Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Assessing Family Burden of Psychotic Illness in Clinical Practice
Karlstad University, Faculty of Economic Sciences, Communication and IT, Department of Psychology. (Psykologi)ORCID iD: 0000-0002-1088-9793
2009 (English)Licentiate thesis, comprehensive summary (Other academic)
Abstract [en]

The purpose of this thesis was twofold. One purpose was to create a user-friendly instrument to be used in regular clinical practice to collect information regarding family burden of psychotic illness. The second purpose was to study how family burden could be linked to the patients’ level of functioning, the patients’ cognition and the patients’ own experience of their illness.    

Two studies were conducted. In the first study (Paper I) the instrument Burden Inventory for Relatives to persons with Psychotic disturbances (BIRP) was created. This instrument contained ten statements and showed good psychometrical properties for those dimensions that were investigated. The instrument measures three dimensions of experienced family burden: practical burden, emotional burden, and the relatives’ own health. In the second study (Paper II) the second part of this thesis purpose was investigated. Results showed that increased family burden could be tied to the patients’ impaired functioning as well as to the patients’ higher self ratings regarding distress. The cognitive connection to family burden is not totally clear though, and should be further investigated. A theoretical model which explains the experienced family burden of psychotic illness is also presented within this thesis.

The conclusions of this thesis are that BIRP is a useful instrument in regular clinical practise for measuring experienced family burden, and that the patients’ level of functioning and the patients’ own experience of their illness were correlated to the family burden experienced.

Place, publisher, year, edition, pages
Karlstad: Karlstads universitet , 2009. , 65 p.
Series
Karlstad University Studies, ISSN 1403-8099 ; 2009:5
Keyword [en]
Family Burden, Psychotic Illness, Psychometrics, BIRP, Function, Cognition, Theoretic model
National Category
Psychology
Research subject
Psychology
Identifiers
URN: urn:nbn:se:kau:diva-3270ISBN: 978-91-7063-233-4 (print)OAI: oai:DiVA.org:kau-3270DiVA: diva2:133762
Presentation
2009-03-06, Karlstads universitet, Karlstad, 10:00 (Swedish)
Opponent
Supervisors
Projects
Clinical Long-term Investigation of Psychosis in Sweden, CLIPS
Available from: 2009-02-16 Created: 2009-01-14 Last updated: 2015-09-02Bibliographically approved
List of papers
1. Psychometric Properties of the Burden Inventory for Relatives of Persons with Psychotic Disturbances
Open this publication in new window or tab >>Psychometric Properties of the Burden Inventory for Relatives of Persons with Psychotic Disturbances
2008 (English)In: Psychological Reports, ISSN 0033-2941, Vol. 103, 58 p.323-335 p.Article in journal (Refereed) Published
Abstract [en]

Earlier studies have shown that close relatives are heavily burdened when a family member has schizophrenia. The current purpose was twofold, (1) to examine the psychometric properties for a test of the burden of family members, one used in Swedish clinical practice (the Care Burden Scale for Relatives) and (2) develop a shortened version with the same or better psychometric properties. Ninety-nine close relatives, 34 men and 65 women, of the same number of patients who had been diagnosed either with schizophrenia or with schizoaffective disorder, were studied. Participants completed the Care Burden Scale for Relatives and a visual analogue scale measuring perceived global burden on which the total burden was assessed. Patients of the close relatives were assessed on clinical tests often used in the psychiatric care, in an attempt to validate the external criteria, such as severity of symptoms and level of functioning. The resulting instrument, Burden Inventory for Relatives of persons with Psychotic disturbances, showed good psychometric properties which simplifies data collection from relatives of patients with psychotic disturbances. In this study, relatives of those patients not in remission evinced a significant greater family burden.

Place, publisher, year, edition, pages
Ammons Scientific, 2008. 58 p.
Keyword
BIRP, Family burden, Instrumental study, Remission, Schizophrenia
National Category
Psychology
Research subject
Psychology
Identifiers
urn:nbn:se:kau:diva-3260 (URN)10.2466/PR0.103.2.323-335 (DOI)978-91-7063-227-3 (ISBN)
Projects
Clinical Long-term Investigation of Psychosis in Sweden, CLIPS
Available from: 2009-01-14 Created: 2009-01-14 Last updated: 2015-09-02Bibliographically approved
2. Illness Related Components for the Family Burden of Relatives to Patients with Psychotic Illness
Open this publication in new window or tab >>Illness Related Components for the Family Burden of Relatives to Patients with Psychotic Illness
2010 (English)In: Social Psychiatry and Psychiatric Epidemiology, ISSN 0933-7954, E-ISSN 1433-9285, Vol. 45, no 2, 275-283 p.Article in journal (Refereed) Published
Abstract [en]

Background: Previous research has shown that symptom severity often implies an increased family burden. Few other illness related variables have, however, been investigated in this context. This study investigates how family burden is affected by symptom, function, and cognition, as well as how the patient perceives his/her illness and quality of life. Method: A total of 99 relatives, to as many patients diagnosed with psychosis and with their illness at a stable level, participated in this study. The relatives estimated their perceived burden, the patients rated the distress caused by their illness as well as the quality of their lives, and the care staff rated the patients’ symptom and function as well as tested their cognitive abilities. Results: Increased family burden can be tied to the patients’ increased symptom severity, to their impaired functioning as well as to the patients’ higher self ratings regarding distress. The family burden is also connected to the patient’s reduced working memory and reduced executive functioning, but this connection is not totally clear and should be further investigated. Of the variables that the patients were rated on, it was the overall functional ability measured with GAF that had the single most impact on perceived family burden. Conclusions: To control illness related variables such as symptoms, impaired functioning, impaired working memory and executive functioning, as well as the patients’ own experiences of distress, is important in order to lessen the burden for the relatives. All aspects of family burden are, however, not explained by these factors, which is why further research within this realm is required.

Place, publisher, year, edition, pages
Springer, 2010
Keyword
Family burden, Outcome assessment, BIRP, Psychotic illness, Schizophrenia
National Category
Psychology
Research subject
Psychology
Identifiers
urn:nbn:se:kau:diva-3268 (URN)10.1007/s00127-009-0065-x (DOI)000274469200016 ()
Projects
Clinical Long-term Investigation of Psychosis in Sweden, CLIPS
Note

Vid publiceringen av Fredrik Hjärthags licentiatuppsats, var denna artikel inte publicerad.

Available from: 2009-01-14 Created: 2009-01-14 Last updated: 2015-12-28Bibliographically approved

Open Access in DiVA

No full text

Authority records BETA

Hjärthag, Fredrik

Search in DiVA

By author/editor
Hjärthag, Fredrik
By organisation
Department of Psychology
Psychology

Search outside of DiVA

GoogleGoogle Scholar

isbn
urn-nbn

Altmetric score

isbn
urn-nbn
Total: 196 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf