Ändra sökning
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf
Quality of life and trust among young people with narcolepsy and their families, after the Pandemrix (R) vaccination: protocol for a case-control study
Örebro universitet.
Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för hälsovetenskaper (from 2013).
Örebro universitet.
Örebro universitet.
Visa övriga samt affilieringar
2017 (Engelska)Ingår i: BMC Pediatrics, ISSN 1471-2431, E-ISSN 1471-2431, Vol. 17, artikel-id 183Artikel i tidskrift (Refereegranskat) Published
Abstract [en]

Background: The extensive vaccination programme against swine flu resulted in an increased incidence of narcolepsy among children and adolescents. There is a need to explore if these young persons' experiences have affected their trust in healthcare, their willingness to participate in future prevention programmes, and their contacts with the healthcare system. The overall aim is to identify factors important for the life-situation of children and adolescents with narcolepsy and their families, and factors that correlate with trust in healthcare. Methods/design: Data will be collected via questionnaires from all available children with narcolepsy following the vaccination and their families, as well as a control group of children with diabetes and their families. Longitudinal descriptive interviews will also be conducted with a selection of 20-25 children and their families. Techniques from media research will be used for Internet-based data collection and analysis of information relating to narcolepsy from social media. Discussion: This project will use the situation of young persons with narcolepsy after the swine flu vaccination as a case to build a model that can be used in situations where trust in healthcare is essential. This model will be based on findings from the included studies on how trust is influenced by support, quality of life, burden of disease, impact on family, and use of social media. The model developed in this project will be beneficial in future situations where trust in healthcare is essential, such as new pandemic outbreaks but also for " everyday" adherence to health advice.

Ort, förlag, år, upplaga, sidor
BioMed Central, 2017. Vol. 17, artikel-id 183
Nationell ämneskategori
Omvårdnad
Forskningsämne
Omvårdnad
Identifikatorer
URN: urn:nbn:se:kau:diva-65835DOI: 10.1186/s12887-017-0935-4ISI: 000408327800002PubMedID: 28835221OAI: oai:DiVA.org:kau-65835DiVA, id: diva2:1177506
Tillgänglig från: 2018-01-25 Skapad: 2018-01-25 Senast uppdaterad: 2019-12-18Bibliografiskt granskad

Open Access i DiVA

fulltext(816 kB)23 nedladdningar
Filinformation
Filnamn FULLTEXT01.pdfFilstorlek 816 kBChecksumma SHA-512
aca94042063683261b4a5f2486e5c1371885d789089bad4606e0789a052428ad1fcb758d61fa22703ba1de6922a26ac1f886154f21c0a7234ce1cb4f24dcf698
Typ fulltextMimetyp application/pdf

Övriga länkar

Förlagets fulltextPubMed

Personposter BETA

Anderzen-Carlsson, Agneta

Sök vidare i DiVA

Av författaren/redaktören
Anderzen-Carlsson, AgnetaEriksson, Mats H.
Av organisationen
Institutionen för hälsovetenskaper (from 2013)
I samma tidskrift
BMC Pediatrics
Omvårdnad

Sök vidare utanför DiVA

GoogleGoogle Scholar
Totalt: 23 nedladdningar
Antalet nedladdningar är summan av nedladdningar för alla fulltexter. Det kan inkludera t.ex tidigare versioner som nu inte längre är tillgängliga.

doi
pubmed
urn-nbn

Altmetricpoäng

doi
pubmed
urn-nbn
Totalt: 80 träffar
RefereraExporteraLänk till posten
Permanent länk

Direktlänk
Referera
Referensformat
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Annat format
Fler format
Språk
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Annat språk
Fler språk
Utmatningsformat
  • html
  • text
  • asciidoc
  • rtf