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Patients Living with Home Enteral Tube Feeding: Side effects, health-related quality of life and nutritional care
Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.ORCID iD: 0000-0002-4974-6845
Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.ORCID iD: 0000-0003-0417-6161
Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
Karlstad University, Faculty of Social and Life Sciences, Department of Nursing.
2014 (English)In: Clinical Nursing Studies, ISSN 2324-7940, Vol. 2, no 3, 64-75 p.Article in journal (Refereed) Published
Abstract [en]

The aim of the study was to examine patients’ perceptions of side effects, health-related quality of life (HRQL), generalhealth, and nutritional care among patients receiving home enteral tube feeding (HETF) at two occasions after dischargefrom hospital. Three questionnaires, one study-specific, the Short Form 12 (SF-12) and the Health Index (HI), were sent topatients with HETF (n=62) twice, two weeks after discharge from hospital and two months later. Forty patients respondedtwo weeks after discharge and out of these 29 patients also responded after two months. Data were collected in centralSweden from March 2006 to January 2010. Side effects were common at both points of data collection (70% of thepatients after two weeks and 72% after two month). Patients using bolus feeding reported significantly fewer side effectsthan patients using intermittent feeding. HRQL and HI scores for the total group were low at both points of data collection.The bolus feeding group reported significantly higher physical HRQL and emotional HI than the intermittent feedinggroup did. Most patients were satisfied with the information and support they received from the health care team. Thisstudy has revealed that patients treated with HETF experienced side effects limiting their daily life to a great extent.Differences in HRQL related to feeding methods were found. Individualized support and regular controls are needed inorder to meet patient needs. Bolus feeding may be a suitable feeding method to improve well-being.

Place, publisher, year, edition, pages
2014. Vol. 2, no 3, 64-75 p.
Keyword [en]
Home enteral tube feeding, Side effects, Health-related quality of life, General health, Bolus feeding
National Category
Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:kau:diva-6415DOI: 10.5430/cns.v2n3p64OAI: oai:DiVA.org:kau-6415DiVA: diva2:353637
Note

This article was published as manuscript at the time of the PhD defense.  

Available from: 2010-09-28 Created: 2010-09-28 Last updated: 2016-10-13Bibliographically approved
In thesis
1. Home enteral tube feeding  - from patients’, relatives’ and nurses’ perspectives
Open this publication in new window or tab >>Home enteral tube feeding  - from patients’, relatives’ and nurses’ perspectives
2010 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Changes in the health-care system during the past decades have led to an increased transfer of health care to the home environment which also concerns patients treated with home enteral tube feeding (HETF). Research is scarce about how HETF care is functioning. Therefore, the overall aim with this thesis was to describe and explore HETF care and treatment from patients', relatives' and nurses' perspectives. Three qualitative and one quantitative study were used. The findings showed that the HETF treatment and care had a great impact on daily life for both patients and their relatives and implied many practical, emotional and social problems in their daily life, which they strived to manage. Side effects were common and the patients' reported low HRQL and general health. The amount and quality of received guidance and support from the health care, not least before discharge, turned out to have impact on the patients' and the relatives' daily life and how they could manage their situation. Lack of guidance and support meant insecurity, worries and distress. Cooperation in the care trajectory was found to be decisive for how well the care was running. Nurses' knowledge about tube feeding and discharge planning procedures, their commitment to the patients' care, as well as clarity regarding responsibility of HETF care were factors of crucial importance on how the cooperation worked, and the quality of the HETF care. This thesis shows the need of improvements regarding the care of HETF patients and their relatives. 

Place, publisher, year, edition, pages
Karlstad: Karlstads universitet, 2010. 75 p.
Series
Karlstad University Studies, ISSN 1403-8099 ; 2010:26
Keyword
home enteral tube feeding, home care, quality of life, care trajectory, discharge planning, patients, relatives, nurses
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-6325 (URN)978-91-7063-317-1 (ISBN)
Public defence
2010-10-15, Lagerlöfsalen 1A 305, Karlstads universitet, Karlstad, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2010-09-28 Created: 2010-09-05 Last updated: 2015-10-07Bibliographically approved

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