Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Living with leukaemia: participatory documentation using video methodologies
Karlstad University, Faculty of Economic Sciences, Communication and IT, Department of Information Systems and Project Management.
2009 (English)Conference paper, (Refereed)
Abstract

This paper provides initial results of an exploratory study conducted in partnership with the Leukaemia

Foundation of Australia into the daily activities and lives of Leukemia patients/survivors. These

patients/survivors have volunteered to develop in conjunction with the researchers, video documentation that shows others the effect, impact and consequences of their various forms of the disease. The study draws on Scandinavian approaches to video methodology, typically employed in Services Marketing and Management areas for the detailed description of service encounters, service spaces and services systems, and broader traditions of participatory, community-based documentation and multi-modal digital story telling. The study

enables Leukemia patients/survivors to speak about issues that are of concern to them, as well as co-creating

personal and social narratives about their disease, for the purposes of communicating within their communities

and also outside of them. The study also provides information on the kinds temporary and persistent coalitions

entered into by patients/survivors with a large number of stakeholders, both direct and indirect, in order to meet

a variety of needs. Relevant coalitions include but are not limited to health careers, complementary careers, and

health and business professionals as well as direct support groups like careers, family and friends that can

provide high levels of support. These stakeholders provide psychosocial care, spiritual care, socio-cultural care,

stress, grief and bereavement care, as well as physical symptom management and in particular pain

management. Emphasis will be placed on theoretical, methodological aspects of the study including the use of

technology in media acquisition and qualitative analysis. The paper will also describe the ethics process in the

design of the project. These methodologies have the potential to create a deeper understanding of the

challenges facing those with these diseases

Place, publisher, year, edition, pages
Wollongong, Australia: University of Wollongong , 2009.
National Category
Information Systems
Research subject
Information Systems
Identifiers
URN: urn:nbn:se:kau:diva-10125OAI: oai:DiVA.org:kau-10125DiVA: diva2:493646
Conference
Proceedings of Social Innovation Network (SINet) Conference (pp. 12)
Available from: 2012-02-08 Created: 2012-02-08 Last updated: 2013-06-12Bibliographically approved

Open Access in DiVA

No full text

Search in DiVA

By author/editor
Clarke, Rodney
By organisation
Department of Information Systems and Project Management
Information Systems

Search outside of DiVA

GoogleGoogle Scholar

Total: 18 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf