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Olsson, C., Larsson, M., Kling, E. & Grundel, K. (2019). Impact of the Liverpool Care Pathway on quality end of life care inresidential care homes and home care – nurses’ perceptions. Nursing Open, 1-11
Open this publication in new window or tab >>Impact of the Liverpool Care Pathway on quality end of life care inresidential care homes and home care – nurses’ perceptions
2019 (English)In: Nursing Open, E-ISSN 2054-1058, p. 1-11Article in journal (Refereed) Published
Abstract [en]

Aim was to describe how Registered Nurses (RNs) and assistant nurses (ANs) working in residential care homes and home care perceived quality end‐of‐life care after implementation of the Liverpool Care Pathway (LCP) in terms of subjective importance of care aspects and actual care given.

Descriptive cross‐sectional.MethodsRegistered Nurses (N = 22; 100% response rate) and ANs (N = 120; 59% response rate) working in a Swedish municipality. Data collection with a study‐specific questionnaire (50 items) about perceived reality (PR) and subjective importance (SI). Non‐parametric statistics.

Results:Implementation of the LCP ensured systematic assessment and alleviation of patients' symptoms and needs. The ANs, more than the RNs, perceived that the patients received the best possible nursing and medical care (p = .01). Both groups considered that communication with patients and families as well as the information exchange between the team members was facilitated. Areas for improvement were identified about psychological and existential support and patients and families' participation in care.

Place, publisher, year, edition, pages
Wiley online, 2019
National Category
Nursing
Identifiers
urn:nbn:se:kau:diva-74778 (URN)10.1002/nop2.364 (DOI)000501378000034 ()
Available from: 2019-09-17 Created: 2019-09-17 Last updated: 2020-01-09Bibliographically approved
Charalambous, A., Wells, M., Campbell, P., Torrens, C., Östlund, U., Oldenmenger, W., . . . Kelly, D. (2018). A scoping review of trials of interventions led or delivered by cancer nurses. International Journal of Nursing Studies, 86, 36-43
Open this publication in new window or tab >>A scoping review of trials of interventions led or delivered by cancer nurses
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2018 (English)In: International Journal of Nursing Studies, ISSN 0020-7489, E-ISSN 1873-491X, Vol. 86, p. 36-43Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Advances in research and technology coupled with an increased cancer incidence and prevalence have resulted in significant expansion of cancer nurse role, in order to meet the growing demands and expectations of people affected by cancer (PABC). Cancer nurses are also tasked with delivering an increasing number of complex interventions as a result of ongoing clinical trials in cancer research. However much of this innovation is undocumented, and we have little insight about the nature of novel interventions currently being designed or delivered by cancer nurses.

OBJECTIVES: To identify and synthesise the available evidence from clinical trials on interventions delivered or facilitated by cancer nurses.

DATA SOURCES AND REVIEW METHODS: A systematic review of randomised controlled trials (RCT), quasi-RCTs and controlled before and after studies (CBA) of cancer nursing interventions aimed at improving the experience and outcomes of PABC. Ten electronic databases (CENTRAL, MEDLINE, AMED, CINAHL, EMBASE, Epistemonikos, CDSR, DARE, HTA, WHO ICTRP) were searched between 01 January 2000 and 31 May 2016. No language restrictions were applied. Bibliographies of selected studies and relevant Cochrane reviews were also hand-searched. Interventions delivered by cancer nurses were classified according to the OMAHA System. Heat maps were used to highlight the volume of evidence available for different cancer groups, intervention types and stage of cancer care continuum.

RESULTS: The search identified 22,450 records; we screened 16,169 abstracts and considered 925 full papers, of which 214 studies (247,550 participants) were included in the evidence synthesis. The majority of studies were conducted in Europe (n = 79) and USA (n = 74). Interventions were delivered across the cancer continuum from prevention and risk reduction to survivorship, with the majority of interventions delivered during the treatment phase (n = 137). Most studies (131/214) had a teaching, guidance or counselling component. Cancer nurse interventions were targeted at primarily breast, prostate or multiple cancers. No studies were conducted in brain, sarcoma or other rare cancer types. The majority of the studies (n = 153) were nurse-led and delivered by specialist cancer nurses (n = 74) or advanced cancer nurses (n = 29), although the quality of reporting was poor.

CONCLUSIONS: To the best of our knowledge, this is the first review to synthesise evidence from intervention studies across the entire cancer spectrum. As such, this work provides new insights into the nature of the contribution that cancer nurses have made to evidence-based innovations, as well as highlighting areas in which cancer nursing trials can be developed in the future.

Place, publisher, year, edition, pages
Elsevier, 2018
Keywords
Cancer care, Clinical trials, Interventions, Nursing
National Category
Health Sciences
Research subject
Nursing Science; Nursing Science
Identifiers
urn:nbn:se:kau:diva-68625 (URN)10.1016/j.ijnurstu.2018.05.014 (DOI)000449129300006 ()29960894 (PubMedID)
Available from: 2018-07-27 Created: 2018-07-27 Last updated: 2018-11-23Bibliographically approved
Larsson, M., Hwa Lee, S., Wilde-Larsson, B., Olsson, C., Bjuresäter, K., Hov, R., . . . Kennedy, C. (2018). Family carers’ preferences for support when caring for a family member at the end of life at home: An integrative literature review. Paper presented at 22nd International Congress on Palliative Care, Montreal, CANADA,OCT 02-05, 2018. Journal of Pain and Symptom Management, 56(6), e59, Article ID CRD42016037839.
Open this publication in new window or tab >>Family carers’ preferences for support when caring for a family member at the end of life at home: An integrative literature review
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2018 (English)In: Journal of Pain and Symptom Management, ISSN 0885-3924, E-ISSN 1873-6513, Vol. 56, no 6, p. e59-, article id CRD42016037839Article in journal, Meeting abstract (Refereed) Published
Place, publisher, year, edition, pages
Elsevier, 2018
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-46195 (URN)10.1016/j.jpainsymman.2018.10.326 (DOI)000451633700158 ()
Conference
22nd International Congress on Palliative Care, Montreal, CANADA,OCT 02-05, 2018
Available from: 2016-09-15 Created: 2016-09-15 Last updated: 2019-11-09Bibliographically approved
Henoch, I., Olsson, C., Larsson, M. & Ahlberg, K. (2018). Symptom dimensions as outcomes in interventions for patients with cancer: A systematic review. Oncology Nursing Forum, 45(2), 237-249
Open this publication in new window or tab >>Symptom dimensions as outcomes in interventions for patients with cancer: A systematic review
2018 (English)In: Oncology Nursing Forum, ISSN 0190-535X, E-ISSN 1538-0688, Vol. 45, no 2, p. 237-249Article in journal (Refereed) Published
Abstract [en]

PROBLEM IDENTIFICATION: Symptom experience in patients with cancer consists of several dimensions, often measured descriptively within various populations but seldom used as intervention outcomes. This review aims at describing symptom dimensions as outcomes of interventions designed to alleviate symptoms in patients with cancer and to describe these interventions' effects on at least two symptom dimensions. LITERATURE SEARCH: The PRISMA statement for reporting systematic reviews was used. Searches were undertaken in various indexing sites. DATA EVALUATION: Extracted data included design, participants, intervention and control group treatment, targeted symptom dimension, and summary of results. SYNTHESIS: 2,041 articles were identified and 15 were included. The symptom dimensions were intensity, distress, prevalence, frequency, consequences, and quality. Eleven interventions had significant effect on symptom dimensions, mostly on intensity and distress. IMPLICATIONS FOR PRACTICE: Oncology nurses need clinical skills to be able to understand patients' experiences through their narratives. Various interventions are targeted at symptoms, and these need to be implemented to provide evidence-based symptom management.

Place, publisher, year, edition, pages
Oncology Nursing Society, 2018
Keywords
Patients with cancer, Symptom dimensions, Symptom distress, Symptom experience, Symptom intensity
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-66662 (URN)10.1188/18.ONF.237-249 (DOI)000459359400595 ()29466345 (PubMedID)2-s2.0-85042433293 (Scopus ID)
Available from: 2018-03-13 Created: 2018-03-13 Last updated: 2019-11-08Bibliographically approved
Olsson, C., Björk, M. & Ringnér, A. (2018). The Pediatric Inventory for Parents: Swedish Translation and Psychometric Testing. Journal of Pediatric Nursing: Nursing Care of Children and Families, 42, E97-E102
Open this publication in new window or tab >>The Pediatric Inventory for Parents: Swedish Translation and Psychometric Testing
2018 (English)In: Journal of Pediatric Nursing: Nursing Care of Children and Families, ISSN 0882-5963, E-ISSN 1532-8449, Vol. 42, p. E97-E102Article in journal (Refereed) Published
Abstract [en]

The Pediatric Inventory for Parents (PIP) measures parental stress related to caring for a child with an illness. However, no Swedish translation is available. Purpose: This study reports a Swedish translation of the PIP and psychometric properties of the instrument. Design and Methods: This is a descriptive/methodological paper. The PIP was translated and culturally adapted to Swedish, and comprehensibility was tested. Data were collected twice from 48 parents of children with different illnesses, and initial psychometric properties of the instrument were examined. The IES-R (Impact of Event Scale-Revised) was used for concurrent validity. Results: The Swedish version of the PIP demonstrated good correlations with the IES-R, and temporal changes were similar. Endorsement frequencies and test-retest were also satisfactory. When comparing groups of parents, the parents of children with cancer were statistically significantly more distressed, both on total score and for emotional distress and role function. Discriminative validity was demonstrated by comparing parents of children with cancer with parents of children with other diseases. Conclusions: The Swedish version of the PIP seems to be a valid and reliable instrument. However, as we used relatively small sample, for the future, we suggest further testing with larger samples. Practice Implications: Clinicians and researchers seeking to measure parental distress in chronic illness could use the Swedish version of the PIP. 

Place, publisher, year, edition, pages
Saunders Elsevier, 2018
Keywords
chronic illness, instrument translation, parental stress, psychometric testing, Swedish
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-67106 (URN)10.1016/j.pedn.2018.02.013 (DOI)000444524700015 ()2-s2.0-85044938227 (Scopus ID)
Available from: 2018-04-20 Created: 2018-04-20 Last updated: 2018-09-27Bibliographically approved
Olsson, C., Sandin-Bojö, A.-K., Bjuresäter, K. & Larsson, M. (2016). Changes in Sexuality, Body Image and Health Related Quality of Life in Patients Treated for Hematologic Malignancies: A Longitudinal Study. Sexuality and disability, 34(4), 367-388
Open this publication in new window or tab >>Changes in Sexuality, Body Image and Health Related Quality of Life in Patients Treated for Hematologic Malignancies: A Longitudinal Study
2016 (English)In: Sexuality and disability, ISSN 0146-1044, E-ISSN 1573-6717, Vol. 34, no 4, p. 367-388Article in journal (Refereed) Published
Abstract [en]

Longitudinal studies exploring sexuality, body image and health-related quality of life (HRQoL) are lacking in patients treated with chemo- or chemoimmuno-therapy for hematologic malignancies. The aim was to describe and explore changes in sexuality, body image and HRQoL in patients treated for hematologic malignancies, from baseline until 6 months after treatment. Twenty patients above 45 years (median age 62) treated for DLBCL, CLL or AML participated. Data were collected at baseline, 1- and 6-months after treatment by means of three instruments: SAQ-S, BIS and EORTC QLQ-C30. The results showed that patients' sexuality was negatively affected 1 month after treatment, but after 6 months the patient reported scores had returned almost entirely to baseline scores. Body image was slight negatively affected after 1 month and after 6 months, 50 % reported that body image was not affected at all. Regarding HRQoL, patients reported gradually improved scores during the study period. Regression analysis showed that changes in sexuality and body image seemed to influence changes in HRQoL. This study has shown changes in sexuality, body image and HRQoL over time in patients above age 45 treated for hematologic malignancies. One month after treatment all three areas becomes negatively affected, and thereafter the patients' scores recovered to a great extent regarding these issues within 6 months. Sexuality and body image seem to be important aspects of HRQoL for these patients and need to be integrated in the cancer rehabilitation during and after treatment.

Place, publisher, year, edition, pages
New York: Springer, 2016
Keywords
Body image, Chemoimmunotherapy, Health related quality of life, Hematologic malignancies, Longitudinal study, Sexuality
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-63886 (URN)10.1007/s11195-016-9459-3 (DOI)000393330700002 ()27881887 (PubMedID)
Available from: 2017-09-21 Created: 2017-09-21 Last updated: 2019-12-02Bibliographically approved
Kling, E., Larsson, M., Grundel, K. & Olsson, C. (2016). Säker och bättre vård vid livets slut: Erfarenheter av Liverpool Care Pathway i Arvika kommun. In: : . Paper presented at Den 4:e nationella konferensen i Palliativ vård, Malmö 15-16 mars 2016..
Open this publication in new window or tab >>Säker och bättre vård vid livets slut: Erfarenheter av Liverpool Care Pathway i Arvika kommun
2016 (Swedish)Conference paper, Poster (with or without abstract) (Refereed)
Abstract [sv]

Säker och bättre vård vid livets slut – Erfarenheter av Liverpool Care Pathway i Arvika kommun

Bakgrund: Liverpool Care Pathway (LCP) är en standardvårdplan som syftar till att säkerställa en god vård vid livets slutskede oavsett vårdform. Genom bedömning av centrala behov och symtom, tydliga mål, samt utvärdering av given vård innebär LCP en struktur för att kvalitetssäkra vården. I en strävan efter en god vård i livets slut för alla har användningen av LCP blivit alltmer utbredd, men trots detta är den utvärderad i begränsad omfattning. Mot denna bakgrund, samt att LCP under de senaste åren ifrågasatts är det angeläget att studera effekter av LCP på kvaliteten av vården i livets slutskede.

 

Syfte: var att undersöka hur sjuksköterskor och omvårdnadspersonal i kommunal vård uppfattade att vården i livets slutskede påverkades efter införandet av LCP, samt vilken betydelse de anser att LCP fått för vården i livets slutskede.

 

Metod: Deskriptiv tvärsnittsstudie med kvantitativ ansats. Data samlades in mellan januari och juni 2014 med en studiespecifik enkät (50 frågor) med utgångspunkt i LCP. Tjugotvå sjuksköterskor och 120 omvårdnadspersonal (svarsfrekvens 63 %) verksamma på en korttidsavdelning, fem särskilda boende och inom fyra hemtjänstgrupper deltog. Icke parametrisk statistik användes för att testa skillnader inom- och mellan grupper.

 

Resultat: Både sjuksköterskor och omvårdnadspersonal ansåg att implementering av LCP inneburit att vårdens kvalitet i livet slut förbättrats. Omvårdnadspersonalen uppfattade att införandet av LCP innebar att patienterna erhöll bästa möjliga omvårdnad och medicinska vård i högre grad än sjuksköterskorna (p=.011). Att arbeta enligt LCP när patienten var döende innebar en vård som uppfattades både säker och av hög kvalitet av båda personalkategorierna. Vidare uppfattades LCP underlätta bedömning av patienternas symtom och behov, samt underlätta kommunikation och överföring av information mellan olika personalkategorier.

 

Slutsats: Att vårda patienter i livets slut i kommunal vård innebär en stor utmaning för både omvårdnadspersonal och sjuksköterskor. Genom att strukturera och systematisera vården vid livets slut med LCP säkerställs bedömning av patienters symtom och behov, bemötande av patienter och närstående samt kommunikation inom teamet. Parametrar som är betydelsefulla för en säker och god vård.

National Category
Health Sciences Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-46162 (URN)
Conference
Den 4:e nationella konferensen i Palliativ vård, Malmö 15-16 mars 2016.
Available from: 2016-09-15 Created: 2016-09-15 Last updated: 2019-09-26Bibliographically approved
Olsson, C., Sandin-Bojö, A.-K., Bjuresäter, K. & Larsson, M. (2015). Affected sexuality, body image and health related quality of life in patients treated for hematologic malignancies - a one year follow-up. European Journal of Cancer, 51, S252
Open this publication in new window or tab >>Affected sexuality, body image and health related quality of life in patients treated for hematologic malignancies - a one year follow-up
2015 (English)In: European Journal of Cancer, ISSN 0959-8049, E-ISSN 1879-0852, Vol. 51, p. S252-Article in journal, Meeting abstract (Refereed) Published
Abstract [en]

Background: Longitudinal studies examining sexuality, body image and health-related quality of life (HRQoL) in middle-aged and elderly patients treated with chemotherapy or chemoimmunotherapy for hematologic malignancies are lacking. The aim of this study was to describe and explore changes in sexuality, body image and HRQoL in patients treated

for hematologic malignancies, from baseline until twelve months after treatment.

Material and Methods: Patients above 45 years treated for Diffuse large B-cell Lymphoma (DLBCL), Chronic Lymphocytic Leukemia (CLL) or Acute Myeloid Leukemia (AML). Data were collected at baseline (n = 32), one (n = 25), six (n = 20) and 12 months (n = 19) after treatment by means of three instruments: The Sexual Adjustment Questionnaire (SAQ), The

Body Image Scale (BIS) and The European Organization for Research and Treatment of Cancer Quality of Life questionnaires (EORTC QLQ-C30, version 3). Descriptive- and non-parametric statistics were used.

Results: One month after treatment scores were lowered regarding sexual interest (P = 0.005), sexual function (P = 0.031), sexual satisfaction (P = 0.016, P = 0.004) and sexual relationship. After six months the patient reported scores had returned almost entirely to baseline scores, except for sexual relationship. At 12 months, sexual relationship was still negatively affected. Body image was reported to be affected in a low extent during

the study period. After six and 12 months, body image was reported to not be affected at all by 50% and 53%, respectively. However, women reported body-image to be more affected than men at one (P = 0.01) and 12 months (p = 0.021). Regarding HRQoL, patients reported gradually statistically significant improved scores during the study period.

Conclusion: In this study, sexuality, body image and HRQoL became negatively affected in patients with hematologic malignancies 45 years and older during treatment. Improvements were gradually seen after treatment, but the scores regarding sexual relationship were still affected after one year. Although sexual interest was reported to be low this finding highlights the need of support to these patients regarding sexuality during follow-up care. Furthermore, body image was more affected in women than in men indicating that interventions should be adjusted for sex. This was a small study and future studies with larger sample are needed.

Place, publisher, year, edition, pages
Elsevier, 2015
Keywords
Sexuality, body image, healt realted quality of life, cancer patients, hematologic malignancies
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-46155 (URN)10.1016/S0959-8049(16)30727-4 (DOI)000361887401135 ()
Available from: 2016-09-15 Created: 2016-09-15 Last updated: 2019-09-26Bibliographically approved
Olsson, C. (2015). Cancer patients sexuality during and after treatment: cancer nurses responsibility. In: Quality of life - rehabilitation. FSK Landskonference 2015, 24–25 juni, Bella Center, Copenhagen, Denmark.: . Paper presented at Landsconferense - Fagligt Selskab for Kræftsygeplejersker, Denmark. (Invited Speaker).
Open this publication in new window or tab >>Cancer patients sexuality during and after treatment: cancer nurses responsibility
2015 (English)In: Quality of life - rehabilitation. FSK Landskonference 2015, 24–25 juni, Bella Center, Copenhagen, Denmark., 2015Conference paper, Oral presentation only (Other academic)
Keywords
cancer patients, sexuality
National Category
Health Sciences Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-46157 (URN)
Conference
Landsconferense - Fagligt Selskab for Kræftsygeplejersker, Denmark. (Invited Speaker)
Available from: 2016-09-15 Created: 2016-09-15 Last updated: 2019-06-10Bibliographically approved
Olsson, C., Sandin-Bojö, A.-K., Bjuresäter, K. & Larsson, M. (2015). Patients Treated for Hematologic Malignancies: Affected Sexuality and Health Related Quality of Life. Cancer Nursing, 38(2), 99-110
Open this publication in new window or tab >>Patients Treated for Hematologic Malignancies: Affected Sexuality and Health Related Quality of Life
2015 (English)In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 38, no 2, p. 99-110Article in journal (Refereed) Published
Abstract [en]

Background: Sexuality in relation to Health- Related Quality of Life (HRQoL) is mostly studied with younger patients as participants who have undergone bone marrow transplantation and concerns fertility and/or sexual function. However, patients with hematologic malignancies such as DLBCL, CLL or AML most often are above their fifties and are treated with chemo- or chemoimmunotherapy.

Objective: The aim was to examine how sexuality and HRQoL was affected in patients with hematologic malignancies, at baseline compared to one month after chemo- or chemoimmunotherapy.

Methods:  Data were collected twice with a longitudinal design, using The Sexual Adjustment Questionnaire - S and EORTC QLQ C30.

Results:  Thirty-two patients responded. The importance of sexuality, sexual desire and sexual ability decreased one month after treatment and distressing symptoms such as feelings of tiredness occurred more frequently, compared to baseline. At the same time improvement in Global health status/QoL as well as affected functions in HRQoL was reported.

Conclusion:

The findings are of significance for nurses in cancer care as it highlights that sexuality and HRQoL needs to be considered also in older patients with hematologic malignancies when fertility issues are of less importance. 

Implication for practice:

In order to meet these patients’ needs regarding sexuality and HRQoL the care must provide greater consistency and continuity. One way is to organize the care in a patient-centered way where patients continuously meet a nurse guided by the idea of holistic individual nursing care throughout the care trajectory.

Place, publisher, year, edition, pages
Wolters Kluwer, 2015
Keywords
cancer patients, hematologic malignancies, longitudinal study, nursing, sexuality, sexual activity, sexual function, sexual interest, health related quality of life
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-31824 (URN)10.1097/NCC.0000000000000141 (DOI)000349907900010 ()25692735 (PubMedID)
Available from: 2014-04-02 Created: 2014-04-02 Last updated: 2017-12-05Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-0944-5650

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