Change search
ReferencesLink to record
Permanent link

Direct link
Patient participation in special care units for persons with dementia: A losing principle?
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.ORCID iD: 0000-0003-0417-6161
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences.
2014 (English)In: Nursing Ethics, ISSN 0969-7330, E-ISSN 1477-0989, Vol. 21, no 1, 108-118 p.Article in journal (Refereed) Published
Abstract [en]

The aim of this study was to explore the experience of nursing personnel with respect to patient participation in special care units for persons with dementia in nursing homes, with focus on everyday life. The study has an explorative grounded theory design. Eleven nursing personnel were interviewed twice. Patient participation is regarded as being grounded in the idea that being master of one's own life is essential to the dignity and self-esteem of all people. Patient participation was described at different levels as letting the resident make their own decisions, adjusting the choices, making decisions on behalf of the residents and forcing the residents. The educational level and commitment of the nursing personnel and how often they were on duty impacted the level that each person applied, as did the ability of the residents to make decisions, and organizational conditions, such as care culture, leadership and number of personnel.

Place, publisher, year, edition, pages
Sage Publications, 2014. Vol. 21, no 1, 108-118 p.
National Category
Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:kau:diva-29559DOI: 10.1177/0969733013486796ISI: 000330272400011PubMedID: 23793069OAI: oai:DiVA.org:kau-29559DiVA: diva2:656877
Available from: 2013-10-17 Created: 2013-10-17 Last updated: 2015-07-29Bibliographically approved
In thesis
1. Patient participation in everyday life in special care units for persons with dementia
Open this publication in new window or tab >>Patient participation in everyday life in special care units for persons with dementia
2013 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The aim of this thesis was to acquire knowledge about patient participation in everyday life of persons with dementia living in SCUs in nursing homes.

Data collection and analysis in studies I-III was carried out according to Grounded Theory. Data was collected by open non- participant observations during 51 hours, and conversations with 8 residents and 17 health care personnel (I), interviews carried out twice with 12 relatives (II) and 11 nursing personnel (III), and by a study specific questionnaire based on the findings from study I-II to 233 relatives (IV). Descriptive and non-parametric statistics were used (IV).

Presence of nursing personnel in body, mind and morality was found to be the prerequisite for patient participation (I). This required personnel with high competence in dementia care, commitment to and interest in the resident, and continuity in their work (I, III). Wellbeing and dignity in the resident’s everyday life was found to be the most important goal, not necessarily a high level of patient participation (II-III). The level of participation had to be adjusted to the resident’s ability and wish to take part in decisions in the very moment. However, the level was often primarily adjusted to suit the personnel’s ideas about how to carry out daily care (I, III). Relatives had an important role in the participation process by interacting, and exchanging information, with the personnel. By forming a basis for individualised care in this way, relatives made a difference to the resident’s everyday life and contributed to their wellbeing and dignity (II-IV). The SCU’s context also affected patient participation (I-IV).

Patient participation must be given attention by leaders and be prioritised in dementia care. Nursing personnel can enhance patient participation by promoting relatives’ partaking in the participation process, as this has potential for further contributing to quality of care.

Place, publisher, year, edition, pages
Karlstad: Karlstads universitet, 2013. 70 p.
Series
Karlstad University Studies, ISSN 1403-8099 ; 2013:43
Keyword
Patient participation, dementia, special care units for persons with dementia (SCUs), relatives, nursing personnel, grounded theory, cross-sectional
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-29208 (URN)978-91-7063-520-5 (ISBN)
Public defence
2013-11-08, Lagerlöfsalen, 1A 305, Karlstads universitet, Karlstad, 10:00 (Norwegian)
Opponent
Supervisors
Available from: 2013-10-17 Created: 2013-09-27 Last updated: 2013-10-17Bibliographically approved

Open Access in DiVA

No full text

Other links

Publisher's full textPubMed

Search in DiVA

By author/editor
Larsson, MariaAthlin, Elsy
By organisation
Department of Health Sciences
In the same journal
Nursing Ethics
Nursing

Search outside of DiVA

GoogleGoogle Scholar

Altmetric score

Total: 51 hits
ReferencesLink to record
Permanent link

Direct link