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To Be, or Not to Be Notified: Eliciting Privacy Notification Preferences for Online mHealth Services
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Mathematics and Computer Science (from 2013).
University of Göttingen, Germany.
Karlstad University, Faculty of Health, Science and Technology (starting 2013), Department of Mathematics and Computer Science (from 2013).ORCID iD: 0000-0002-6938-4466
2019 (English)In: ICT Systems Security and Privacy Protection / [ed] Gurpreet Dhillon, Fredrik Karlsson, Karin Hedström, André Zúquete, Springer, 2019, Vol. 562, p. 209-222Conference paper, Published paper (Refereed)
Abstract [en]

Millions of people are tracking and quantifying their fitness and health, and entrust online mobile health (mhealth) services with storing and processing their sensitive personal data. Ex post transparency-enhancing tools (TETs) enable users to keep track of how their personal data are processed, and represent important building blocks to understand privacy implications and control one’s online privacy. Particularly, privacy notifications provide users of TETs with the insight necessary to make informed decision about controlling their personal data that they have disclosed previously. To investigate the notification preferences of users of online mhealth services, we conducted an online study. We analysed how notification scenarios can be grouped contextually, and how user preferences with respect to being notified relate to intervenability. Moreover, we examined to what extent ex post notification preferences correlate with privacy personas established in the context of trust in and reliability of online data services. Based on our findings, we discuss the implications for the design of usable ex post TETs.

Place, publisher, year, edition, pages
Springer, 2019. Vol. 562, p. 209-222
Keywords [en]
privacy, transparency-enhancing tool, usability, personas, mhealth
National Category
Human Computer Interaction Other Computer and Information Science
Research subject
Computer Science
Identifiers
URN: urn:nbn:se:kau:diva-74439DOI: 10.1007/978-3-030-22312-0_15ISI: 000560392300015ISBN: 978-3-030-22312-0 (print)OAI: oai:DiVA.org:kau-74439DiVA, id: diva2:1344538
Conference
34th IFIP TC 11 International Conference, SEC 2019, Lisbon, Portugal, June 25-27, 2019
Available from: 2019-08-21 Created: 2019-08-21 Last updated: 2020-09-16Bibliographically approved
In thesis
1. Information at Your Fingertips: Facilitating Usable Transparency via Privacy Notifications
Open this publication in new window or tab >>Information at Your Fingertips: Facilitating Usable Transparency via Privacy Notifications
2020 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The General Data Protection Regulation stipulates legal rights of transparency and intervenability. Transparency provides data subjects with insight into how their personal data have been processed, clarifying what consequences will or may arise due to the processing of their data, whereas intervenability enables them to intervene in the process. Technological artefacts, transparency-enhancing tools (TETs) serve the purpose of conveying respective information precisely and intelligibily. However, despite being a prerequisite for transparency, many TETs available today lack usability in that they do not stringently reflect the needs of their users, which raises the question as to whether individual TETs fulfil their designated purpose.

The objective of this dissertation is to systematically apply principles pertaining to human-centred design to ascertain the qualities necessary to design TETs that facilitate transparency and advise means of intervenability with regard to the needs of their target audience. We classify the state of the art of usable TETs published in the literature and discuss the gaps therein. Contextualising our research in the domain of personal health tracking, we investigate to what extent customisation can help accommodate the needs of users of TETs. We introduce privacy notifications as a conceptual means to inform data subjects about facts worthy of their attention, and examine the immanent properties required to accomplish actual usability. We categorise the characteristics of privacy notifications in terms of what insight they convey, and how respective facts need to be presented to facilitate informed decision-making on the recipient's part. Based on findings obtained via quantitative and qualitative user studies, we elicit concomitant factors related to the parameterisation of privacy notifications. We present the prototypical implementation of TETs whose iterative evaluation provides us with a catalogue of design requirements that demonstrably reflect the needs of their users.

Place, publisher, year, edition, pages
Karlstads universitet, 2020. p. 55
Series
Karlstad University Studies, ISSN 1403-8099 ; 2020:28
Keywords
General Data Protection Regulation (GDPR), Human-centred design, Human-computer interaction (HCI), Information privacy, Intervenability, Mobile health (mhealth), Personal health tracking, Privacy notification, Transparency, Transparency-enhancing tool (TET), Usability
National Category
Computer Sciences
Research subject
Computer Science
Identifiers
urn:nbn:se:kau:diva-80075 (URN)978-91-7867-144-1 (ISBN)978-91-7867-148-9 (ISBN)
Public defence
2020-10-28, 21E415A, Sjökvistsalen, Karlstad, 09:00 (English)
Opponent
Supervisors
Note

Artikel 6 del av avhandlingen som manuskript, nu publicerad.

Available from: 2020-10-07 Created: 2020-09-04 Last updated: 2021-07-02Bibliographically approved

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Murmann, PatrickFischer-Hübner, Simone

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