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Usable Transparency for Enhancing Privacy in Mobile Health Apps
Karlstads universitet, Fakulteten för hälsa, natur- och teknikvetenskap (from 2013), Institutionen för matematik och datavetenskap (from 2013).
2018 (engelsk)Inngår i: Proceedings of the 20th International Conference on Human-Computer Interaction with Mobile Devices and Services Adjunct, New York, NY, USA: Association for Computing Machinery (ACM), 2018, s. 440-442Konferansepaper, Oral presentation with published abstract (Fagfellevurdert)
Abstract [en]

We report on our research on usable transparency in thecontext of mobile health (mhealth) tracking. Usable trans-parency refers to the usability of transparency-enhancingtools (TETs), which seek to aid users of online data ser-vices in improving their privacy. Focusing on fitness track-ing scenarios, our research addresses the conceptual andtechnical demands of such tools in terms of usability

sted, utgiver, år, opplag, sider
New York, NY, USA: Association for Computing Machinery (ACM), 2018. s. 440-442
Emneord [en]
privacy, transparency, notification, privacy persona, preferences
HSV kategori
Forskningsprogram
Datavetenskap
Identifikatorer
URN: urn:nbn:se:kau:diva-69468DOI: 10.1145/3236112.3236184ISBN: 978-1-4503-5941-2 (tryckt)OAI: oai:DiVA.org:kau-69468DiVA, id: diva2:1253172
Konferanse
MobileHCI 2018
Tilgjengelig fra: 2018-10-04 Laget: 2018-10-04 Sist oppdatert: 2022-06-29bibliografisk kontrollert
Inngår i avhandling
1. Towards Usable Transparency via Individualisation
Åpne denne publikasjonen i ny fane eller vindu >>Towards Usable Transparency via Individualisation
2019 (engelsk)Licentiatavhandling, med artikler (Annet vitenskapelig)
Abstract [en]

The General Data Protection Regulation grants data subjects the legal rights of transparency and intervenability. Ex post transparency provides users of data services with insight into how their personal data have been processed, and potentially clarifies what consequences will or may arise due to the processing of their data. Technological artefacts, ex post transparency-enhancing tools (TETs) convey such information to data subjects, provided the TETs are designed to suit the predisposition of their audience. Despite being a prerequisite for transparency, however, many of the TETs available to date lack usability in that their capabilities do not reflect the needs of their final users.

The objective of this thesis is therefore to systematically apply the concept of human-centred design to ascertain design principles that demonstrably lead to the implementation of a TET that facilitates ex post transparency and supports intervenability. To this end, we classify the state of the art of usable ex post TETs published in the literature and discuss the gaps therein. Contextualising our findings in the domain of fitness tracking, we investigate to what extent individualisation can help accommodate the needs of users of online mobile health services. We introduce the notion of privacy notifications as a means to inform data subjects about incidences worthy of their attention and examine how far privacy personas reflect the preferences of distinctive groups of recipients. We suggest a catalogue of design guidelines that can serve as a basis for specifying context-sensitive requirements for the implementation of a TET that leverages privacy notifications to facilitate ex post transparency, and which also serve as criteria for the evaluation of a future prototype.

sted, utgiver, år, opplag, sider
Karlstad: Karlstads universitet, 2019. s. 140
Serie
Karlstad University Studies, ISSN 1403-8099 ; 2019:8
Emneord
Data transparency, General Data Protection Regulation (GDPR), Human-centred design, Human-computer interaction (HCI), Information privacy, Intervenability, Mobile health (mhealth), Transparency-enhancing tool (TET), Usability
HSV kategori
Forskningsprogram
Datavetenskap
Identifikatorer
urn:nbn:se:kau:diva-71120 (URN)978-91-7867-003-1 (ISBN)978-91-7867-008-6 (ISBN)
Presentation
2019-05-23, 1B309, Karlstad university, Karlstad, 10:00 (engelsk)
Opponent
Veileder
Forskningsfinansiär
EU, Horizon 2020, 675730
Merknad

Paper 2 ingick som manuskript i avhandlingen, nu publicerad.

Tilgjengelig fra: 2019-05-02 Laget: 2019-02-28 Sist oppdatert: 2019-09-18bibliografisk kontrollert
2. Information at Your Fingertips: Facilitating Usable Transparency via Privacy Notifications
Åpne denne publikasjonen i ny fane eller vindu >>Information at Your Fingertips: Facilitating Usable Transparency via Privacy Notifications
2020 (engelsk)Doktoravhandling, med artikler (Annet vitenskapelig)
Abstract [en]

The General Data Protection Regulation stipulates legal rights of transparency and intervenability. Transparency provides data subjects with insight into how their personal data have been processed, clarifying what consequences will or may arise due to the processing of their data, whereas intervenability enables them to intervene in the process. Technological artefacts, transparency-enhancing tools (TETs) serve the purpose of conveying respective information precisely and intelligibily. However, despite being a prerequisite for transparency, many TETs available today lack usability in that they do not stringently reflect the needs of their users, which raises the question as to whether individual TETs fulfil their designated purpose.

The objective of this dissertation is to systematically apply principles pertaining to human-centred design to ascertain the qualities necessary to design TETs that facilitate transparency and advise means of intervenability with regard to the needs of their target audience. We classify the state of the art of usable TETs published in the literature and discuss the gaps therein. Contextualising our research in the domain of personal health tracking, we investigate to what extent customisation can help accommodate the needs of users of TETs. We introduce privacy notifications as a conceptual means to inform data subjects about facts worthy of their attention, and examine the immanent properties required to accomplish actual usability. We categorise the characteristics of privacy notifications in terms of what insight they convey, and how respective facts need to be presented to facilitate informed decision-making on the recipient's part. Based on findings obtained via quantitative and qualitative user studies, we elicit concomitant factors related to the parameterisation of privacy notifications. We present the prototypical implementation of TETs whose iterative evaluation provides us with a catalogue of design requirements that demonstrably reflect the needs of their users.

sted, utgiver, år, opplag, sider
Karlstads universitet, 2020. s. 55
Serie
Karlstad University Studies, ISSN 1403-8099 ; 2020:28
Emneord
General Data Protection Regulation (GDPR), Human-centred design, Human-computer interaction (HCI), Information privacy, Intervenability, Mobile health (mhealth), Personal health tracking, Privacy notification, Transparency, Transparency-enhancing tool (TET), Usability
HSV kategori
Forskningsprogram
Datavetenskap
Identifikatorer
urn:nbn:se:kau:diva-80075 (URN)978-91-7867-144-1 (ISBN)978-91-7867-148-9 (ISBN)
Disputas
2020-10-28, 21E415A, Sjökvistsalen, Karlstad, 09:00 (engelsk)
Opponent
Veileder
Merknad

Artikel 6 del av avhandlingen som manuskript, nu publicerad.

Tilgjengelig fra: 2020-10-07 Laget: 2020-09-04 Sist oppdatert: 2021-07-02bibliografisk kontrollert

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