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Registered Nurses' Perceptions about the Situation of Family Caregivers to Patients with Heart Failure - A Focus Group Interview Study
Mälardalens högskola.
Mälardalens Högskola, Högskolan i Borås.ORCID iD: 0000-0002-7117-9808
Uppsala universitet.
Mälardalens högskola.
2016 (English)In: PLOS ONE, E-ISSN 1932-6203, Vol. 11, no 8, article id e0160302Article in journal (Refereed) Published
Abstract [en]

IntroductionHeart failure is a growing public health problem associated with poor quality of life and significant morbidity and mortality. The majority of heart failure care is provided by family caregivers, and is associated with caregiver burden and reduced quality of life. Research emphasizes that future nursing interventions should recognize the importance of involving family caregivers to achieve optimal outcomes.AimsThe aims of this study are to explore registered nurses' perceptions about the situation of family caregivers to patients with heart failure, and registered nurses' interventions, in order to improve family caregivers' situation.MethodsThe study has a qualitative design with an inductive approach. Six focus group interviews were held with 23 registered nurses in three hospitals and three primary health care centres. Data were analysed using qualitative content analysis.ResultsTwo content areas were identified by the a priori study aims. Four categories and nine subcategories emerged in the analysis process. The content area "Family caregivers' situation" includes two categories: "To be unburdened" and "To comprehend the heart failure condition and its consequences". The content area "Interventions to improve family caregivers' situation" includes two categories: "Individualized support and information" and "Bridging contact".ConclusionsRegistered nurses perceive family caregivers' situation as burdensome, characterized by worry and uncertainty. In the PHCCs, the continuity and security of an RN as a permanent health care contact was considered an important and sustainable intervention to better care for family caregivers' worry and uncertainty. In the nurse-led heart failure clinics in hospitals, registered nurses can provide family caregivers with the opportunity of involvement in their relative's health care and address congruence and relationship quality within the family through the use of "Shared care" and or Family-centred care. Registered nurses consider it necessary to have a coordinated individual care plan as a basis for collaboration between the county council and the municipality.

Place, publisher, year, edition, pages
San Francisco: Public Library Science 1932-6203 , 2016. Vol. 11, no 8, article id e0160302
Keywords [en]
QUALITY-OF-LIFE; HEALTH-PROMOTING CONVERSATIONS; SELF-CARE; EUROPEAN-SOCIETY; SOCIAL SUPPORT; SHARED CARE; TASK-FORCE; HIGH-RISK; MANAGEMENT; ASSOCIATION
National Category
Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:kau:diva-76536DOI: 10.1371/journal.pone.0160302ISI: 000381374200030PubMedID: 27505287OAI: oai:DiVA.org:kau-76536DiVA, id: diva2:1393616
Available from: 2020-02-17 Created: 2020-02-17 Last updated: 2022-11-16Bibliographically approved

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Josefsson, Karin

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