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Patients’ experiences of home enteral tube feeding (HETF): a qualitative study
Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.ORCID-id: 0000-0002-4974-6845
Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.ORCID-id: 0000-0003-0417-6161
Karlstads universitet, Fakulteten för samhälls- och livsvetenskaper, Avdelningen för omvårdnad.
2015 (engelsk)Inngår i: Journal of research in nursing, ISSN 1744-9871, Vol. 20, nr 7, s. 552-565Artikkel i tidsskrift (Fagfellevurdert) Published
sted, utgiver, år, opplag, sider
Sage Publications, 2015. Vol. 20, nr 7, s. 552-565
Emneord [en]
tube feeding; home enteral tube feeding; patients; daily life; home care; grounded theory
HSV kategori
Forskningsprogram
Omvårdnad
Identifikatorer
URN: urn:nbn:se:kau:diva-6414DOI: 10.1177/1744987114568655ISI: 000365712900005OAI: oai:DiVA.org:kau-6414DiVA, id: diva2:353634
Merknad

Arikeln ingår i avhandlingen"Home enteral tube feeding : from patients, relatives and nurses perspectives" men var då bara publicerad som manuskript med titeln

Management of restrictions and distress – patients’ perspective on home enteral tube feeding

Tilgjengelig fra: 2010-09-28 Laget: 2010-09-28 Sist oppdatert: 2017-08-08bibliografisk kontrollert
Inngår i avhandling
1. Home enteral tube feeding  - from patients’, relatives’ and nurses’ perspectives
Åpne denne publikasjonen i ny fane eller vindu >>Home enteral tube feeding  - from patients’, relatives’ and nurses’ perspectives
2010 (engelsk)Doktoravhandling, med artikler (Annet vitenskapelig)
Abstract [en]

Changes in the health-care system during the past decades have led to an increased transfer of health care to the home environment which also concerns patients treated with home enteral tube feeding (HETF). Research is scarce about how HETF care is functioning. Therefore, the overall aim with this thesis was to describe and explore HETF care and treatment from patients', relatives' and nurses' perspectives. Three qualitative and one quantitative study were used. The findings showed that the HETF treatment and care had a great impact on daily life for both patients and their relatives and implied many practical, emotional and social problems in their daily life, which they strived to manage. Side effects were common and the patients' reported low HRQL and general health. The amount and quality of received guidance and support from the health care, not least before discharge, turned out to have impact on the patients' and the relatives' daily life and how they could manage their situation. Lack of guidance and support meant insecurity, worries and distress. Cooperation in the care trajectory was found to be decisive for how well the care was running. Nurses' knowledge about tube feeding and discharge planning procedures, their commitment to the patients' care, as well as clarity regarding responsibility of HETF care were factors of crucial importance on how the cooperation worked, and the quality of the HETF care. This thesis shows the need of improvements regarding the care of HETF patients and their relatives. 

sted, utgiver, år, opplag, sider
Karlstad: Karlstads universitet, 2010. s. 75
Serie
Karlstad University Studies, ISSN 1403-8099 ; 2010:26
Emneord
home enteral tube feeding, home care, quality of life, care trajectory, discharge planning, patients, relatives, nurses
HSV kategori
Forskningsprogram
Omvårdnad
Identifikatorer
urn:nbn:se:kau:diva-6325 (URN)978-91-7063-317-1 (ISBN)
Disputas
2010-10-15, Lagerlöfsalen 1A 305, Karlstads universitet, Karlstad, 09:00 (svensk)
Opponent
Veileder
Tilgjengelig fra: 2010-09-28 Laget: 2010-09-05 Sist oppdatert: 2015-10-07bibliografisk kontrollert

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