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Living in a family with a child with attention deficit hyperactivity disorder: a phenomenographic study
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences. Avdelningen for helse, omsorg og sykepleie, Högskolen i Gjövik. (omvårdnad)
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.ORCID iD: 0000-0003-3385-3731
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences. (Omvårdnad)
2014 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, no 21-22, p. 3166-3176Article in journal (Refereed) Published
Abstract [en]

This study contributes to knowledge of the parents, siblings and children with attention deficit hyperactivity disorder experiences of everyday life with a child with attention deficit hyperactivity disorder. All family members need support before their problems become too severe.

Attention deficit hyperactivity disorder is a highly prevalent, clinically heterogeneous disorder characterised by behavioural symptoms of inattention, hyperactivity and impulsivity that creates impairments for the child and affects the family life. The impairments vary with age and context, and the same symptoms do not necessarily have the same effects in different contexts and persons.

The findings include two descriptive categories ‘safeguarding a functioning family’ and ‘fighting for acceptance and inclusion’. To create a stable and structured family life to avoid conflicts within the family and manage their daily life were crucial. The child with attention deficit hyperactivity disorder and their parents developed special skills and strategies to live with attention deficit hyperactivity disorder in the family sphere and the social context. To apply for help before the problems in the family become too severe and to share responsibility with professionals, who have competence, to meet the families in their worries were stressed. The striving in the family strengthened the companionship in the families, and they conceived growth.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2014. no 21-22, p. 3166-3176
Keywords [en]
attention deficit hyperactivity disorder; child; family; life situation; phenomenography
National Category
Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:kau:diva-31581DOI: 10.1111/jocn.12559ISI: 000343835300018PubMedID: 25453121OAI: oai:DiVA.org:kau-31581DiVA, id: diva2:699273
Available from: 2014-02-27 Created: 2014-02-27 Last updated: 2017-12-05Bibliographically approved
In thesis
1. Everyday life in families with a child with ADHD and public health nurses’ conceptions of their role
Open this publication in new window or tab >>Everyday life in families with a child with ADHD and public health nurses’ conceptions of their role
2014 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

ADHD is one of the most common behavioral disorders diagnosed in children. These children have difficulties regarding the regulation of emotions, maintaining attention and impulse control, all of which influence family and social life. The aim of this study was to describe and explore the everyday life of families with a child with ADHD and public health nurses’ role in relation to these families. The parents were contending with- and adapting to the parental role and social network. The family attempted to safeguard a functioning family in managing their everyday life, tuning themselves in on the child’s shifting moods, using strict boundaries and developing special skills. The family fought for acceptance and inclusion when interacting with their social network and professionals. Parents with ADHD and families with non-medicated children reported more problems in family functioning. Characteristics in parents and the child with ADHD, as well as support from the social network and community health services, all influenced family functioning. The PHNs described their role as both a peripheral and collaborating partner, asking for guidelines and multidisciplinary collaboration. The public health nurse is in a unique position to support and supervise these families.

Abstract [en]

Aim: The overall aim of this thesis was to describe and explore everyday life in families with a child with ADHD and public health nurses’ role in relation to these families.

Methods: An explorative and descriptive design with qualitative and quantitative methods was used. In Study I, data was collected with individual interviews with nine parents, and analyzed using phenomenology. In Study II, the data was collected with individual interviews with 17 family members, and analyzed with phenomenography. In Study III, data was collected with a questionnaire responded by 265 parents, and analyzed with statistics. In Study IV, data was collected with group- and individual interviews with 19 public health nurses, and analyzed with phenomenography.                                                                                                 

Main findings: The families’ everyday life was influenced by living in unpredictability, though they were striving for predictability. The experience of being a parent was described as contending and adapting every day, like windsurfing in unpredictable waters (I). The family tried to safeguard a functioning family in managing their everyday life and developing special skills, within the family and the society. They fought for acceptance and inclusion in relation to the social network and professionals (II). Parents’ sense of coherence, children’s behavior, support from social networks and community health services had all an impact on family functioning (III). The PHNs described their role as both a peripheral and a collaborating partner and they asked for guidelines and multidisciplinary collaboration (IV).

Conclusions: Everyday life in families with ADHD is both demanding and giving. Acceptance and support from the social network and supervision from the professionals are essential. The public health nurse is in a unique position to support and supervise these families.

 

Place, publisher, year, edition, pages
Karlstad: Karlstads universitet, 2014. p. 66
Series
Karlstad University Studies, ISSN 1403-8099 ; 2014:9
Keywords
ADHD, children, everyday life, family, family functioning, parents, public health nurse, support
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-30940 (URN)978-91-7063-538-0 (ISBN)
Public defence
2014-04-04, Lagerlöfsalen, 1A 305, Karlstads universitet, Karlstad, 11:00 (Norwegian)
Opponent
Supervisors
Available from: 2014-03-14 Created: 2014-01-20 Last updated: 2014-03-14Bibliographically approved

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Moen, ØyfridHall-Lord, Marie-LouiseHedelin, Birgitta

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