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Eliciting Design Guidelines for Privacy Notifications in mHealth Environments
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Mathematics and Computer Science (from 2013).
(English)Manuscript (preprint) (Other academic)
Abstract [en]

The possibilities of employing mobile health (mhealth) devices for the purpose of self-quantification and fitness tracking are increasing, yet few users of online mhealth services possess proven knowledge of how their personal data are processed once the data have been disclosed. Ex post transparency-enhancing tools (TETs) can provide such insight and guide users in making informed decisions with respect to intervening with the processing of their personal data. At present, however, there are no suitable guidelines that aid designers of TETs in implementing privacy notifications that reflect their recipients’ needs in terms of what they want to be notified about and the level of guidance required to audit their data effectively. Based on an analysis of gaps related to TETs, the findings of a study on privacy notification preferences, and the findings on notifications and privacy notices discussed in the literature, this paper proposes a set of guidelines for the human-centred design of privacy notifications that facilitate ex post transparency.

Keywords [en]
Data transparency, Human-Centred Design, Individualisation, Intervenability, Mobile Health (mHealth), Notification, Privacy, Transparency-Enhancing Tool (TET), Usability
National Category
Human Computer Interaction
Research subject
Computer Science
Identifiers
URN: urn:nbn:se:kau:diva-71119OAI: oai:DiVA.org:kau-71119DiVA, id: diva2:1289392
Note

The manuscript is currently under submission and represents a preliminary entry created to satisfy the prerequisites for the licentiate thesis. The record will be finalised and adapted (type will change from Manuscript to Proceedings) once the publication is accepted for publishing.

Available from: 2019-02-18 Created: 2019-02-18 Last updated: 2019-06-14Bibliographically approved
In thesis
1. Towards Usable Transparency via Individualisation
Open this publication in new window or tab >>Towards Usable Transparency via Individualisation
2019 (English)Licentiate thesis, comprehensive summary (Other academic)
Abstract [en]

The General Data Protection Regulation grants data subjects the legal rights of transparency and intervenability. Ex post transparency provides users of data services with insight into how their personal data have been processed, and potentially clarifies what consequences will or may arise due to the processing of their data. Technological artefacts, ex post transparency-enhancing tools (TETs) convey such information to data subjects, provided the TETs are designed to suit the predisposition of their audience. Despite being a prerequisite for transparency, however, many of the TETs available to date lack usability in that their capabilities do not reflect the needs of their final users.

The objective of this thesis is therefore to systematically apply the concept of human-centred design to ascertain design principles that demonstrably lead to the implementation of a TET that facilitates ex post transparency and supports intervenability. To this end, we classify the state of the art of usable ex post TETs published in the literature and discuss the gaps therein. Contextualising our findings in the domain of fitness tracking, we investigate to what extent individualisation can help accommodate the needs of users of online mobile health services. We introduce the notion of privacy notifications as a means to inform data subjects about incidences worthy of their attention and examine how far privacy personas reflect the preferences of distinctive groups of recipients. We suggest a catalogue of design guidelines that can serve as a basis for specifying context-sensitive requirements for the implementation of a TET that leverages privacy notifications to facilitate ex post transparency, and which also serve as criteria for the evaluation of a future prototype.

Place, publisher, year, edition, pages
Karlstad: Karlstads universitet, 2019. p. 140
Series
Karlstad University Studies, ISSN 1403-8099 ; 2019:8
Keywords
Data transparency, General Data Protection Regulation (GDPR), Human-centred design, Human-computer interaction (HCI), Information privacy, Intervenability, Mobile health (mhealth), Transparency-enhancing tool (TET), Usability
National Category
Human Computer Interaction Interaction Technologies Media and Communication Technology
Research subject
Computer Science
Identifiers
urn:nbn:se:kau:diva-71120 (URN)978-91-7867-003-1 (ISBN)978-91-7867-008-6 (ISBN)
Presentation
2019-05-23, 1B309, Karlstad university, Karlstad, 10:00 (English)
Opponent
Supervisors
Funder
EU, Horizon 2020, 675730
Available from: 2019-05-02 Created: 2019-02-28 Last updated: 2019-05-02Bibliographically approved

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Citation style
  • apa
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