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Bjuresäter, K., Larsson, M. & Athlin, E. (2015). Patients’ experiences of home enteral tube feeding (HETF): a qualitative study. Journal of research in nursing, 20(7), 552-565
Open this publication in new window or tab >>Patients’ experiences of home enteral tube feeding (HETF): a qualitative study
2015 (English)In: Journal of research in nursing, ISSN 1744-9871, Vol. 20, no 7, p. 552-565Article in journal (Refereed) Published
Place, publisher, year, edition, pages
Sage Publications, 2015
Keywords
tube feeding; home enteral tube feeding; patients; daily life; home care; grounded theory
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-6414 (URN)10.1177/1744987114568655 (DOI)000365712900005 ()
Note

Arikeln ingår i avhandlingen"Home enteral tube feeding : from patients, relatives and nurses perspectives" men var då bara publicerad som manuskript med titeln

Management of restrictions and distress – patients’ perspective on home enteral tube feeding

Available from: 2010-09-28 Created: 2010-09-28 Last updated: 2017-08-08Bibliographically approved
Olsson, C., Sandin-Bojö, A.-K., Bjuresäter, K. & Larsson, M. (2015). Patients Treated for Hematologic Malignancies: Affected Sexuality and Health Related Quality of Life. Cancer Nursing, 38(2), 99-110
Open this publication in new window or tab >>Patients Treated for Hematologic Malignancies: Affected Sexuality and Health Related Quality of Life
2015 (English)In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 38, no 2, p. 99-110Article in journal (Refereed) Published
Abstract [en]

Background: Sexuality in relation to Health- Related Quality of Life (HRQoL) is mostly studied with younger patients as participants who have undergone bone marrow transplantation and concerns fertility and/or sexual function. However, patients with hematologic malignancies such as DLBCL, CLL or AML most often are above their fifties and are treated with chemo- or chemoimmunotherapy.

Objective: The aim was to examine how sexuality and HRQoL was affected in patients with hematologic malignancies, at baseline compared to one month after chemo- or chemoimmunotherapy.

Methods:  Data were collected twice with a longitudinal design, using The Sexual Adjustment Questionnaire - S and EORTC QLQ C30.

Results:  Thirty-two patients responded. The importance of sexuality, sexual desire and sexual ability decreased one month after treatment and distressing symptoms such as feelings of tiredness occurred more frequently, compared to baseline. At the same time improvement in Global health status/QoL as well as affected functions in HRQoL was reported.

Conclusion:

The findings are of significance for nurses in cancer care as it highlights that sexuality and HRQoL needs to be considered also in older patients with hematologic malignancies when fertility issues are of less importance. 

Implication for practice:

In order to meet these patients’ needs regarding sexuality and HRQoL the care must provide greater consistency and continuity. One way is to organize the care in a patient-centered way where patients continuously meet a nurse guided by the idea of holistic individual nursing care throughout the care trajectory.

Place, publisher, year, edition, pages
Wolters Kluwer, 2015
Keywords
cancer patients, hematologic malignancies, longitudinal study, nursing, sexuality, sexual activity, sexual function, sexual interest, health related quality of life
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-31824 (URN)10.1097/NCC.0000000000000141 (DOI)000349907900010 ()25692735 (PubMedID)
Available from: 2014-04-02 Created: 2014-04-02 Last updated: 2017-12-05Bibliographically approved
Bjuresäter, K., Larsson, M., Athlin, E. & Nordström, G. (2014). Patients Living with Home Enteral Tube Feeding: Side effects, health-related quality of life and nutritional care. Clinical Nursing Studies, 2(3), 64-75
Open this publication in new window or tab >>Patients Living with Home Enteral Tube Feeding: Side effects, health-related quality of life and nutritional care
2014 (English)In: Clinical Nursing Studies, ISSN 2324-7940, Vol. 2, no 3, p. 64-75Article in journal (Refereed) Published
Abstract [en]

The aim of the study was to examine patients’ perceptions of side effects, health-related quality of life (HRQL), generalhealth, and nutritional care among patients receiving home enteral tube feeding (HETF) at two occasions after dischargefrom hospital. Three questionnaires, one study-specific, the Short Form 12 (SF-12) and the Health Index (HI), were sent topatients with HETF (n=62) twice, two weeks after discharge from hospital and two months later. Forty patients respondedtwo weeks after discharge and out of these 29 patients also responded after two months. Data were collected in centralSweden from March 2006 to January 2010. Side effects were common at both points of data collection (70% of thepatients after two weeks and 72% after two month). Patients using bolus feeding reported significantly fewer side effectsthan patients using intermittent feeding. HRQL and HI scores for the total group were low at both points of data collection.The bolus feeding group reported significantly higher physical HRQL and emotional HI than the intermittent feedinggroup did. Most patients were satisfied with the information and support they received from the health care team. Thisstudy has revealed that patients treated with HETF experienced side effects limiting their daily life to a great extent.Differences in HRQL related to feeding methods were found. Individualized support and regular controls are needed inorder to meet patient needs. Bolus feeding may be a suitable feeding method to improve well-being.

Keywords
Home enteral tube feeding, Side effects, Health-related quality of life, General health, Bolus feeding
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-6415 (URN)10.5430/cns.v2n3p64 (DOI)
Note

This article was published as manuscript at the time of the PhD defense.  

Available from: 2010-09-28 Created: 2010-09-28 Last updated: 2016-10-13Bibliographically approved
Bjuresäter, K. & Persenius, M. (2012). Omvårdnad i samband med nutrition. In: Lillemor Lindvall (Ed.), Omvårdnad vid kirurgiska sjukdomar: (pp. 251-262). Lund
Open this publication in new window or tab >>Omvårdnad i samband med nutrition
2012 (Swedish)In: Omvårdnad vid kirurgiska sjukdomar / [ed] Lillemor Lindvall, Lund, 2012, p. 251-262Chapter in book (Other (popular science, discussion, etc.))
Place, publisher, year, edition, pages
Lund: , 2012
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-14576 (URN)978-91-44-06060-6 (ISBN)
Available from: 2012-08-27 Created: 2012-08-27 Last updated: 2017-10-31Bibliographically approved
Bjuresäter, K., Larsson, M. & Athlin, E. (2012). Struggling in an inescapable life situation: being a close relative of a person dependent on home enteral tube feeding. Journal of Clinical Nursing, 21(7-8), 1051-1059
Open this publication in new window or tab >>Struggling in an inescapable life situation: being a close relative of a person dependent on home enteral tube feeding
2012 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 21, no 7-8, p. 1051-1059Article in journal (Refereed) Published
Abstract [en]

Aim. To explore what it means to be a close relative of a person dependent on home enteral tube feeding (HETF) and how they can manage this situation. Background. Previous studies have shown that the situation of close relatives in home care in general can be burdensome and difficult. Research is scarce about experiences of close relatives when patients are treated with HETF. Design. A qualitative design was used, in accordance with grounded theory ( GT). Methods. Twelve close relatives were interviewed twice, using open- ended questions. Five were relatives of patients supported by home care services or advanced home care teams. Using the GT method, sampling, data collection and data analysis were carried out simultaneously. Results. One core category, ` Struggling in an inescapable life situation' and eight categories were found. The situation led to involuntary changes in the lives of the close relatives, something they could do little about. Their lives had become completely upturned and restricted by the HETF. Togetherness and pleasure was lost and they felt lonely. The relatives faced a new role of being informal caregivers and they had to adjust their daily life accordingly. They felt forced to take on a heavy responsibility for which they lacked support. The close relatives struggled to manage and to make the best of their new situation. Conclusions. This study highlighted the demands and vulnerability which is embedded in the role of being a close relative of a patient with HETF. It also pointed out their need for comprehensive support from the health care system.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2012
Keywords
grounded theory; home care; home enteral tube feeding; informal caregiver; relatives; tube feeding
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-6416 (URN)10.1111/j.1365-2702.2010.03596.x (DOI)000301427600018 ()
Available from: 2010-09-28 Created: 2010-09-28 Last updated: 2017-12-12Bibliographically approved
Larsson, M. & Bjuresater, K. (2011). A Supportive Nursing Care Clinic for Patients With Head and Neck Cancer: Effects on Nutritional Status and Health Related Quality of Life. Paper presented at European Multidisciplinary Cancer Congress on Integrating Basic and Translational Science, Surgery, Radiotherapy, Medical oncology, Advocacy and Care, SEP 23-27, 2011, Stockholm, SWEDEN. European Journal of Cancer, 47, S325-S326
Open this publication in new window or tab >>A Supportive Nursing Care Clinic for Patients With Head and Neck Cancer: Effects on Nutritional Status and Health Related Quality of Life
2011 (English)In: European Journal of Cancer, ISSN 0959-8049, E-ISSN 1879-0852, Vol. 47, p. S325-S326Article in journal, Meeting abstract (Other academic) Published
Place, publisher, year, edition, pages
Elsevier, 2011
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-44569 (URN)000295752801154 ()
Conference
European Multidisciplinary Cancer Congress on Integrating Basic and Translational Science, Surgery, Radiotherapy, Medical oncology, Advocacy and Care, SEP 23-27, 2011, Stockholm, SWEDEN
Available from: 2016-08-09 Created: 2016-08-09 Last updated: 2017-11-28Bibliographically approved
Larsson, M. & Bjuresater, K. (2011). A Supportive Nursing Care Clinic for Patients With Head and Neck Cancer: Effects on Nutritional Status, Nutritional Treatment and Admissions to Hospital. Paper presented at European Multidisciplinary Cancer Congress on Integrating Basic and Translational Science, Surgery, Radiotherapy, Medical oncology, Advocacy and Care, SEP 23-27, 2011, Stockholm, SWEDEN. European Journal of Cancer, 47, S298-S298
Open this publication in new window or tab >>A Supportive Nursing Care Clinic for Patients With Head and Neck Cancer: Effects on Nutritional Status, Nutritional Treatment and Admissions to Hospital
2011 (English)In: European Journal of Cancer, ISSN 0959-8049, E-ISSN 1879-0852, Vol. 47, p. S298-S298Article in journal, Meeting abstract (Other academic) Published
Place, publisher, year, edition, pages
Elsevier, 2011
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-40606 (URN)000295752801056 ()
Conference
European Multidisciplinary Cancer Congress on Integrating Basic and Translational Science, Surgery, Radiotherapy, Medical oncology, Advocacy and Care, SEP 23-27, 2011, Stockholm, SWEDEN
Available from: 2016-02-22 Created: 2016-02-22 Last updated: 2017-11-30Bibliographically approved
Larsson, M. & Bjuresäter, K. (2011). A supportive nursing care clinic for patients with head and neck cancer: effects on nutritional status, nutritional treatment and admissions to hospital. In: The 2011 Eoropean Multidisciplinary Cancer Congress. Paper presented at ECCO 16.
Open this publication in new window or tab >>A supportive nursing care clinic for patients with head and neck cancer: effects on nutritional status, nutritional treatment and admissions to hospital
2011 (English)In: The 2011 Eoropean Multidisciplinary Cancer Congress, 2011Conference paper, Published paper (Refereed)
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-12779 (URN)
Conference
ECCO 16
Available from: 2012-04-03 Created: 2012-04-03 Last updated: 2015-10-07Bibliographically approved
Larsson, M. & Bjuresäter, K. (2011). A supportive nursing care clinic for patients with head and neck cancer: effects on nutritional status, nutritional treatment and admissions to hospital. In: Clinical Nutrition Supplements. Paper presented at ESPEN, Göteborg 2011. Elsevier
Open this publication in new window or tab >>A supportive nursing care clinic for patients with head and neck cancer: effects on nutritional status, nutritional treatment and admissions to hospital
2011 (English)In: Clinical Nutrition Supplements, Elsevier, 2011Conference paper, Published paper (Refereed)
Place, publisher, year, edition, pages
Elsevier, 2011
National Category
Nursing
Research subject
Nursing Science
Identifiers
urn:nbn:se:kau:diva-12774 (URN)
Conference
ESPEN, Göteborg 2011
Available from: 2012-04-03 Created: 2012-04-03 Last updated: 2015-10-07Bibliographically approved
Larsson, M. & Bjuresäter, K. (2011). A supportive nursing care clinic: the effect on eating problems, weight loss and quality of life for patients with head and neck cancer. In: : . Paper presented at European Multidisciplinary Cancer Congress, Stockholm Sweden.
Open this publication in new window or tab >>A supportive nursing care clinic: the effect on eating problems, weight loss and quality of life for patients with head and neck cancer
2011 (English)Conference paper, Poster (with or without abstract) (Refereed)
National Category
Nursing
Identifiers
urn:nbn:se:kau:diva-34686 (URN)
Conference
European Multidisciplinary Cancer Congress, Stockholm Sweden
Available from: 2014-12-02 Created: 2014-12-02 Last updated: 2015-10-07Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-4974-6845

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