpatients
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences. Department of Nursing, Faculty of Health, Care and Nursing, Gjøvik University College, Gjøvik, Norway.
Department of Nursing, Faculty of Health, Care and Nursing, Gjøvik University College, Gjøvik, Norway.
Department of Nursing, Faculty of Health, Care and Nursing, Gjøvik University College, Gjøvik, Norway.
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.ORCID iD: 0000-0003-3385-3731
2015 (English)In: Open Journal of Nursing, ISSN 2162-5336, E-ISSN 2162-5344, no 5, 163-172 p.Article in journal (Refereed) Published
Abstract [en]

In Europe, there are an increasing number of persons suffering from depression, which also affectsmany relatives. The burden and health when being the relative of an inpatient suffering fromsevere depression has been less examined. The aim of the study was to describe burden, healthand sense of coherence among relatives of inpatients with severe depression. Furthermore, theaim was to investigate relatives’ burden in relation to their health and sense of coherence. Across-sectional design was performed, with a questionnaire consisting of background questionsand three instruments; Burden Assessment Scale, General Health Questionnaire and Sense of Coherencescale. The participants consisted of 68 relatives recruited from a sample of inpatients diagnosedwith depression in the psychiatric specialist health services in one hospital trust in Norway.The Regional Committee for Medical and Health Research Ethics, Norway South East, gaveapproval to the study. The relatives reported burden to a various degree, with some reporting asignificantly greater burden, poorer health and a weaker sense of coherence than others. With regardto subjective burden eight out of ten relatives reported “Worry about future”, and almost sixout of ten were “Upset by change in patient”. Regarding objective burden, more than half the relativesreported having “Less time for friends” and “Reduced leisure time”. In conclusion the relativeswith a high level of burden reported more mental distress, poorer health and weaker senseof coherence than those with lower level of burden. Further research should focus on identificationof factors predicting burden and health of relatives of inpatients with severe depression.

Place, publisher, year, edition, pages
Scientific Research Publishing, 2015. no 5, 163-172 p.
Keyword [en]
Burden, Depression, Health, Inpatients, Relatives
National Category
Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:kau:diva-36061DOI: 10.4236/ojn.2015.53020OAI: oai:DiVA.org:kau-36061DiVA: diva2:813192
Available from: 2015-05-21 Created: 2015-05-21 Last updated: 2016-04-13Bibliographically approved
In thesis
1. Everyday life of relatives of persons suffering from severe depression: Experiences of health, burden, sense of coherence and encounters with psychiatric specialist health services
Open this publication in new window or tab >>Everyday life of relatives of persons suffering from severe depression: Experiences of health, burden, sense of coherence and encounters with psychiatric specialist health services
2015 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Aim: The overall aim of this thesis was to investigate and describe everyday life among relatives of inpatients with severe depression and their encounter with the psychiatric specialist health services (PSHS).

Methods: A descriptive design with a qualitative and quantitative approach was used. Data was collected by means of a questionnaire responded to by 68 relatives and analysed with descriptive statistics (I, III). Individual interviews with 24 relatives were carried out and analysed with phenomenography (II, IV).

Main findings: The everyday life of relatives to persons suffering from severe depression was affected. They reported burden and influence on their own health to a various degree (I). The relatives experienced that they were, “Living on the other person’s terms”. Relatives described ambivalent relationships, as they had to adjust their daily life in attempting to manage the situation (II). When the relatives encountered the PSHS, it may have been a long time of worries and struggles for help. They wanted to be a resource and a participant, and to be confident with the health care (IV). The need for support from the PSHS was greater than what they received. Relatives who reported receiving less information had higher burden scores than the others (III).

Conclusions: Everyday life of relatives of persons suffering from severe depression is demanding. To be acknowledged as a resource in the treatment and care for the person suffering from depression is important. The mental health nurses being present at the wards 24 hours a day, are in a unique position to support the relatives.

Abstract [en]

Depression is one of ten global diseases entailing the greatest loss of life quality and years of life, which also gives consequences for the relatives. The overall aim of this thesis was to investigate and describe everyday life among relatives of inpatients with severe depression and their encounter with the psychiatric specialist health service (PSHS). The relatives experienced objective and subjective burden, and their own health was affected. Everyday life needed to be adjusted in line with the severity of the next-of-kin’s depression. When the relatives encountered the PSHS a long time of worries and struggles had passed from the onset of the depression until the next-of–kin was hospitalized. To be acknowledged as a resource, invited to collaborate and to share their knowledge was of great importance to the relatives. Addtionally, to receive information concerning the treatment and care was crucial. The mental health nurses are in a unique position to support the relatives.

Place, publisher, year, edition, pages
Karlstad: Karlstads universitet, 2015. 73 p.
Series
Karlstad University Studies, ISSN 1403-8099 ; 2015:29
Keyword
burden, encounters, everyday life, health, inpatients, phenomenography, psychiatric specialist health services, relatives, severe depression
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-35936 (URN)978-91-7063-645-5 (ISBN)
Public defence
2015-06-12, Lagerlöfsalen, 1 A 305, Karlstad, 11:00 (Norwegian)
Opponent
Supervisors
Available from: 2015-05-21 Created: 2015-04-30 Last updated: 2015-12-29Bibliographically approved

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