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Parental perception of family functioning in everyday life with a child with ADHD
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences. Department of Nursing, Faculty of Health, Care and Nursing, Gjøvik .
Department of Nursing, Faculty of Health, Care and Nursing, Gjøvik . (Omvårdnad)
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences. Department of Nursing, Faculty of Health, Care and Nursing, Gjøvik .ORCID iD: 0000-0003-3385-3731
2015 (English)In: Scandinavian Journal of Public Health, ISSN 1403-4948, E-ISSN 1651-1905, Vol. 43, no 1, 10-17 p.Article in journal (Refereed) Published
Abstract [en]

Aim: The aim of this study was to describe and investigate family characteristics in relation to support, behaviour of the child, family functioning and sense of coherence from the parents' perspective in families with a child with attention deficit hyperactivity disorder (ADHD). A further aim was to explore predictors of family functioning.

Methods: The study population consisted of 1964 parents of children with ADHD aged 15 years old and younger. In all, 265 parents responded to a questionnaire (response rate 48.2%; 217 mothers and 48 fathers). In addition to questions about the parents, children, family characteristics and support from health services, the questionnaire included the Family Assessment Device (FAD), the Strengths and Difficulties Questionnaire (SDQ), Sense of Coherence (SOC) and Social Cohesion and Support Index (SCS). Data were analysed with descriptive, comparative and standard multiple regression analyses.

Results: Parents with ADHD reported a weaker SOC and poorer FAD in the family than parents without ADHD. Parents with children medicated for ADHD were significantly more satisfied with social support (SCS), rated their children's behaviour as less problematic and reported better family functioning. Parents' age, SOC, SCS, SDQ and support from the community health services explained 46.2% of the variation in FAD.

Conclusions: A strong SOC, social support and support from the community health services were strongly associated with a positive effect on family functioning. Parents with ADHD reported a weaker SOC and poorer family functioning than parents without ADHD. This knowledge may be useful and should be taken into account when planning support for such families.

Place, publisher, year, edition, pages
Sage Publications, 2015. Vol. 43, no 1, 10-17 p.
Keyword [en]
ADHD, children, family, family functioning, parents, support
National Category
Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:kau:diva-31582DOI: 10.1177/1403494814559803ISI: 000347444800003OAI: oai:DiVA.org:kau-31582DiVA: diva2:699290
Note

The article was still in manuscript form when the thesis was defended.

Available from: 2014-02-27 Created: 2014-02-27 Last updated: 2016-04-13Bibliographically approved
In thesis
1. Everyday life in families with a child with ADHD and public health nurses’ conceptions of their role
Open this publication in new window or tab >>Everyday life in families with a child with ADHD and public health nurses’ conceptions of their role
2014 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

ADHD is one of the most common behavioral disorders diagnosed in children. These children have difficulties regarding the regulation of emotions, maintaining attention and impulse control, all of which influence family and social life. The aim of this study was to describe and explore the everyday life of families with a child with ADHD and public health nurses’ role in relation to these families. The parents were contending with- and adapting to the parental role and social network. The family attempted to safeguard a functioning family in managing their everyday life, tuning themselves in on the child’s shifting moods, using strict boundaries and developing special skills. The family fought for acceptance and inclusion when interacting with their social network and professionals. Parents with ADHD and families with non-medicated children reported more problems in family functioning. Characteristics in parents and the child with ADHD, as well as support from the social network and community health services, all influenced family functioning. The PHNs described their role as both a peripheral and collaborating partner, asking for guidelines and multidisciplinary collaboration. The public health nurse is in a unique position to support and supervise these families.

Abstract [en]

Aim: The overall aim of this thesis was to describe and explore everyday life in families with a child with ADHD and public health nurses’ role in relation to these families.

Methods: An explorative and descriptive design with qualitative and quantitative methods was used. In Study I, data was collected with individual interviews with nine parents, and analyzed using phenomenology. In Study II, the data was collected with individual interviews with 17 family members, and analyzed with phenomenography. In Study III, data was collected with a questionnaire responded by 265 parents, and analyzed with statistics. In Study IV, data was collected with group- and individual interviews with 19 public health nurses, and analyzed with phenomenography.                                                                                                 

Main findings: The families’ everyday life was influenced by living in unpredictability, though they were striving for predictability. The experience of being a parent was described as contending and adapting every day, like windsurfing in unpredictable waters (I). The family tried to safeguard a functioning family in managing their everyday life and developing special skills, within the family and the society. They fought for acceptance and inclusion in relation to the social network and professionals (II). Parents’ sense of coherence, children’s behavior, support from social networks and community health services had all an impact on family functioning (III). The PHNs described their role as both a peripheral and a collaborating partner and they asked for guidelines and multidisciplinary collaboration (IV).

Conclusions: Everyday life in families with ADHD is both demanding and giving. Acceptance and support from the social network and supervision from the professionals are essential. The public health nurse is in a unique position to support and supervise these families.

 

Place, publisher, year, edition, pages
Karlstad: Karlstads universitet, 2014. 66 p.
Series
Karlstad University Studies, ISSN 1403-8099 ; 2014:9
Keyword
ADHD, children, everyday life, family, family functioning, parents, public health nurse, support
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-30940 (URN)978-91-7063-538-0 (ISBN)
Public defence
2014-04-04, Lagerlöfsalen, 1A 305, Karlstads universitet, Karlstad, 11:00 (Norwegian)
Opponent
Supervisors
Available from: 2014-03-14 Created: 2014-01-20 Last updated: 2014-03-14Bibliographically approved

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Moen, ØyfridHedelin, BirgittaHall-Lord, Marie-Louise
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