Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • apa.csl
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Reconciling the What, When and How of Privacy Notifications in mHealth
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Mathematics and Computer Science (from 2013).
Karlstad University.
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Mathematics and Computer Science (from 2013).ORCID iD: 0000-0002-6938-4466
University of Göttingen.
(English)Manuscript (preprint) (Other academic)
Abstract [en]

The increasing number of mobile health (mhealth) devices deployed worldwide poses challenges to the privacy of their users, especially in terms of transparency. Privacy notifications constitute a conceptual means to facilitate transparency by providing users with situational awareness pertaining to the processing of their personal data. We present the results of two online surveys with cohorts consisting of English-speaking (n = 154) and German-speaking (n = 150) users of mhealth devices, conducted to elicit viable determinants of notification settings. We found quantitative evidence for the usefulness of privacy notifications, and for concordant predictors in terms of when and how users prefer to be notified about what kind of scenario. We conclude by providing tangible design guidelines for usable Transparency-Enhancing Tools (TETs) that harness privacy notifications to facilitate transparency, and that help users make informed decisions and take action in response.

Keywords [en]
Human-computer interaction (HCI), Mobile health (mhealth), Privacy notifications, User preferences, Transparency-enhancing tool (TET)
National Category
Human Computer Interaction Computer Sciences Other Computer and Information Science
Research subject
Computer Science
Identifiers
URN: urn:nbn:se:kau:diva-80074OAI: oai:DiVA.org:kau-80074DiVA, id: diva2:1464318
Funder
EU, Horizon 2020, 67573EU, Horizon 2020, 786767Available from: 2020-12-31 Created: 2020-09-04 Last updated: 2020-10-07Bibliographically approved
In thesis
1. Information at Your Fingertips: Facilitating Usable Transparency via Privacy Notifications
Open this publication in new window or tab >>Information at Your Fingertips: Facilitating Usable Transparency via Privacy Notifications
2020 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The General Data Protection Regulation stipulates legal rights of transparency and intervenability. Transparency provides data subjects with insight into how their personal data have been processed, clarifying what consequences will or may arise due to the processing of their data, whereas intervenability enables them to intervene in the process. Technological artefacts, transparency-enhancing tools (TETs) serve the purpose of conveying respective information precisely and intelligibily. However, despite being a prerequisite for transparency, many TETs available today lack usability in that they do not stringently reflect the needs of their users, which raises the question as to whether individual TETs fulfil their designated purpose.

The objective of this dissertation is to systematically apply principles pertaining to human-centred design to ascertain the qualities necessary to design TETs that facilitate transparency and advise means of intervenability with regard to the needs of their target audience. We classify the state of the art of usable TETs published in the literature and discuss the gaps therein. Contextualising our research in the domain of personal health tracking, we investigate to what extent customisation can help accommodate the needs of users of TETs. We introduce privacy notifications as a conceptual means to inform data subjects about facts worthy of their attention, and examine the immanent properties required to accomplish actual usability. We categorise the characteristics of privacy notifications in terms of what insight they convey, and how respective facts need to be presented to facilitate informed decision-making on the recipient's part. Based on findings obtained via quantitative and qualitative user studies, we elicit concomitant factors related to the parameterisation of privacy notifications. We present the prototypical implementation of TETs whose iterative evaluation provides us with a catalogue of design requirements that demonstrably reflect the needs of their users.

Place, publisher, year, edition, pages
Karlstads universitet, 2020. p. 55
Series
Karlstad University Studies, ISSN 1403-8099 ; 2020:28
Keywords
General Data Protection Regulation (GDPR), Human-centred design, Human-computer interaction (HCI), Information privacy, Intervenability, Mobile health (mhealth), Personal health tracking, Privacy notification, Transparency, Transparency-enhancing tool (TET), Usability
National Category
Computer Sciences
Research subject
Computer Science
Identifiers
urn:nbn:se:kau:diva-80075 (URN)978-91-7867-144-1 (ISBN)978-91-7867-148-9 (ISBN)
Public defence
2020-10-28, 21E415A, Sjökvistsalen, Karlstad, 09:00 (English)
Opponent
Supervisors
Note

Artikel 6 del av avhandlingen som manuskript, nu publicerad.

Available from: 2020-10-07 Created: 2020-09-04 Last updated: 2021-07-02Bibliographically approved

Open Access in DiVA

No full text in DiVA

Authority records

Murmann, PatrickFischer-Hübner, Simone

Search in DiVA

By author/editor
Murmann, PatrickFischer-Hübner, Simone
By organisation
Department of Mathematics and Computer Science (from 2013)Karlstad University
Human Computer InteractionComputer SciencesOther Computer and Information Science

Search outside of DiVA

GoogleGoogle Scholar

urn-nbn

Altmetric score

urn-nbn
Total: 424 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • apa.csl
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf