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Information at Your Fingertips: Facilitating Usable Transparency via Privacy Notifications
Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för matematik och datavetenskap (from 2013).
2020 (Engelska)Doktorsavhandling, sammanläggning (Övrigt vetenskapligt)
Abstract [en]

The General Data Protection Regulation stipulates legal rights of transparency and intervenability. Transparency provides data subjects with insight into how their personal data have been processed, clarifying what consequences will or may arise due to the processing of their data, whereas intervenability enables them to intervene in the process. Technological artefacts, transparency-enhancing tools (TETs) serve the purpose of conveying respective information precisely and intelligibily. However, despite being a prerequisite for transparency, many TETs available today lack usability in that they do not stringently reflect the needs of their users, which raises the question as to whether individual TETs fulfil their designated purpose.

The objective of this dissertation is to systematically apply principles pertaining to human-centred design to ascertain the qualities necessary to design TETs that facilitate transparency and advise means of intervenability with regard to the needs of their target audience. We classify the state of the art of usable TETs published in the literature and discuss the gaps therein. Contextualising our research in the domain of personal health tracking, we investigate to what extent customisation can help accommodate the needs of users of TETs. We introduce privacy notifications as a conceptual means to inform data subjects about facts worthy of their attention, and examine the immanent properties required to accomplish actual usability. We categorise the characteristics of privacy notifications in terms of what insight they convey, and how respective facts need to be presented to facilitate informed decision-making on the recipient's part. Based on findings obtained via quantitative and qualitative user studies, we elicit concomitant factors related to the parameterisation of privacy notifications. We present the prototypical implementation of TETs whose iterative evaluation provides us with a catalogue of design requirements that demonstrably reflect the needs of their users.

Ort, förlag, år, upplaga, sidor
Karlstads universitet, 2020. , s. 55
Serie
Karlstad University Studies, ISSN 1403-8099 ; 2020:28
Nyckelord [en]
General Data Protection Regulation (GDPR), Human-centred design, Human-computer interaction (HCI), Information privacy, Intervenability, Mobile health (mhealth), Personal health tracking, Privacy notification, Transparency, Transparency-enhancing tool (TET), Usability
Nationell ämneskategori
Datavetenskap (datalogi)
Forskningsämne
Datavetenskap
Identifikatorer
URN: urn:nbn:se:kau:diva-80075ISBN: 978-91-7867-144-1 (tryckt)ISBN: 978-91-7867-148-9 (digital)OAI: oai:DiVA.org:kau-80075DiVA, id: diva2:1464321
Disputation
2020-10-28, 21E415A, Sjökvistsalen, Karlstad, 09:00 (Engelska)
Opponent
Handledare
Anmärkning

Artikel 6 del av avhandlingen som manuskript, nu publicerad.

Tillgänglig från: 2020-10-07 Skapad: 2020-09-04 Senast uppdaterad: 2021-07-02Bibliografiskt granskad
Delarbeten
1. Tools for Achieving Usable Ex Post Transparency: A Survey
Öppna denna publikation i ny flik eller fönster >>Tools for Achieving Usable Ex Post Transparency: A Survey
2017 (Engelska)Ingår i: IEEE Access, E-ISSN 2169-3536, Vol. 5, s. 22965-22991Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Transparency of personal data processing is a basic privacy principle and a right that is well acknowledged by data protection legislation, such as the EU general data protection regulation (GDPR). The objective of ex post transparency enhancing tools (TETs) is to provide users with insight about what data have been processed about them and what possible consequences might arise after their data have been revealed, that is, ex post. This survey assesses the state of the art in scientific literature of the usability of ex post TETs enhancing privacy and discusses them in terms of their common features and unique characteristics. The article first defines the scope of usable transparency in terms of relevant privacy principles for providing transparency by taking the GDPR as a point of reference, and usability principles that are important for achieving transparency. These principles for usable transparency serve as a reference for classifying and assessing the surveyed TETs. The retrieval and screening process of the publications is then described, as is the process for deriving the subsequent classification of the characteristics of the TETs. The survey not only looks into what is made transparent by the TETs but also how transparency is actually achieved. A main contribution of this survey is a proposed classification that assesses the TETs based on their functionality, implementation and evaluation as described in the literature. It concludes by discussing the trends and limitations of the surveyed TETs in regard to the defined scope of usable TETs and shows possible directions of future research for addressing these gaps. This survey provides researchers and developers of privacy enhancing technologies an overview of the characteristics of state of the art ex post TETs, on which they can base their work.

Ort, förlag, år, upplaga, sidor
IEEE, 2017
Nyckelord
GDPR, HCI, privacy, transparency, usability, visualization
Nationell ämneskategori
Datavetenskap (datalogi)
Forskningsämne
Datavetenskap
Identifikatorer
urn:nbn:se:kau:diva-65290 (URN)10.1109/ACCESS.2017.2765539 (DOI)000415170200021 ()
Projekt
Privacy&Us
Forskningsfinansiär
EU, Horisont 2020
Tillgänglig från: 2017-11-29 Skapad: 2017-11-29 Senast uppdaterad: 2020-09-04Bibliografiskt granskad
2. Usable Transparency for Enhancing Privacy in Mobile Health Apps
Öppna denna publikation i ny flik eller fönster >>Usable Transparency for Enhancing Privacy in Mobile Health Apps
2018 (Engelska)Ingår i: Proceedings of the 20th International Conference on Human-Computer Interaction with Mobile Devices and Services Adjunct, New York, NY, USA: Association for Computing Machinery (ACM), 2018, s. 440-442Konferensbidrag, Muntlig presentation med publicerat abstract (Refereegranskat)
Abstract [en]

We report on our research on usable transparency in thecontext of mobile health (mhealth) tracking. Usable trans-parency refers to the usability of transparency-enhancingtools (TETs), which seek to aid users of online data ser-vices in improving their privacy. Focusing on fitness track-ing scenarios, our research addresses the conceptual andtechnical demands of such tools in terms of usability

Ort, förlag, år, upplaga, sidor
New York, NY, USA: Association for Computing Machinery (ACM), 2018
Nyckelord
privacy, transparency, notification, privacy persona, preferences
Nationell ämneskategori
Datavetenskap (datalogi)
Forskningsämne
Datavetenskap
Identifikatorer
urn:nbn:se:kau:diva-69468 (URN)10.1145/3236112.3236184 (DOI)978-1-4503-5941-2 (ISBN)
Konferens
MobileHCI 2018
Tillgänglig från: 2018-10-04 Skapad: 2018-10-04 Senast uppdaterad: 2022-06-29Bibliografiskt granskad
3. To Be, or Not to Be Notified: Eliciting Privacy Notification Preferences for Online mHealth Services
Öppna denna publikation i ny flik eller fönster >>To Be, or Not to Be Notified: Eliciting Privacy Notification Preferences for Online mHealth Services
2019 (Engelska)Ingår i: ICT Systems Security and Privacy Protection / [ed] Gurpreet Dhillon, Fredrik Karlsson, Karin Hedström, André Zúquete, Springer, 2019, Vol. 562, s. 209-222Konferensbidrag, Publicerat paper (Refereegranskat)
Abstract [en]

Millions of people are tracking and quantifying their fitness and health, and entrust online mobile health (mhealth) services with storing and processing their sensitive personal data. Ex post transparency-enhancing tools (TETs) enable users to keep track of how their personal data are processed, and represent important building blocks to understand privacy implications and control one’s online privacy. Particularly, privacy notifications provide users of TETs with the insight necessary to make informed decision about controlling their personal data that they have disclosed previously. To investigate the notification preferences of users of online mhealth services, we conducted an online study. We analysed how notification scenarios can be grouped contextually, and how user preferences with respect to being notified relate to intervenability. Moreover, we examined to what extent ex post notification preferences correlate with privacy personas established in the context of trust in and reliability of online data services. Based on our findings, we discuss the implications for the design of usable ex post TETs.

Ort, förlag, år, upplaga, sidor
Springer, 2019
Nyckelord
privacy, transparency-enhancing tool, usability, personas, mhealth
Nationell ämneskategori
Människa-datorinteraktion (interaktionsdesign) Annan data- och informationsvetenskap
Forskningsämne
Datavetenskap
Identifikatorer
urn:nbn:se:kau:diva-74439 (URN)10.1007/978-3-030-22312-0_15 (DOI)000560392300015 ()978-3-030-22312-0 (ISBN)
Konferens
34th IFIP TC 11 International Conference, SEC 2019, Lisbon, Portugal, June 25-27, 2019
Tillgänglig från: 2019-08-21 Skapad: 2019-08-21 Senast uppdaterad: 2020-09-16Bibliografiskt granskad
4. Reconciling the What, When and How of Privacy Notifications in mHealth
Öppna denna publikation i ny flik eller fönster >>Reconciling the What, When and How of Privacy Notifications in mHealth
(Engelska)Manuskript (preprint) (Övrigt vetenskapligt)
Abstract [en]

The increasing number of mobile health (mhealth) devices deployed worldwide poses challenges to the privacy of their users, especially in terms of transparency. Privacy notifications constitute a conceptual means to facilitate transparency by providing users with situational awareness pertaining to the processing of their personal data. We present the results of two online surveys with cohorts consisting of English-speaking (n = 154) and German-speaking (n = 150) users of mhealth devices, conducted to elicit viable determinants of notification settings. We found quantitative evidence for the usefulness of privacy notifications, and for concordant predictors in terms of when and how users prefer to be notified about what kind of scenario. We conclude by providing tangible design guidelines for usable Transparency-Enhancing Tools (TETs) that harness privacy notifications to facilitate transparency, and that help users make informed decisions and take action in response.

Nyckelord
Human-computer interaction (HCI), Mobile health (mhealth), Privacy notifications, User preferences, Transparency-enhancing tool (TET)
Nationell ämneskategori
Människa-datorinteraktion (interaktionsdesign) Datavetenskap (datalogi) Annan data- och informationsvetenskap
Forskningsämne
Datavetenskap
Identifikatorer
urn:nbn:se:kau:diva-80074 (URN)
Forskningsfinansiär
EU, Horisont 2020, 67573EU, Horisont 2020, 786767
Tillgänglig från: 2020-12-31 Skapad: 2020-09-04 Senast uppdaterad: 2020-10-07Bibliografiskt granskad
5. Eliciting Design Guidelines for Privacy Notifications in mHealth Environments
Öppna denna publikation i ny flik eller fönster >>Eliciting Design Guidelines for Privacy Notifications in mHealth Environments
2019 (Engelska)Ingår i: International Journal of Mobile Human Computer Interaction, ISSN 1942-390X, E-ISSN 1942-3918, Vol. 11, nr 4, s. 66-83Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

The possibilities of employing mobile health (mhealth) devices for the purpose of self-quantification and fitness tracking are increasing, yet few users of online mhealth services possess proven knowledge of how their personal data are processed once the data have been disclosed. Ex post transparency-enhancing tools (TETs) can provide such insight and guide users in making informed decisions with respect to intervening with the processing of their personal data. At present, however, there are no suitable guidelines that aid designers of TETs in implementing privacy notifications that reflect their recipients’ needs in terms of what they want to be notified about and the level of guidance required to audit their data effectively. Based on an analysis of gaps related to TETs, the findings of a study on privacy notification preferences, and the findings on notifications and privacy notices discussed in the literature, this paper proposes a set of guidelines for the human-centred design of privacy notifications that facilitate ex post transparency.

Ort, förlag, år, upplaga, sidor
IGI Global, 2019
Nyckelord
Data transparency, Human-Centred Design, Individualisation, Intervenability, Mobile Health (mHealth), Notification, Privacy, Transparency-Enhancing Tool (TET), Usability
Nationell ämneskategori
Människa-datorinteraktion (interaktionsdesign)
Forskningsämne
Datavetenskap
Identifikatorer
urn:nbn:se:kau:diva-71119 (URN)10.4018/IJMHCI.2019100106 (DOI)000501306200007 ()
Anmärkning

Artikeln ingick som manuskript i Murmanns (2019) licentiatuppsats Towards Usable Transparency via Individualisation.

Tillgänglig från: 2019-02-18 Skapad: 2019-02-18 Senast uppdaterad: 2020-09-04Bibliografiskt granskad
6. From Design Requirements to Effective Privacy Notifications: Empowering mHealth Users to Make Informed Decisions
Öppna denna publikation i ny flik eller fönster >>From Design Requirements to Effective Privacy Notifications: Empowering mHealth Users to Make Informed Decisions
2021 (Engelska)Ingår i: International Journal of Human-Computer Interaction, ISSN 1044-7318, E-ISSN 1532-7590, Vol. 37, nr 19, s. 1823-1848Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

To date, there are no satisfactory design requirements for privacy notifications, which constitute a conceptual means of informing users of online data services about how their personal data are processed and guide the decisions they make. Contextualising privacy notifications in the field of personal health tracking, we elicit a set of design requirements from the literature, implement a prototype, and conduct a qualitative, iterative lab study to evaluate the efficacy of the requirements immanent in the prototype. Our findings show that privacy notifications have the potential to facilitate usable transparency and intervenability in the ecosystem of mobile devices. The feedback obtained about the prototype lends itself to a refined set of design requirements presented in this paper. Implementing the principles of human-centred design, these requirements reflect building blocks that can help designers create usable tools that accommodate the needs of users of mobile health services.

Nyckelord
Design requirements, General Data Protection Regulation (GDPR), Human-centred design, Information privacy, Mobile computing, Mobile health (mhealth), Mobile phone, Personal health tracking, Privacy notifications, Rapid prototyping, Transparency-Enhancing Tool (TET)
Nationell ämneskategori
Mediateknik Datavetenskap (datalogi) Data- och informationsvetenskap Människa-datorinteraktion (interaktionsdesign)
Forskningsämne
Datavetenskap
Identifikatorer
urn:nbn:se:kau:diva-80073 (URN)10.1080/10447318.2021.1913859 (DOI)000660315800001 ()2-s2.0-85107811795 (Scopus ID)
Forskningsfinansiär
EU, Horisont 2020, 675730EU, Horisont 2020, 786767
Anmärkning

Article as manuscript in Murmann's doctoral thesis (2020): Information at Your Fingertips: Facilitating Usable Transparency via Privacy Notifications and in Karegar's doctoral thesis (2020): The Lord of Their Data Under the GDPR?: Empowering Users Through Usable Transparency, Intervenability, and Consent

Tillgänglig från: 2020-09-04 Skapad: 2020-09-04 Senast uppdaterad: 2022-05-16Bibliografiskt granskad
7. Opportunities and Challenges of Dynamic Consent in Commercial Big Data Analytics
Öppna denna publikation i ny flik eller fönster >>Opportunities and Challenges of Dynamic Consent in Commercial Big Data Analytics
2020 (Engelska)Ingår i: Privacy and Identity Management. Data for Better Living: AI and Privacy, Proceedings of the IFIP Summer School / [ed] M. Friedewald, M. Önen, E. Lievens, S. Krenn, and S. Fricker, Springer, 2020, s. 29-44Konferensbidrag, Publicerat paper (Refereegranskat)
Abstract [en]

In the context of big data analytics, the possibilities and demands of online data services may change rapidly, and with it change scenarios related to the processing of personal data. Such changes may pose challenges with respect to legal requirements such as a transparency and consent, and therefore call for novel methods to address the legal and conceptual issues that arise in its course. We define the concept of ‘dynamic consent’ as a means to meet the challenge of acquiring consent in a commercial use case that faces change with respect to re-purposing the processing of personal data with the goal to implement new data services. We present a prototypical implementation that facilitates incremental consent forms based on dynamic consent. We report the results gained via two focus groups which we used to evaluate our design, and derive from our findings implications for future directions.

Ort, förlag, år, upplaga, sidor
Springer, 2020
Nyckelord
Dynamic consent, EU General Data Protection Regulation (GDPR), Human-computer interaction (HCI), Notification, Re-purposing
Nationell ämneskategori
Datavetenskap (datalogi) Data- och informationsvetenskap Människa-datorinteraktion (interaktionsdesign) Juridik
Forskningsämne
Datavetenskap; Informatik; Rättsvetenskap
Identifikatorer
urn:nbn:se:kau:diva-77400 (URN)10.1007/978-3-030-42504-3_3 (DOI)2-s2.0-85082402828 (Scopus ID)978-3-030-42504-3 (ISBN)
Konferens
IFIP Summer School 2019
Tillgänglig från: 2020-04-02 Skapad: 2020-04-02 Senast uppdaterad: 2022-10-05Bibliografiskt granskad

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