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Aspects of dignity in family caregivers of persons suffering from multiple sclerosis
Oslo Metropolitan University, Norway; Docent Åbo Akademi University, Finland.
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Health Sciences (from 2013).ORCID iD: 0000-0002-9363-5667
Oslo Metropolitan University, Norway.
2025 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 20, no 1, article id 2468047Article in journal (Refereed) Published
Abstract [en]

BackgroundThe focus of this study is on preserved dignity and dignity violation of family caregivers of persons suffering from multiple sclerosis.AimThe aim of the study was to get a deeper understanding of how family caregivers of persons suffering from multiple sclerosis perceive that their dignity is preserved or deprived.MethodologyA hermeneutic approach was employed.Research methodsThe authors conducted research interviews in the form of conversations with eight family caregivers.Analysis and interpretation methodsOur compass and guide in the interpretation process were Gadamer's hermeneutics and the pursuit of the study' purpose.Ethical considerationsThe participants were informed of the possibility of being able to withdraw from the study whenever they wished.ResultsPreserved dignity through: Doing good for others; Compassion with and bearing burdens of others; Being reconciled with life; Violated dignity caused by insensitive health care professionals, public authorities, health care systems and friends.ConclusionThe family caregivers preserve their dignity by doing good for their loved ones, bearing their burdens and when they become reconciled with life. Their dignity is violated when being met by insensitive healthcare professionals.

Place, publisher, year, edition, pages
Taylor & Francis, 2025. Vol. 20, no 1, article id 2468047
Keywords [en]
Family caregivers, multiple sclerosis, dignity, doing good, compassion, reconciliation, violation
National Category
Nursing
Research subject
Nursing Science
Identifiers
URN: urn:nbn:se:kau:diva-103471DOI: 10.1080/17482631.2025.2468047ISI: 001425385500001PubMedID: 39967568Scopus ID: 2-s2.0-85219126206OAI: oai:DiVA.org:kau-103471DiVA, id: diva2:1942105
Available from: 2025-03-04 Created: 2025-03-04 Last updated: 2025-04-25Bibliographically approved

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Lindwall, Lillemor

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