Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
A Qualitative Study of the Experiences of Norwegian Parents of Very Low Birthweight Infants Enrolled in a Randomized Nutritional Trial
Akershus University Hospital, Nordbyhagen, Norway; University of Oslo, Norway.
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013). Örebro University, Sweden.
Department of Pediatric and Adolescent Medicine, Akershus University Hospital, Norway; University of Oslo, Norway.
2018 (English)In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 43, p. E66-E74Article in journal (Refereed) Published
Abstract [en]

Purpose: The aim of this study was to examine how parents of very low birth weight (VLBW) infants experienced having their newborn infant enrolled in a randomized controlled intervention trial (RCT). Design and Methods: A qualitative descriptive design was used. Data were collected through individual semi-structured interviews with 15 parents of 9 participating VLBW infants. The data were then made the object of an inductive qualitative content analysis. Results: The parents expressed trust in the competence and motivation of the researchers and were confident that participating in the project would do no harm, but instead would potentially benefit their infant. The parents felt privileged for being given the chance to participate, to commit to the project; they were willing to invest their time and effort in the project. Participation could be stressful for the parents, ranging from minor irritation to situations in which they felt overwhelmed and not entirely in control. Many families lived stressful lives, and participation, particularly the follow-up after being discharged, may have added to this. Conclusions: Infant participation in an RCT can be a positive experience, making the parents feel that they are given a chance to both contribute and receive something special. Participation can also be stressful because of conditions both related and unrelated to the RCT. Practice Implications: We identified several issues that researchers in future trials with VLBW infants need to address to minimize parental stress. Recruitment to intervention studies within the immediate period around birth should be avoided, if possible.

Place, publisher, year, edition, pages
Saunders Elsevier, 2018. Vol. 43, p. E66-E74
Keywords [en]
Parents, Premature, Randomized controlled trial, Research ethics, Very low birth weight (VLBW)
National Category
Nursing Pediatrics
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:kau:diva-69080DOI: 10.1016/j.pedn.2018.07.008ISI: 000450921100012Scopus ID: 2-s2.0-85050807687OAI: oai:DiVA.org:kau-69080DiVA, id: diva2:1245630
Available from: 2018-09-05 Created: 2018-09-05 Last updated: 2019-07-09Bibliographically approved

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textScopus

Authority records BETA

Anderzen-Carlsson, Agneta

Search in DiVA

By author/editor
Anderzen-Carlsson, Agneta
By organisation
Department of Health Sciences (from 2013)
In the same journal
Journal of Pediatric Nursing: Nursing Care of Children and Families
NursingPediatrics

Search outside of DiVA

GoogleGoogle Scholar

doi
urn-nbn

Altmetric score

doi
urn-nbn
Total: 1049 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf